1. 2008© COPYRIGHT ATHN Data Quality Counts How to Apply for Data Management Funding Ann Forsberg

2. 2008© COPYRIGHT 2 ATHN’s Strategic Direction Network Infrastructure Data Management Public Health and Safety Outcomes Improvement Data Analysis and Research Data safety, back-up, and portability Support surveillance and patient safety Use data to drive quality, service, and patient centered care Facilitate knowledge creation and advocacy Develop electronic database capacity

3. 2008© COPYRIGHT 3 ATHN’s Strategic Opportunities Network Infrastructure Develop electronic database capacity Gain and engage ATHN Affiliates re: database Build community trust Expand local capacity by funding and training data managers Establish regional data management structure Define and establish the core dataset: bleeding and clotting

4. 2008© COPYRIGHT 4 HTC Needs Assessment eSurvey on ATHN website – Initiated mid-October Respondents – 79 of 134 (59%) HTCs responded _ 39 of 72 (54%) ATHN Affiliates Objectives of survey – Assess state of current data collection and use – Facilitate improved data collection – Develop fact base to provide data manager funding/support to HTC’s Completed!

5. 2008© COPYRIGHT 5 Currently Using Lab Tracker (Based on 79 Respondents)

6. 2008© COPYRIGHT 6 Data Routinely Computerized in Lab Tracker (Based on 79 Respondents)

7. 2008© COPYRIGHT 7 Region I Region II Region III Region IV North Region VII Region IV South Region VI Region V West Region V East Region VIII Region X Region IX Hawaii & Guam Region IX Puerto Rico & Virgin Is Region II Map of the Regions in the National Network

8. 2008© COPYRIGHT 8 Coagulation Medications (Based on 79 Respondents) % Reporting HTCs Routinely Computerizing in Lab Tracker

9. 2008© COPYRIGHT 9 Surgeries (Based on 79 Respondents) % Reporting HTCs Routinely Computerizing in Lab Tracker

10. 2008© COPYRIGHT 10 Infusion Records (Based on 79 Respondents) % Reporting HTCs Routinely Computerizing in Lab Tracker

11. 2008© COPYRIGHT 11 Core User Collects Core Data – Demographics – Diagnoses – Coagulation medications – Surgeries – Laboratory tests – Contact info – Insurance AND Uses for either medical record or more than annual visits

12. 2008© COPYRIGHT 12 Lab Tracker User Level Super User: Use as medical record AND for more than annual visits AND capture core data plus infusions or non-coag meds Core User: Captures core data (i.e., demographics, diagnoses, coagulation meds, surgeries, labs, contact info, insurance) AND uses for either medical record or more than annual visits Early User: Captures at least demographics and diagnoses (Based on 79 Respondents)

13. 2008© COPYRIGHT 13 Data Capture Time By User Level Average Hours Per Month Estimated FTEs Per Month* Average Hours Per Patient Per Month Super User153.91.20 Core User44.26.15 Early User23.12 Non User00.00 (Based on 79 Respondents)

14. 2008© COPYRIGHT 14 Average Hours per Position per Month.91 FTE.26 FTE.12 FTE (Based on 79 Respondents)

15. 2008© COPYRIGHT 15 Perceived Current Data Manager Staffing Additional staff required: Aver. 42 hrs/mo; range: 3-160 hrs/mo (Based on the initial 79 respondents).

16. 2008© COPYRIGHT 16 Variation on Perceived Adequacy of Staffing Additional staff required: Aver. 42 hrs/mo; range: 3-160 hrs/mo (Based on the initial 79 respondents).

17. 2008© COPYRIGHT 17 Desired Support of ATHN Affiliates Manpower – Local data managers – Central help desk (Telephone support) – Regional super users (For most experienced) Lab Tracker (Web) Training – Regional – Web based Technical Support – Virtual help desk (On line support)

18. 2008© COPYRIGHT 18 ATHN Data Quality Counts: $400,000 NOW Capacity Building at HTCs Application process Deadline September 15, 2008 Email applications to chaupt@athn.org 15 awards in first round

19. 2008© COPYRIGHT 19 Awards Based on Merit and Need To secure complete and accurate core data for use in disaster preparedness, electronic UDC submission and patient management beyond annual visits; To support current Lab Tracker users to increase the amount and/or quality of their data; To jumpstart data collection using Lab Tracker® (web) by centers who are not currently users of Lab Tracker due to lack of funds for data management staffing.

20. 2008© COPYRIGHT 20 Simple Application Process Need: Why you should be funded? Objectives: What you commit to do? Performance Indicators: What measurements and milestones will document progress? Budget: How much money? How will you use it?

21. 2008© COPYRIGHT 21 HTC Commitment Required To use best efforts to achieve objectives Provide a six month progress report

22. 2008© COPYRIGHT 22 ATHN Data Quality Counts A major step forward Flexible so HTCs can ask for what they needed Additional funding cycles to follow Provides ATHN experience in funding process Helps ATHN Affiliates expand capacity

23. 2008© COPYRIGHT 23 Technology Committee – Thank You Geoffrey Allen Pam Bryant John Drake Karmin Enge Rebecca Hauke Michael O’Conner Tom Ortel Lew Parker Steven Pipe Angie Riedel Brenda Riske Linda Smith (CDC) Ray Stanhope Julie Thomas Leonard Valentino Diane Aschman Ann Forsberg, Chair