Presentation on theme: "Anticipatory Health Care Calendar Tracie Keats –Project Implementation Manager."— Presentation transcript:
Anticipatory Health Care Calendar Tracie Keats –Project Implementation Manager
“I matter too !” If you don’t think these things happen… Then think again…
“My precious baby was laid in the neonatal intensive care unit. The doctor told me ‘Your baby has down’s syndrome.” “What does that mean?” I asked. “Well,” he replied, “He’ll never be a brain surgeon.” Sandra, Neil’s mum
“Our health visitor had been great – so supportive from day one. Then my daughter was referred to the Child Development Centre” “I asked for my health visitor to be my key worker. I was told no – it had to be a special needs nurse. It didn’t matter what I wanted.” Karen, Lucy’s mum
“I had to go to a special school on a special bus. I wanted to go to a school with all the other children. “ “I’m not special. I’m just like you but I don’t learn as quickly as you. Why should I have to do things separately from you?” Jonathon Aged 20
“ The doctor told me to go away and read up about autism. That is how my son was diagnosed. I feel disgusted that a doctor could treat a family like that in this day and age.” Chris, Andrew’s mum
“My beautiful son was very poorly with a chest infection so I took him to our doctor.” “The doctor told us that it was because ‘Of the way he is’ he tried to suggest his learning disability was the problem, not the chest infection.” Julie, Tom’s mum
“We talked through Karen’s needs and routines with the admissions nurse but this information was never passed on.” “In the end we had to stay at the hospital all the time just to make sure Karen would survive.” Bill, Karen’s father
“Nobody noticed that Max had developed a kidney problem or was malnourished until he reached the Intensive Therapy Unit. That’s what killed him” “ Why would nobody listen to us when we told them something was terribly wrong?” Alison, Max’s mum
“After Laura’s operation I was very worried that Laura was not getting better as she did not speak.” “ The doctors and nurses had not realized Laura had had a stroke. They said they didn't think Laura could speak because she has a learning disability.” Claire, Laura’s carer
“My GP is always in a rush. I’d like him to take more time when he sees me. I feel rushed because I don’t have enough time to explain what’s wrong and I don’t always understand what he says to me.” Elice
“Jack hates taking his clothes off if he is somewhere strange. He went for his flu jab but got upset when the nurse tried to take his coat off.” “Before I could do anything the nurse just gave the injection through his jacket. I couldn’t believe it.” Sam, Jack’s carer
“The doctor kept asking me questions that I didn’t understand. It got me upset and he said ‘Oh take her away!’” “The nurse was really nice to me and asked me to draw a picture about how I felt. I did it and he showed it to the doctor.” Lucy
“ Our daughter is so full of energy and life and is a really happy person.” “But at the doctor’s one day, we heard him say ‘That’s not coming in to my room. It’ll trash the place’ – I was so angry and upset.” Jean, Victoria’s mum
I could get cancer! I could get cancer too!
Old age is a long way off for me! People with learning disabilities are 200 times more likely die young!
I can help myself by eating a balanced diet and staying healthy! Less than 10% of people with learning disabilities eat a balanced diet!
I can access screening programmes easily! People with Learning Disabilities are more likely to be excluded from screening programmes e.g 19% v 77% for cervical screening!
Despite accessing screening programmes there are still risks in life! The greater risks for people with Learning Disabilities include respiratory disease or coronary heart disease.
We are really both the same so why are our experiences so different?
Drivers for improvement Government targets: ‘Valuing People’ (DoH 2001) ‘Valuing people, the story so far’ (DoH 2005) ‘Valuing people Now: From progress to Transformation’ (DoH 2008) MENCAP “Death by indifference”
“Purpose” Reduce health inequalities clinical governance care pathways Improve communication Standardise information/documentation Record patterns in behaviour and symptoms Reduce diagnostic overshadowing Screening