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“I Can Do It!”: Ways to Grow Your Child’s Independence NDSS Webinar Series Tuesday, April 29, 2014 Katie Bergeron Peglow, PT, MS COO of Adaptivemall.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence Some of my First Memories include Down syndrome (DS). My younger sister, Carrie Bergeron, was born with DS when I was 4 ½ years old. She always strived to be independent like myself and our other two siblings. Thankfully, Carrie has worked hard and has been blessed with abilities that allow her to be semi-independent at the age of 37. Carrie is a self-advocate and national speaker/performer. Our family created Adaptivemall.com & Special Tomato Brand Products.Adaptivemall.comSpecial Tomato Brand Products The Story Behind the Brand The Story Behind the Brand April 29, 2014NDSS Webinar Series2
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“I Can Do It!”: Ways to Grow Your Child’s Independence Focusing on early developmental milestones in today’s presentation Right amount of support Not too much, just enough Patience April 29, 2014NDSS Webinar Series3
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“I Can Do It!”: Ways to Grow Your Child’s Independence ROLLING SEATING CRAWLING & CREEPING STANDING WALKING TRICYCLES & BICYCLES BATHING FINE MOTOR SKILLS April 29, 2014NDSS Webinar Series4
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“I Can Do It!”: Ways to Grow Your Child’s Independence ROLLING The Facts of Rolling… Average Age for Children with Down Syndrome to Roll From Stomach to Back Independently = 6 months (1) Average Age for Children with Down Syndrome to Roll From Back to Stomach Independently = 7 months (1) April 29, 2014NDSS Webinar Series5 (1) Winders, P.C. (1997). Gross motor skills in children with Down syndrome. Bethesda, MA: Woodbine House.
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“I Can Do It!”: Ways to Grow Your Child’s Independence ROLLING What kind of products will help? Use toys, stuffed animals, people to motivate the movement Rolling from Stomach to Back Happens first Typically easier Utilize gravity with the head Rolling from Back to Stomach Happens second More difficult Engaging the core and leg muscles against gravity April 29, 2014NDSS Webinar Series6 Photos courtesy of Winders, P.C. (1997). Gross motor skills in children with Down syndrome. Bethesda, MA: Woodbine House.
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“I Can Do It!”: Ways to Grow Your Child’s Independence SEATING For Children with DS, sitting often looks like… Wide base of support C-curve to the spine Forward head “Hanging” on their joints April 29, 2014NDSS Webinar Series7
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“I Can Do It!”: Ways to Grow Your Child’s Independence SEATING The Facts of Seating… Average Age for Children with Down Syndrome to Sit Independently = 11 months (1) Key Measurements Hip Width Thigh Depth Foot to Knee Height Bottom to Top of Head April 29, 2014NDSS Webinar Series8 Key Measurements (1) Winders, P.C. (1997). Gross motor skills in children with Down syndrome. Bethesda, MA: Woodbine House. Graphics courtesy of Adaptivemall.comAdaptivemall.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence SEATING What kind of products will help? Pre-sitting Full support Tilted seating surface Gradually bring chair upright as head control improves April 29, 2014NDSS Webinar Series9 Photos courtesy of Adaptivemall.com & Bardum.noAdaptivemall.comBardum.no
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“I Can Do It!”: Ways to Grow Your Child’s Independence SEATING What kind of products will help? Upright Sitting Pelvis needs a good foundation Support for the feet Footrest Floor April 29, 2014NDSS Webinar Series10 Photos & Graphic courtesy of Adaptivemall.comAdaptivemall.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence SEATING What kind of products will help? Active Sitting Input from environment to know where their body is in space (proprioception) “Fidgets” & “Movers” - Kore Stool Curved bottom allows movement in all directions 3 different sizes of fixed seat heights – foot to knee height Encourages anterior pelvic tilt April 29, 2014NDSS Webinar Series11 Photo courtesy of Adaptivemall.comAdaptivemall.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence SEATING What kind of products will help? Active Sitting Working the core muscles Therapy Balls Swings April 29, 2014NDSS Webinar Series12 Photos courtesy of noahsdad.com & dsamidlands.orgnoahsdad.comdsamidlands.org
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“I Can Do It!”: Ways to Grow Your Child’s Independence SEATING What kind of products will help? Active Sitting Using sitting in tasks Use a bench with slight tilt forward Grounding feet to floor Active use of leg muscles Engaging core muscles Puzzles Pieces on floor – reach down to get Puzzle on table Sit to stand to place the piece can be added to increase the difficulty level April 29, 2014NDSS Webinar Series13 Photo courtesy of www.assistireland.iewww.assistireland.ie
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“I Can Do It!”: Ways to Grow Your Child’s Independence CRAWLING & CREEPING The Facts of Crawling & Creeping… Average Age for Children with Down Syndrome to Crawl Independently = 14 months (1) Average Age for Children with Down Syndrome to Creep Independently = 17 months (1) April 29, 2014NDSS Webinar Series14 (1) Winders, P.C. (1997). Gross motor skills in children with Down syndrome. Bethesda, MA: Woodbine House.
