1. Life Course Perspective Seminar Series LCPSS Evaluation Leadership Project URLEND 2011 Brooke Sevy Caroline Hagedorn, PNP Eduardo Ortiz, PhD Sarah Winter, MD

2. Outline Introduction Survey Parent partner input Recommendations Developed Skills

3. Introduction Enhance current URLEND Life Course Perspective participatory seminar series researching national objectives actively participating in the fetal alcohol syndrome and prematurity lecture incorporating feedback from both the current trainees and a parent participant collaborating with faculty members, to enhance the content, format and distribution of the current series Goal: trainees to related to this model and incorporate the Life Course Perspective into their current practices

4. Survey data Sample 30 URLEND trainees Diverse professional background (Psychology, Nursing, Dentistry, Social Work, Physical Therapy, Speech and Language Pathology, Medicine, Audiology, Genetics, Nutrition, Education, Business and Sociology...) Responses 19 or 63% completed the survey 11 or 37% did NOT completed

5. Survey Results Has LCPSS been informative and beneficial? 42% strongly agree 53% agree 5% disagree

6. Survey Results Have you enjoyed LCPSS? 53% strongly agree 42% agree 5% disagree

7. Survey Results On what roles will you apply LCPSS material? More than one option per answer were available As a practitioner 89% As a Teacher/Professor 53% As an Advocate 42% As a Researcher 37% As an Administrator 11%

8. What have you learned from LCPSS “It has been a great experience being encouraged to integrate the different aspects of life to see how they interrelate and interact with each other…” “Along with considering their complex needs, as clinicians we would benefit from thinking about the larger systems that impact the individuals we work with (cultural, environmental, historical, etc.)” “I have learned how important family are to everything we do… they need to be heard, validated, and been given opportunities to teach us…we need to not only look at small piece of the puzzle, but the entire picture… It is critical to be sensitive to and aware of one’s culture, values, economic status, spiritual needs… fail to look at the entire picture, (then) we are doing a strong disservice to the family.”

9. What did you enjoy the most Qualitative data “… I love case study examples, they help me to see how it applies to real life situations.” “I enjoyed the opportunities to think critically about the various topics… (it) was wonderful and has allowed me to branch out my comfort zone and become more knowledgeable…”

10. What would you add to LCPSS? “More seminars that focus on how we, as clinicians, use this broader LC perspective to benefit our clients.” Comments asking for additional LCPSS discussions linked to: Genetics Social factors Economics Practical applications

11. Parent partner input “He had all the right ingredients; he was just a bad batch of cookies.” care for self with adequate sleep, food and low stress levels Importance of providers listening to their patients Finding information through appropriate resources: word of mouth

12. Recommendations 1)ensure seminars are well organized with focus on discussion 2)no changes to the content of the introductory seminar, the fetal alcohol and prematurity seminar, and the final seminar; enhance organization of the introductory seminar 3)combine National Children’s Study with an additional seminar focusing on social factors that impact health outcomes (air, water, diet, sound, family dynamics, community and cultural influences, and genetics) and families with multiple children with disabilities. 4)expand discussion of health disparities to include more of the economic side of the Life Course Perspective in regards to financial management of healthcare. 5)tie the last presentation into application of series into each trainee’s own clinical practice. 6)group of students next year to evaluate the Life Course Perspective participatory seminar series using the Logic Model

13. Conclusions 1.High levels of trainee satisfaction 2.No major changes 3.Focus on specifics 1.practical applications 2.Conditions and disabilities 3.Socioeconomic and cultural factors 4.Logic Model for ongoing evaluation

14. Leadership skills emphasized Communication Critical thinking Interdisciplinary work

15. URLEND Suggestions Fewer lectures regarding research strategies More interactive seminars with those living with disabilities, such as the panel of adults with disabilities Less calling on people to speak

16. Thanks