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Sandy Arner, RD, LDN Clinical Dietitian James H. Quillen VA Medical Center March 26, 2013.

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Presentation on theme: "Sandy Arner, RD, LDN Clinical Dietitian James H. Quillen VA Medical Center March 26, 2013."— Presentation transcript:

1 Sandy Arner, RD, LDN Clinical Dietitian James H. Quillen VA Medical Center March 26, 2013

2 Disclosure Slides Financial Interest I, Sandra Arner, DO NOT have a financial interest/arrangement or affiliation with one or more organizations that could be perceived as a real or apparent conflict of interest in the context of the subject of this presentation Drugs I, Sandra Arner, DO NOT anticipate discussing any unapproved/ investigative use of a commercial product/device during this activity or presentation

3 Describe three symptoms of celiac disease State two conditions associated with untreated celiac disease Identify three grain alternatives that are gluten free Learning Objectives

4 Autoimmune digestive disease Damages villi of small intestine Interferes with absorption of nutrients from food Those with CD cannot tolerate gluten Also called Gluten-sensitive enteropathy Sprue Non-tropical sprue Celiac sprue It is NOT an allergy What Is Celiac Disease (CD)

5 Still unknown Cause of Celiac Disease

6 General name for prolamins (storage proteins) in wheat, rye, barley Toxic prolamins Gliadin in wheat Secalin in rye Hordein in barley What is Gluten?

7 1 in 133 or 1% of American population has Celiac Disease or CD (about 3 million people) ¹ 1 in 141 or 0.71% of Americans have CD ² In 70% of identical twin pairs, both twins have the disease ³ Family members who have an autoimmune disease are at a 25% increased risk of having celiac disease ³ Some CD Statistics ³ Nationl Foundation For Celiac Awareness, Updated Feb. 28, 2013 ¹ Prevalence of Celiac Disease in At-risk and Not-at-risk Groups in the United States. Arch Int. Med. (2003) 163:286 ² The American Journal of Gastroenterology 107, (October 2012)

8 Estimated 85% of Americans who have celiac disease are undiagnosed or misdiagnosed with other conditions ¹ 6-10 years is the average time a person waits to be correctly diagnosed ² 5-22% of celiac patients have an immediate family member (1st degree relative) who also has celiac disease ¹ Burden of disease over four-year period per patient: Celiac-free males: $4,019 Males with CD: $14,191 ¹ May is Celiac Awareness Month Statistics (contd) ¹ National Foundation for Celiac Awareness, Updated Feb. 28, 2013 ² Source: Daniel Leffler, MD, MS, The Celiac Center at Beth Israel Deaconness Medical Center

9 Symptoms Celiac Disease Abdominal pain Bloating/gas Diarrhea and/or constipation Indigestion/reflux (heartburn) Nausea and vomiting Fatigue/lethargy Muscle weakness Itchy skin rash Tingling/numbness Mouth sores Lactose intolerance Bone pain Easy skin bruising Edema of hands and feet Joint pain Delayed growth Weight loss or gain Osteoporosis Headaches Depression/irritability Hair loss

10 Symptoms of CD (contd) Iron, folate and/or vitamin B12 deficiency Other vitamin and mineral deficiencies (A,D, E, K, calcium) Elevated liver enzymes Discolored teeth Migraine headaches Depression Menstrual irregularities Infertility in both women and men Recurrent miscarriages

11 An immediate family member with CD Presence of HLA-DQ2 and HLA-DQ8 genes About 95% of people with celiac disease have the HLA-DQ2 gene Most of the remaining 5% have the HLA-DQ8 gene Major life event, emotional stress, pregnancy, or surgery in those who are genetically predisposed Those with other autoimmune disease Those with another genetic disorder Infantsexposure to gluten before 3 months of age Celiac Disease Risk Factors

12 Some Disorders/Conditions Associated More Frequently with CD Type I diabetes Thyroid disease Liver disease Sjögrens syndrome Lupus Addisons disease Scleroderma Alopecia areata Rheumatoid arthritis Turner syndrome Raynauds syndrome

13 Symptoms Blood test Small bowel biopsy Should be tested while on a gluten-containing diet Diagnosis of CD

14 No standardization in testing for diagnosis of CD Anti-tissue transglutaminase antibodies (tTGA) Anti-endomysium antibodies (EMA) Gluten free diet should not be started before blood tests and biopsy Serologic Tests

15 Diagnosis: Intestinal Biopsy A biopsy of the small intestine can confirm the findings of the blood test. Celiac disease damages or destroys the villi in the intestine DiagnosisThe Biopsy