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“I Can Do It!”: Ways to Grow Your Child’s Independence CRAWLING & CREEPING What kind of products will help? Use toys, stuffed animals, people to motivate the movement Crawling is with the belly on the floor Arm pulling and leg pushing Start with both sides of the body doing the same thing at the same time Work towards reciprocal movement (right side does the opposite of the left side) Creeping is with the belly off the floor, also called quadruped Arms & Legs are used Strong core muscles are essential Uses reciprocal movement April 29, 2014NDSS Webinar Series15 Photos courtesy of noahsdad.comnoahsdad.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence STANDING The Facts of Standing… Average Age for Children with Down Syndrome to Pull-to-Stand Independently = 17 months (1) Average Age for Children with Down Syndrome to Stand Independently = 21 months (1) April 29, 2014NDSS Webinar Series16 (1) Winders, P.C. (1997). Gross motor skills in children with Down syndrome. Bethesda, MA: Woodbine House.
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“I Can Do It!”: Ways to Grow Your Child’s Independence STANDING What kind of products will help? Start with Supported Kneeling or Tall Kneeling Increases the strength of the hip, leg and core muscles Helps increase balance Right & Left Legs are doing the same thing Use your couch with cushions removed as a working surface April 29, 2014NDSS Webinar Series17 Photo courtesy of noahsdad.comnoahsdad.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence STANDING What kind of products will help? Half-Kneeling Precursor to Pulling To Stand Legs are doing opposite motions April 29, 2014NDSS Webinar Series18 Photo courtesy of noahsdad.comnoahsdad.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence STANDING What kind of products will help? Pulling to Stand Use benches, stable toys or furniture to encourage the movement Standing Independently Cruising April 29, 2014NDSS Webinar Series19 Photo courtesy of noahsdad.comnoahsdad.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence WALKING The Facts of Walking… Average Age for Children with Down Syndrome to Walk Independently (at least 3 steps unsupported) = 26 months (1) Key Measurements if adaptive equipment is needed Floor to Elbow April 29, 2014NDSS Webinar Series20 Key Measurement (1) Winders, P.C. (1997). Gross motor skills in children with Down syndrome. Bethesda, MA: Woodbine House. Graphic courtesy of Adaptivemall.comAdaptivemall.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence WALKING What kind of products will help? Hypotonia makes this an extra difficult task Going through the typical sequence of physical developmental milestones will help strengthen all of the muscles needed for walking Children will most likely need a push toy to start April 29, 2014NDSS Webinar Series21 Photos courtesy of http://billandria. blogspot.com http://billandria. blogspot.com Photo courtesy of billandria.blogspot.combillandria.blogspot.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence WALKING What kind of products will help? Some may need support for longer Walker – no positioning accessories Gait trainer – positioning accessories added on as needed and taken away with progress April 29, 2014NDSS Webinar Series22 Photos courtesy of http://billandria. blogspot.com http://billandria. blogspot.com Photos courtesy of parentmap.com & confessionsofadownsyndromedaddy.comparentmap.comconfessionsofadownsyndromedaddy.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence TRICYCLES & BICYCLES The Facts of Tricycles & Bicycles… Average Age for Children with Down Syndrome to Ride a Tricyle Independently (15 Feet) = 61 months (1) What is the end goal? Independence! Success Fun Next level challenge Key Measurements if adaptive equipment is needed Inseam April 29, 2014NDSS Webinar Series23 Key Measurement Graphic courtesy of Adaptivemall.comAdaptivemall.com (1) Winders, P.C. (1997). Gross motor skills in children with Down syndrome. Bethesda, MA: Woodbine House.
