1. HSP Research Foundation Organisation established 2005 in Australia, with dual focus … grow & support research, grow & support the HSP community Currently 673 community members; 48 from other countries Estimated about half with HSP No membership fees We raise about $80,000AUD annually from donations >95% goes directly to fund research Partner closely with researchers we fund, including planning, grant applications Virtual organisation that is totally e-based All volunteer and carry costs out of pocket

2. Mission The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find an effective treatment. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing information, education and support.

3. Vision Effective treatments for the majority of the HSPs are globally widely-available, accessible, affordable and used by HSPers everywhere.

4. Values Fairness in participation and access to information and services for all community members Geographically agnostic - both nationally and globally Inclusion and collaboration Professional, competent and business-like in all our dealings All-volunteer, and proud of it! Any advance anywhere that can help anyone with HSP has the potential to help everyone with HSP everywhere

5. Core Competency Effective organisation and communication Strategic appreciation and strategy development Collaboration and partnership