16 What Does Celiac Disease Look Like?

17 Very small percentage of people with celiac disease do not respond to a gluten-free diet. May be prescribed glucocorticoids or at times immunosuppressants are indicated to induce remission Refractory Celiac Disease

18 Another form of celiac disease Chronic skin condition Intense burning Itchy and blistering rash Often misdiagnosed as eczema, contact dermatitis, allergies, hives, herpes, or psoriasis Many with DH have varying degrees of small intestinal villous atrophy Diagnosisskin biopsy from unaffected skin adjacent to blisters or erosions Treatment is a strict gluten free diet for life Dermatitis Herpetiformis (DH)

19 Malabsorption Malnutrition Low blood glucose or swings in blood glucose Osteoporosis Infertility Neurological problems Lactose intolerance Cancer Some Complications of Untreated CD

20 Only known treatment is strict gluten free diet for life! Additional vitamin and mineral supplements may be needed to correct malnutrition Some may also need to eliminate lactose until damaged bowel is healed Treatment for CD

21 Contain Gluten (from wheat) Atta Bulgur Couscous Durum Einkorn Emmer Farina Graham flour Hydrolyzed wheat protein Kamut Motzoh, Matzoh meal Modified wheat starch Seitan Semolina Spelt (a form of wheat) Dinkel Farro or Faro Triticale Wheat Wheat bran Wheat flour Wheat germ Wheat starch

22 Contain Gluten (from barley) Ale Barley (flakes, flour, pearl) Beer Brewers yeast Lager Malt Malt extract, malt syrup, malt flavoring Malt vinegar Malted milk

23 Rye bread Rye flour Contain Gluten (from rye)

24 Commonly Have Gluten Red Flags For Gluten In bread, cereal, pasta, crackers, baked goods Wheat Rye Barley Hidden Gluten Processed meat Potato chips French fries Breaded foods Malt (made from barley) Hydrolyzed Vegetable Protein (often contains wheat) Sauces Soy sauce (made from soy & wheat) Marinades Gravy Salad dressings Candy Flavored coffees and teas Nutritional supplements Soups

25 Controversial Oats Safety of oats much debated Barley often contaminates oats Wheat contaminates oats Only consume pure, uncontaminated oats Best to be labeled or certified as gluten free Oatmeal Oat bran Oat flour Oats

26 Gluten Free Grains/Flours/Starches Rice Corn (maize) Soy flour Potato flour Tapioca Bean flour Garfava flour Sorguhm Quinoa Potato flour/starch Millet Buckwheat Arrowroot flour Amaranth Teff Montina® (Indian ice grass) Flax Nut flours Cornmeal Cornstarch

27 Buy items made with whole grain flour and bean flour to get healthier nutrients GF often lower in fiber Purchase products with added vitamins and minerals Refined carbohydrates often in GF products generally make baked goods higher in calories and total carbohydrate than regular versions Replacing regular bread, muffins, baked goods for GF products without regards to calories weight gain Using Gluten Free Flours

28 MAY Contain Gluten Brown rice syrup Breading & coating mixes Croutons Energy Bars Flour or cereal products Imitation bacon Imitation seafood Marinades Panko (Japanese bread crumbs) Pastas Processed luncheon meats Sauces, gravies Self-basting poultry Soy sauce or soy sauce solids

29 MAY Contain Gluten Soup bases Stuffings, dressing Thickeners (Roux) Communion wafers Herbal supplements Prescription drugs & over-the-counter medications Lipstick Nutritional supplements Vitamins & mineral supplements Play dough: a potential problem if hands are put on or in the mouth while playing with play dough Hands should be washed immediately after use

30 Alcohol Beer and Ale Has gluten from barley malt ONLY have gluten free beers or ale that are so labeled And IF your healthcare provider allows Wine, Distilled Alcohol Wine and distilled alcohol are generally safe As long as your healthcare provider allows alcohol

31 Incorporate whole foods into gluten free diet Reverse nutritional deficiencies Restore gut health Let Food Be Thy Medicine

32 Adhere to a total (100%) gluten free diet Need nutrient-dense foods to regain health Need proper nutrition to restore gut health Focus on whole foods vs. highly processed gluten free packaged foods (& prepare without ingredients that contain gluten) Meat Fish Eggs Rice Beans Fruits Vegetables Nutrient-Dense Gluten Free Diet

33 Preparing foods on common surfaces with gluten items Using utensils that are not thoroughly cleaned after preparing gluten-containing foods Using a common toaster for GF bread and regular bread is a major source of contamination Sharing flour sifters with gluten-containing flours Deep frying foods cooked in oil shared with breaded products containing gluten Using knives for spreadable condiments for both gluten free and gluten-containing products Cross-Contamination Concerns

