1. HI Seminar on Impact Measurement, Phnom Penh December 2013 Ulrike Last, TA Support to Civil Society and Inclusive Policies

2. Content  Recap: Links between policies, DPOs & Access to services  Type of representative organizations, their role in policies & access to services  Monitoring Effect & Impact of Capacity Development of DPOs  Monitoring Policies and policies processes  Foci: Monitoring impact of policies project, Rights monitoring, Tool development processes  Conclusion

3. Introduction Support to Civil Society Unit  “Handicap International will reinforce its action of developing the capacities of representative organizations and its national partners. Our long-term aim is for these organizations to be autonomous and become participants and influential stakeholders in development processes. ” Federal Strategy Capacity development in partnerships or through other means Strengthen organizations in management and their representativeness Enhance technical expertise and legitimacy towards inclusive policies, practice and programs -Accessibility and Inclusive Local Development Human Rights Monitoring/ CRPD parallel reporting Empowerment of individual members

4. Background Model for change – inclusion process 1) Participatory, multi-discipl. Inclusion Audit of Country/ Sector/ Service or organization: To understand & identify 1) disability, impairment and/or gender gaps & status, 2) Disabling Barriers & enabling Facilitators & Entry points 2): Decision making process on which barriers or facilitators to address short/mid/long term at what level and accordingly develop or adjust a strategy, policy or disability inclusion action plan (with indicators) 3) Ensure sufficient decision makers commitment and allocation of necessary resources (human, financial or knowledge) 4) Implement disability, age & gender inclusive measures for making country/ sector/ services or organization accessible (training, coaching, advice)

5. Dev. or humanitarian actors Inclusive Policies and Services – a contract to describe below relationships & roles Policy makers/ Authorities Service Providers and developers (private and public) Users (PWDs & families) Evaluate needs and effects of policies on needs Advocate, monitor, claim, input on policy Offer service program; input on policies Make policies, monitor & SPs needs, finance Serve according to policy/ implement provisions Use & /or finance Monitor based on policies

6. Representative organizations - Who are they and roles in monitoring policies Members: DPOs Services: at times to members Registered Scope: national – regional - global Policy related action: influence & representation in policy dialogues, input & monitoring or advocacy Federations of DPOs Members: PWDs or family, or SHGs Services: at times to PWDs (rehab, VT) Registered Scope: City to county level Policy related action: Input, monitoring, awareness, civic education, lobby or advocacy Disabled people organizations (DPOs) Members: PWDs or family Services: Peer support or other Often not registered Scope: village to city Policy related action: Input, monitoring, awareness, civic education, lobby or advocacy Self Help Groups (SHGs)

7. Monitoring effects and impact of Capacity Development of SHGs/ DPOs 1 Implementation of participatory Baseline on capacity of DPOs 2 Consultation with DPOs on which areas they would like to improve 3 Identification of means for capacity development 4 Implementation of support for capacity development (training, exposure, workshop, grant etc) 5 Capacity development phase (integration into organization) Tools Available: - Vida Brazil on advocacy capacities @ start and end - DECISEPH: Effect of capacity development - Organizational Development Tool (Steph) -HI KenSom on evidence, advocacy, communication, networking @start and end Challenges: - HI is not the only agency -High number of Contextual factors - Difficulty to assess political culture versus short term partnership versus project mode versus expectations

8. Introduction – Policies & Inclusive policies - Definition of situation with evidence in given area and legal framework (human rights, etc.) & - Objective -Target Group/ people to benefit from the policy - Specific groups - Specific sub-sectors with situation details & actions by different actors - M&E system - Specified Duration of time - Have a separate or integrated Action Plan - Related Resources allocation Define, coordinate and guide the response to a specific issue

