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Outcomes Based Program Evaluation The Many Faces of Respite, Lifespan Respite Conference, Arizona, 2011.

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Presentation on theme: "Outcomes Based Program Evaluation The Many Faces of Respite, Lifespan Respite Conference, Arizona, 2011."— Presentation transcript:

1 Outcomes Based Program Evaluation The Many Faces of Respite, Lifespan Respite Conference, Arizona, 2011

2  Presentation objective: To provide guidance on tips, tools and resources on evaluating a program that supports family caregivers  Staff development and training  Designing program components  Developing an assessment tool  Determining what outcomes you want

3  Information and Referral  Assessment  Development of “Well-Being Plan”  1:1 Support  Connection to local resources, trainings and services  Individual consumer-directed budgets for respite care & other goods/services

4  Assessment team  Program evaluator, Project manager, “Cathy” & Caregiver Specialists  What to collect  Validated tools  Collecting the data  Evaluating the data

5 Logic Model –Caregiver Supports Program Inputs Staff Funding Advisory Board Project Partners Planning processes Activities 1:1 Support Powerful Tools for Caregivers Training Connection to local resources and services Individual consumer-directed budgets Outcomes Help received Hours spent caregiving Caregiver Characteristics Care Recipient Characteristics Client Satisfaction Program components utilized

6 Underlying Premise

7 Starting point  Research on Power Tools for Caregivers  Mary Mittleman Study -Preserving health of Alzheimer caregivers: impact of a spouse caregiver intervention  Review of other assessment tools – California, Utah, Massachusetts & NH  Caregivers Count Too! from the Family Caregiver Alliance (Section 3)  Input from Caregiver Specialists  Analysis of Program Components

8 Brainstorming  Identify outcome based on program components  Caregiver related - Depression, burden, coping, quality of life, stress strain, competence, caregiver reaction, caregiving effects  Care recipient related – Activities of daily living, cognition, functional limitations

9 Criteria for the final Cut  Psychometric properties  Reliability – test retest, inter-rater & Validity – construct, content  Cultural appropriateness  Length of the Instrument  Relevance of questions  Overall fit with other tools  ALDs & IADLs adopted from the NH state Medicaid Eligibility Determination (MEDs)

10  The Final Cut  Demographic information  Gender, marital status, income and assets, relationship to care recipient  Respite – currently available, needed  Zarit Burden Inventory  Patient Health Questionnaire (PHQ-9)  SF-12 Quality of Live  Revised Memory and Behavior Scale  Care recipient Characteristics  ADLs – NH Medicaid Eligibility Determination  Short Portable Mental Status Questionnaire

11  Gender  Female – 294 (70.2%)  Age – (SD 12.4)  Marital Status  Single – 32 (7.6%)  Married – 338 (80.7%)  Divorced/Widowed – 43 (5.3%)  Caregiver Employment status  Not Employed – 286 (68%)  Caregiver Race  White (Alone) Non Hispanic – 398 (95.0%)  Relationship to Caregiver  Spouse (49.9%)  Son/Daughter (40.1%)  Length of Time as Caregiver – 2 months-8.3 years

12  Gender  Female 236 (56.3%)  Age – (SD 8.3)  Marital Status  Married 242 (57.8%)  Divorced/Widowed – 161 (35.1%)  Living Status  With someone – 359 (86%)

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17 When compared to Spousal caregivers, adult children reported  Higher levels of burden  Slightly higher levels of Quality of Life  Higher levels of depression  Needing more instrumental support  Lesser emotional support

18 This has… helped me step back and look at the whole picture … I am not so overwhelmed. I am able to meet friends occasionally – that I was never able to do before. Gave us a break so we could spend time together [husband and wife] … Provided homemaker and Med Alert. Thank God! Just having the time for myself. Weight lifted off my shoulders. Given me the ability to be a caregiver without the negative aspects associated with physical health. This program made me realize how much I need to ask for help. Video Interview - Sheila

19  Kellogg Foundation’s Evaluation Handbook  Handbook.aspx Handbook.aspx  Overview of Program evaluation  Article on Evaluating Family Caregiver Programs A pilot evaluation of the Family Caregiver Support Program. Chen YM, Hedrick SC, Young HM. Evaluation and Program Planning May;33(2):  Planning for Program Evaluation  Developing a Logic Model

20 Family Caregiver Alliance, National Center on Caregiving,  National Consensus Report on Caregiver Assessment: Volume I, Principles, Guidelines and Strategies for Change (2006)  Volume I, Caregiver Assessment: Principles, Guidelines and Strategies for Change,  Volume II, Caregiver Assessment: Voices and Views from the Field,  Caregivers Count Too! An Online Toolkit to Help Practitioners Assess the Needs of Family Caregivers,  Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners (2002),

21  Vidya Sundar, PhD. University of New Hampshire  Cathy Creapaux NH Bureau of Elderly and Adult Services Thank You


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