1. How to Use Desferal A slideshow for patients and families Produced by the staff of the Georgia Comprehensive Sickle Cell Center Atlanta, Georgia First edition, July 2000

2. Starring Annie Chen Ms. Chiu Hung Lo Donta Washington Ms. Tiawanna Washington and Mr. Desferal Photography, text, and production Dr. Beatrice Gee, Morehouse School of Medicine Dr. Lewis Hsu, Emory University Mr. Allan Platt, Georgia Comp. Sickle Cell Center

3. Welcome I’m Donta and this is Annie. We’re going to show you how to use Desferal

4. I’m “Mister Desferal” Mr. Desferal was developed by Ms. Susan Kurth, PNP, Children’s Hospital, Boston

5. Getting Ready We always start by washing our hands with soap and water

6. Getting Ready Then, we dry our hands

7. Get out the equipment Put all of your supplies in a clean area

8. Find a spot Pick where on your body you will give your infusion

9. Apply EMLA If you want, put EMLA on your skin 30 minutes before you’re ready to start. This makes your skin numb so the needle won’t hurt too much.

10. Clean the skin Use alcohol and iodine swabs to clean the skin.

11. Prepare the pump

12. Clean your skin - unless you want a skin infection

13. And now, the part that looks really hard…

14. Place the needle There are different kinds of needles

15. Get your needle ready, and put it in.

16. Put on the dressing Secure and cover the needle with a dressing. Many people use clear Tegaderm.

17. Pack the pump Put the pump in its carrying case.

18. When your pump is packed in the bag, you can sleep or walk around with it

19. Keep track We use a calendar to keep track of when we use our Desferal. We try to use it at least 5 days a week.

20. Sometimes you get a skin reaction It usually goes away Scars may come if you use the same spot on the skin for many days in a row, or if you get a skin infection.

21. Port-A-Caths are sometimes used for transfusions. Some people also use the Port-A-Cath for Desferal

23. True or False: Messiness will help you prepare your Desferal.

24. True or False: Once you find a good spot for Desferal, then you should use the same spot every day for the next 3 months.

25. Many places on your body are good spots for Desferal Use a different spot each day

26. Some parts of your skin are not good spots for Desferal

27. Which needle size do you want to use for your Desferal? (These pictures are on the same scale)

28. The electric pump’s batteries belong A) in the pump. OR B) on the table.

29. Can you see the “ON” switch? No? well... It’s pretty small! Be sure the switch is pushed to “ON” and the light comes on, too

30. Let’s review What are the steps of using Desferal? Choose the right answers on the next slides

31. What do you do first?

32. Is this right?

33. Which is good for numbing the skin? A) EMLA cream B) toothpaste C) typing correction fluid

34. How do you clean the skin? A) paper towelsB) alcohol and iodine C) household cleaner

35. You can do it, too! We learned how to use Desferal. So can you. The medical team is here to help. You can also learn by practicing with a Desferal Doll. Good luck!

36. SPECIAL THANKS to the 4th grade class from Vacation Bible School, Atlanta Chinese Christian Church, for making Desferal Dolls for this workeshop! June 2000