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“I Can Do It!”: Ways to Grow Your Child’s Independence TRICYCLES & BICYCLES What kind of products will help? Tricycles Work on Reciprocal Motion Muscle Strength Social Skills Many sizes available through adult sizes Accessories available with some models if needed Look for a wide turning radius to prevent tipping April 29, 2014NDSS Webinar Series24 Photos courtesy of Adaptivemall.comAdaptivemall.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence TRICYCLES & BICYCLES What kind of products will help? Bicycles Work on Reciprocal Motion Muscle Strength Social Skills Balance Start with a balance bike to focus on balancing first Progress to a bike with pedals April 29, 2014NDSS Webinar Series25 Photos courtesy of Adaptivemall.com & striderbikes.comAdaptivemall.comstriderbikes.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence BATHING The Facts of Sitting in the Bath… Average Age for Children with Down Syndrome to Sit Independently = 11 months (1) Sitting independently in the water takes on a whole new set of challenges Key Measurements Hip Width Bottom to Top of Shoulders April 29, 2014NDSS Webinar Series26 Key Measurements (1) Winders, P.C. (1997). Gross motor skills in children with Down syndrome. Bethesda, MA: Woodbine House. Graphics courtesy of Adaptivemall.comAdaptivemall.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence BATHING What kind of products will help? Sitting independently is one thing, sitting independently in water is another Bouyancy Slipperiness “Dream Baby Deluxe Safety Infant Bath Seat” Bar folds forward out of the way for easy transfers in and out Suctions to floor of tub Great kiddie pool option April 29, 2014NDSS Webinar Series27 Photo courtesy of myliddybug.blogspot.commyliddybug.blogspot.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence BATHING What kind of products will help? Similar support for older children Holds trunk secure for safety while allowing sitting Great kiddie pool options April 29, 2014NDSS Webinar Series28 Photos courtesy of Adaptivemall.comAdaptivemall.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence FINE MOTOR SKILLS Many toys help with… Strengthening of Hand Muscles Finger Isolation Muscle Control Life Skill Development Problem Solving Color & Shape Recognition April 29, 2014NDSS Webinar Series29 Photos courtesy of differentlythesame.net, noahsdad.com & lovethatmax.comdifferentlythesame.netnoahsdad.comlovethatmax.com
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“I Can Do It!”: Ways to Grow Your Child’s Independence GOAL = INDEPENDENCE Find Key Motivators Right Amount of Support Practice Patience Challenge at the Next Level Be Creative Celebrate Successes & Have Fun! April 29, 2014NDSS Webinar Series30 Photos courtesy of facebook.com/ActivateHerefacebook.com/ActivateHere
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“I Can Do It!”: Ways to Grow Your Child’s Independence Katie Bergeron Peglow, PT, MS Pediatric Physical Therapist COO of & Email: katieb@bergeroncompanies.comkatieb@bergeroncompanies.com Customer Service: 1-800-371-2778 International #: 1-315-429-7112 Fax #: 1-315-429-8862 April 29, 2014NDSS Webinar Series31 Q & A THANK YOU! Please understand that although I am a licensed physical therapist, I cannot act in the capacity of your professional therapist(s). An in-depth knowledge of your child’s medical condition and abilities are required to make any final product recommendations. Your therapist(s) is best qualified for this reason.
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