1. Patient defined outcomes: lessons from systematic review S Mathers* +, G McKenzie*, E Robertson*, J Proctor* +, R Chesson + *NHS Grampian + The Health Services Research Group Aberdeen, Scotland, UK.

2. What aspects of health care can be evaluated? Outcome Change due to intervention Process Intervention e.g. surgery, procedure Structure Resources, facilities organisational settings Donabedian, 1980

3. ...a successful outcome, as defined from the professionals perspective, may not necessarily be regarded as a successful outcome by the patient. Wright, 1999

4. Patient centred outcome determined solely by health professions and researchers Patient defined outcome identified by patients as being important Dixon, 1995

5. Aim To carry out a systematic review of literature to identify: the prevalence, use of patient focused outcome measures in radiology.

6. Search Strategy Databases searched Abstracts read according to defined criteria Criteria redefined, abstracts to be re-read in light of this Articles to be retrieved Initial paper review Data synthesis 1. Data extraction form 2. Quality checklist Data analysis 1.SPSS 2. Summary tables 3. Meta-analysis Write up and dissemination. Modified from NHS Centre for Reviews and Dissemination, (UK)

7. 47 key words used radiology, diagnostic imaging, x-ray/ outcomes patient satisfaction efficacy outcome measures utilityadverse reaction waiting times quality of care Databases searched e.g. MEDLINE

8. Results Citations 5516 Citations reviewed111 Patient focused outcome 23

9. NO paper was found in which patient defined outcome had been used in radiology

10. Patient focused outcome papers Primary focus of research 4 papers - ALL concerned with lumbar spine imaging

12. Patient focused outcome papers Secondary focus of research 5 papers - 4 interventional studies - 1 chest imaging

13. Lessons learned RSNA Index of Imaging Literature does not include outcome measure as key word A data extraction form had to be developed to facilitate systematic review of literature Papers not published in mainstream radiology publications

14. Conclusions Dearth of research into patient centred outcomes in radiology Lack of coherent body of work Demonstrates little patient involvement in radiology research

15. Recommendations Outcome measurement should be embedded within the cultures of radiology and radiography Patient engagement should take place in developing patient defined outcome especially in the area of interventional radiology Value of patient defined outcomes incorporated into education, benchmarking and planning of health care

16. Acknowledgements The Royal College of Radiologists (UK) (Pump Priming Research Award)