1. Children’s Special Health Care Services (CSHCS) Strategic Planning April 16 -17, 2008 Kathy Stiffler, Director

12. CSHCS Expenditures By Provider Type FY06 ServiceExpenditure Pharmacy $ 85,587,625 DME $ 14,887,175 Inpatient Hospital $ 37,614,619 Outpatient Hospital $ 13,093,771 Home Health $ 17,002,767 Physician $ 5,604,711 Hearing/Speech $ 716,280 Dental $ 846,225 Vision $ 40,463 Ancillary Services $ 205,768 Total $ 175,599,404

14. ServiceExpenditure Pharmacy $ 91,225,682 DME $ 14,036,028 Inpatient Hospital $ 43,840,869 Outpatient Hospital $ 13,215,151 Home Health $ 18,181,154 Physician $ 5,266,497 Hearing/Speech $ 581,306 Dental $ 928,857 Vision $ 51,879 Ancillary Services $ 210,563 Total $ 187,537,986 CSHCS Expenditures By Provider Type FY07

16. Top Ten Expenditures By Diagnosis Group – FY06 Diagnosis GroupsSub-Group Group Diagnosis CodesExpenditures Number of Cases Diseases of the Blood and Blood Forming Organs (Including Hemophilia) 280 - 289 $ 38,974,159.98 1,651 Diseases of the Central Nervous System (Including Cerebral Palsy) 320 - 349 $ 35,724,536.52 6,475 Congenital Anomalies 740 - 759 $ 28,113,688.46 7,518 Congenital Heart Disease745 - 747 $ 7,724,041.46 1,748 Cleft Lip and Cleft Palate749 - 749 $ 2,226,517.17 1,343 Certain Deformities and Anomalies of Limbs754 - 755 $ 1,624,424.65 650 Diseases of the Endocrine Glands (Including Diabetes) 240 - 259 $ 13,111,029.16 3,619 Metabolic Diseases 270 - 279 $ 12,108,418.97 1,243 Certain Diseases of the Newborn (Including Respiratory Distress Syndrome) 760 - 778 $ 9,790,895.82 1,212 Cancer (Excluding Neoplasms of Blood and Lymph Systems 140 - 199 $ 6,600,738.94 1,108 Cancer of the Lymphatic and Hemtopoitic Systems (Including Leukemia) 200 - 209 $ 4,601,036.75 687 Diseases of the Respiratory System 460 - 519 $ 4,371,441.43 1,871 Diseases of the Kidney and Urinary System (Including Nephritus and Nephrosis) 580 - 599 $ 3,252,680.26 708

18. Diagnosis GroupsSub-Group Group Diagnosis CodesExpenditures Number of Cases Diseases of the Blood and Blood Forming Organs (Including Hemophilia) 280 - 289 $ 46,159,515.97 1,681 Diseases of the Central Nervous System (Including Cerebral Palsy) 320 - 349 $ 34,163,576.85 6,414 Congenital Anomalies 740 - 759 $ 31,780,408.95 7,598 Congenital Heart Disease745 - 747 $ 9,324,681.22 1,835 Cleft Lip and Cleft Palate749 - 749 $ 2,310,062.51 1,320 Certain Deformities and Anomalies of Limbs754 - 755 $ 1,933,341.36 652 Diseases of the Endocrine Glands (Including Diabetes) 240 - 259 $ 13,759,988.70 3,872 Metabolic Diseases 270 - 279 $ 12,028,529.29 1,258 Certain Diseases of the Newborn (Including Respiratory Distress Syndrome) 760 - 778 $ 9,991,988.13 1,142 Cancer (Excluding Neoplasms of Blood and Lymph Systems 140 - 199 $ 7,127,039.05 1,168 Cancer of the Lymphatic and Hemtopoitic Systems (Including Leukemia) 200 - 209 $ 6,235,019.04 711 Diseases of the Respiratory System 460 - 519 $ 5,355,826.89 1,944 Diseases of the Kidney and Urinary System (Including Nephritus and Nephrosis) 580 - 599 $ 3,704,899.33 743 Top Ten Expenditures By Diagnosis Group – FY07

20. Status of Fiscal Year ‘08 October 2007 – March 2008  Title V Expenditures: $21,599,046  Title V/XIX Expenditures: $75,613,106  Total Expenditures: $97,212,152

21. CSHCS and Birth Defects  CSHCS data linked to Birth Defects Registry (BDR) data Identify missing BDR cases Identify BDR children with eligible CSHCS diagnosis Race /EthnicityMBDR Cases with CSHCS diagnosis CSHCS Covered % White29,82024 Black10,10924.9 Amer. Indian20528.8 Asian/PI1,24813.3 Hispanic1,92825.1 Arab1,38716.7 Total45,22423.7

22. MCHB Core Outcomes MI % Nation % CSHCN whose families are partners in decision- making at all levels, and who are satisfied with the services they receive 56.457.4 CSHCS who receive coordinated, ongoing, comprehensive care within a medical home 45.947.1 CSHCS whose families have adequate private and/or public insurance to pay for the services they need 60.862.0 CSHCN who are screened early and continuously for special health care needs 68.863.8 CSHCN whose services are organized in ways that families can use them easily 90.989.1 Youth with SHCN who receive the services necessary to make appropriate transitions to adult health care, work, and independence 40.841.2

32. 2007 CSHCS Age-Out Statistics  Total Client who turn 21 = 961  Total Clients Continuing Coverage= 41 4% of total age-out population  Total Clients aging out of CSHCS = 920

33. 2007 Age-Out Statistics  Top Age-Out Diagnosis DescriptionPercent of Population Diabetes (all type I)15% Cerebral Palsy6% Epilepsy5% Hearing Loss4% Quadriplegia4% Sickle Cell3%

34. CSHCS Strategic Planning Questions?