9. Policy design processes and available monitoring tools 1 M&E; Data collection Baseline on individual/ SPs & policy framework 2 Consultation for policy 3 Policy review or new policy formulation 4 Final Draft Consultation on Policy 5 Issuing, dissemination and enforcement Tools Available for monitoring: - OPERA Framework on ESC rights to monitor how state is fulfilling obligations (not used by HI yet) - HI Mali Monitoring the implementation of Local inclusive Development plans -HI KenSom Individual rights enjoyment & Barriers and Facilitators, SLand Challenges monitoring impact: - Sustainability & Quality of tools versus DPOs’ capacity to analyze, input, comment and reading culture

10. In focus: Monitoring Policies - Inclusive Local Development Research Project WHO, WHEN? - Research project with CIEDEL, CIRRIS and HI, Vida Brazil - Implemented by the DRT Support to Civil Society Unit - Official End: 06/2014 WHAT? Analysis of 4 measurement axes to understand levels of A) Participation in local decision making B) Discrimination towards PWDs C) Disability mainstreaming by LAs & LDMs D) Gender inclusion in implementation of policies WHAT OUCOME? Tested measurement package (tools and guidance) Four municipalities Canada, Madagascar, Brazil, France

11. In focus: Tools for Rights monitoring: CRPD and/or equality CRPD: National Legal and conceptual Framework for any other law, policy and ultimately related services providers and puts state as duty bearer for successive implementation What to monitor? - National data on PWDs status - Legal & Policy Framework’s compliance, including Budgets& Service provision Who monitors? - DPOs-Civil Society - Government What tools available and used in HI? - HI Middle East: DRPI tools used for MISAWA - HI KenSom: A) Dadaab rights and discrimination monitoring, used by DPOs supported by HI - HI China: Parallel Reporting Tools

12. In focus: How are tools for rights/ policy monitoring developed? AIM: Aiming for sustainability of monitoring processes through participatory processes with partners & minimizing the complexity of tools For which user? DPOs With Who designed? DPOs, academic or other key actors with equal gender presentation Which Conceptual Framework? - National, regional & international legal and policy framework: Constitution, National disability policy; CRPD Example of (short) process: 1) Review guidelines and evidence 2) Reviewing legal and policy framework and identify relevant provisions 3) Develop related questionnaire to identify status of PWDs and Barriers and facilitators in access to services 4) Test, Train, roll out and review

13. Conclusion – Future Action for common tools? Standardize quality & systematize DPOs capacities, rights monitoring and policy related tools Comprehensive toolset macro & meso level: - Use and develop Equiframe work, DRPI and Opera further - Budget monitoring tool development - Impact of Policies - SPs’ Barrier & Facilitator (Education UNICEF) - Individuals’ Status (WG) Simplified tools for micro for actors with less abstract skills: - On rights/ policy compliance for different sectors from development to refugee context: - Community mapping of barriers and facilitators - Service providers barrier and facilitators - Policies & LAs Develop related Training tools

14. Orkun Cheran, Thanks, Merci, Gracias!

15. Resources, further reading & Study  CESR: http://cesr.org/section.php?id=179 on Opera Frameworkhttp://cesr.org/section.php?id=179  Dr. Eilionoir Flynn (2011): From Rhetoric to Action Implementing the UN Convention on the Rights of Persons with Disabilities. Cambridge: Cambridge University Press  Mannan, H., Amin, M., MacLAchlan, M. & the EquitAble Consortium (2011): The EquiFrame Manual: A tool for Evaluating and Promoting the Inclusion of Vulnerable Groups and Core Concepts of Human Rights in Health Policy Documents. Dublin: Global Press  Www.makingitwork.org on successful advocacy methods leading to inclusive or specific policies Www.makingitwork.org  UNDG (2011): Including the Rights of Persons with disabilities in United Nations Programming at Country Level. A Guidance note for UN country teams and implementing partners.  UNOHCHR: Monitoring the Convention on the Rights of Persons with Disabilities. Guidance for Human Rights Monitors.  WHO: WHO quality Rights Tool. Assessing and improving quality and human rights in mental health and social care facilities.