34 A must for those with celiac disease Carefully check the ingredient list Label Reading

35 Food labels to clearly identify wheat and other common food allergens in list of ingredients Eight major foods or food groups Milk Eggs Fish (e.g., bass, cod, flounder) Crustacean shellfish (e.g., crab, lobster, shrimp) Tree nuts (e.g., almonds, walnuts, pecans) Peanuts Wheat Soybeans Develop and finalize rules for term gluten free on product labels (not done yet) Food Allergen Labeling and Consumer Protection Act of 2004 (FALCPA) (Public Law , Title II) of the FDA

36 FDA gluten free labeling to be voluntary FDA proposing to define the food labeling term "gluten- free" to mean a food bearing this claim does not contain any of the following: An ingredient that is a "prohibited grain," which refers to any species of wheat (e.g., durum wheat, spelt wheat, or kamut), rye, barley, or their crossbred hybrids An ingredient (e.g., wheat flour) that is derived from a "prohibited grain" and that has not been processed to remove gluten An ingredient (e.g., wheat starch) that is derived from a "prohibited grain" that has been processed to remove gluten, if the use of that ingredient results in the presence of 20 micrograms or more gluten per gram of food (i.e., 20 ppm) Or 20 micrograms or more gluten per gram of food Gluten Free

37 Some Gluten Free Symbols

38 Eating Gluten Free Grocery Shopping MANY gluten free foods available now Various stores carry gluten free foods Eating Out Must ask, ask, ask Some restaurants do have gluten free menu items

39 Iron Folate Niacin Vitamin B12 Calcium Phosphorus Zinc Fiber GF Diet Potentially Low in Nutrients Source: Academy of Nutrition and Dietetics Celiac Disease Toolkit 2011

40 Assess Biochemical Data & Results of Medical Procedures Gastrointestinal profile Intestinal biopsy Or skin biopsy for DH Celiac antibodies IgA-tTG IgA-EMA IgA/IgG-DGP Total IgA Nutritional anemia profile Hemoglobin Hematocrit Folate Ferritin Vitamin B12 Vitamin profile Thiamin Vitamin B6 25-hydroxy vitamin D Mineral profile Copper Zinc Lipid profile Electrolyte profile Renal profile Bone density screening Source: Academy of Nutrition and Dietetics Celiac Disease Toolkit 2011

41 Nutrition Intervention Education on gluten free diet Consumption of whole/enriched gluten- free grains & other products Consideration of MV and mineral supplement Inclusion of gluten free oats as tolerated Calcium/vitamin D for reduced bone density Iron supplementation for iron deficiency anemia Education on food cross- contamination Source: Academy of Nutrition and Dietetics Celiac Disease Toolkit 2011

42 Reverse Nutritional Deficiencies Iron Calcium Vitamin D Zinc Magnesium Vitamin K Folate Vitamin B6 Vitamin B12 Fiber

43 Foods first Supplements as necessary Nutrients often cannot be absorbed until intestinal site of absorption heals Improvement in nutrient stores important Indicates intestines are healing Indicates adherence to gluten free diet Follow up blood to test antibodies and nutrient levels is important Reverse Nutrition Deficiencies (contd)

44 Ensure medications and supplements are gluten free Be aware of physiological reasons someone may not be absorbing certain nutrients Then make recommendations and monitor Provide tips for maximizing nutrient uptake Reverse Nutrition Deficiencies (contd)

45 Number one way to improve gut health is removing gluten from diet May take longer to restore gut health for some Some may need steps beyond gluten free diet Digestive health and integrity of gut lining play important roles in immune health Restore Gut Health

46 Wheat free is not gluten free When in doubt, go without May be contamination in food preparation Stay symptom free with gluten free Eating gluten free is work Remember

47 Those who suffer from celiac disease Those who are sensitive to gluten Those who think gluten free products are healthier Those who follow a trend in the news Who Is Buying Gluten Free

48 Gluten-degrading enzymes Modified grains that lack immunogenic compounds Zonulin inhibitors that decrease intestinal permeability Anti-inflammatory therapy Immunotherapy Hookworms Future Possibilities

49 The cost of gluten-free (GF) food that is in EXCESS of the cost of the gluten containing food that you are replacing The full cost of special items needed for a GF diet may be deducted If you make a special trip to a store to purchase GF foods, the actual cost of your transportation to and from the store is deductible The full cost of postage or other delivery expenses for GF foods made by mail order are deductible Tax Deductions

50 Celiac Disease Foundation: Celiac Sprue Association: National Foundation for Celiac Awareness: NIH Celiac Disease Awareness Campaign: National Digestive Diseases Information Clearinghouse Helpful Web Sites

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