1. Diabetes Camps Until The Cure, There’s Camp Presented by Shelley D Yeager, MA, LCSW Director of Outreach and Development Diabetes Education and Camping Association (DECA) www.diabetescamps.org

2. Diabetes in Children Type 1 diabetes is an autoimmune condition resulting in the body’s inability to produce insulin, a hormone that regulates blood sugar –In the US, 206,000 or (1 in 400-500) youth under age 20 have type 1 diabetes. About 16,000 youth are newly diagnosed with type 1 diabetes annually. –T1D in Americans under age 20 rose by 23 percent between 2001 and 2009. 3 –The incidence of T1D in children under age 14 is estimated to increase by three percent annually worldwide. 4 Type 2 diabetes results from insulin resistance – the body’s inability to effectively produce enough or utilize existing insulin. –National Diabetes Education Program reports that the increase of type 2 in children accounts for 3,700 of every 15,000 new diagnoses each year. Statistics for worldwide type 2 diabetes are difficult but estimates from the US and Europe indicate a global concern. http://www.cdc.gov/diabetes/pubs/pdf/ndfs_2011.pdf http://jdrf.org/about-jdrf/fact-sheets/type-1-diabetes-facts/

3. Causes of Diabetes in Children Type 1 diabetes is caused by an autoimmune process whereby the body destructs insulin-producing beta cells. It is not preventable. It is partly genetically determined – a unknown “trigger” exists. Type 2 diabetes is directly related to genetic predisposition and obesity. Over 85% of children diagnosed with type 2 are obese. Type 2 is largely preventable.

4. Diabetes Treatment Type 1 diabetes requires treatment with insulin by injection or insulin pump, vigilant blood glucose monitoring, combined with meal planning and exercise Type 2 diabetes requires treatment with meal planning & exercise (weight loss) and sometimes medication (oral or insulin). Monitoring of blood glucose levels is also required. The key to long-term health is management of blood glucose levels in a near normal range to prevent complications to the heart, eyes, kidneys, nervous system and more

5. Dawn Youth Study - NovoNordisk 5 Most Common Emotional Issues in Youth Fall Into Five Categories 1.Being different from peers 2.Accepting their “disease” 3.Wanting to be normal 4.Being judged “bad” or “good” in relation to blood glucose 5.Need support from family, friends, school

6. Diabetes is a Team Affair Authoritative parenting – a style where the child is a key member of the decision- making team from the day of diagnosis, encouraged to make age-appropriate choices in diabetes care, but not expected to be autonomous in diabetes management A non-judgment approach – a blood sugar executed and recorded is a good blood sugar regardless of the number, an opportunity to discuss and make choices A supportive diabetes-knowledgeable community (family, health care team, friends, school, camp)

7. Goal-setting Self-monitoring Positive reinforcement Conflict management Behavioral contracts Supportive parental communications Shared responsibility for diabetes management Group coping-skills training Stress management Peer support Psychosocial intervention Behavioral & therapeutic interventions

8. Young adults and parents in the USA felt youth camps for children with diabetes had been very helpful Q57 (YA):To what extent has this activity helped you? Q53 (PC):To what extent has this activity helped you? Scale: 1 (not at all) to 4 (a great deal) Mean scores 1 – not at all 4 – a great deal Base (YA):83898 Base (PC):1045572 Base: All young adults with diabetes who are involved in this activity; all parents/carers who are involved in this activity 1 to 4 scale

9. Psychosocial benefits of camp Increased sense of normalcy Increased Independence Increased support from peers Increased self perception Reduced anxiety Reduced fear

10. Independence and Motivation  Camps expose children to new things  Camps teach kids by doing – “teachable moments”  Camps bring children and professionals together to promote understanding  Camps encourage independence  Camps send a “different” child home  Camps makes friends for life Diabetes camp makes a powerful difference in the life of a young person

11. Diabetes Camp Services Since diabetes camps began in the late 1920’s, they have grown to include over 185 organizations operating over 440 diverse programs Approximately 25,000 campers are served along with family members and friends An additional 10,000 young adults serve as staff members, most who have diabetes or who have a familial or professional understanding There are over 60 different Day Camps operating 74 programs There are over 25 Family Camps operating 41 programs, There are over 100 Resident Camps, operating 240 programs, There are wilderness, trip, dedicated sports, ski and other unique camps There are more than 15 camps in Canada and many more worldwide

12. Local Programs The Barton Center –Rainbow Club (6/24 – 6/28, Greenwich; 7/29 – 8/2, NYC) –Clara Barton & Camp Joslin (6/23 – 8/9) –Winter Camp, Family Camp (8/9 – 8/15) & Weekends Camp Surefire –Alton Jones Resident Week (6/23/ - 6/28) –Winter Camp Camp Nejeda –Family Camp (6/14 – 6/16, 8/18 – 8/20) –Resident Camp (6/23 – 8/16) –Gluten Free Camp –Weekends Naomi Barrie Diabetes Center Day Camp

13. Young Adults in Transition DLead/DTreat College Diabetes Network International Diabetes Federation Young Leaders Program: IDF YLD

14. Diabetes Education & Camping Association Works with diabetes leaders worldwide so that more children with diabetes may be served at camps Assists child and youth organizations by developing guidelines for diabetes management Provides networking between and resources to diabetes camps in order to enhance and expand programs Serves as the worldwide voice for diabetes camping First scuba diving camp

15. Resources Best Practices in Diabetes Camping Provide consultation to camps Diabetes 101 The Diabetes Camp Survival Manual Outcomes & Research

16. Future Goals To demonstrate the value of diabetes camping programs for youth and young adults To increase the number of youth and families served by diabetes camps worldwide To increase the number of programs serving youth and young adults with diabetes and their families worldwide To enhance participation in diabetes camping programs by diabetes partner groups

17. Until The Cure, There’s Camp Together we can Great Camps, Great Kids, Great Futures

18. www.diabetescamps.org