1. What’s Health Got to Do With It? Integrating Education & Health Care Transitions to Achieve Mutual Outcomes APSE National Conference Philadelphia, PA June 23, 2015

2. Let’s Chat Twitter: @WSPJ1 Text: 785-764-2472 Online: PAHJ44U9

3. What Happens to Youth When They Grow Up? Experience a variety of transitions: School Adult Services But did you know: Pediatric Medical CareAdult Medical Care Pediatric Specialty CareAdult Specialty Care

4. What is the Goal? Quality Adult Life Health Care Well-Being Employment Independent Living Community Participation Relationships

5. What are Your Experiences with Health Care Transition?  I am currently receiving pediatric medical care  I am currently receiving adult medical care  I am currently in the process of transitioning from pediatric to adult care  I am not currently transitioning but would like to  I would like more information about health care transition

6. What is Health Care Transition? PediatricsAdult Care HEALTHCARE TRANSITIONS… …

7. What is Often the Reality? PediatricsAdult Care HEALTHCARE TRANSITIONS… …

8. What is the Impact? Range of disparities in health outcomes Reduced access to health care More difficulty getting needed care Poorer health outcomes

9. What Contributes to “the Gaps” in Transition? No reimbursement for transition activities Limited number of adult providers Youth not considered to be “transition ready” Lack of knowledge of pediatric and congenital conditions

10. How Many Youth with Special Health Care Needs Turn 18 Each Year?  100,000  250,000  500,000  750,000  1,000,000

11. Why is Health Care Transition Important? 4.5 million youth with special health care needs 65% of whom are moderately to severely affected 750,000 of these youth turn 18 every year Most live well into adulthood

12. Why Should We Think About Health? Impacts everything we do Influences school, work, and quality of life Importance of access to insurance and medical care

13. What Often Happens?

14. Different Worlds

15. Different Perspectives

16. Different Models

17. Concept of Supports

18. Awareness of Best Practices

19. Expectations

20. So How Can We Connect the Two?

21. What Did Stakeholders Tell Us? Focus Groups Interviews Survey Learning Collaborative

22. What Were the Common Themes? Information & EducationTools & Resources Interventions & Protocols

23. What are Critical Components in Transition? Developing skills that are credible in adulthood Providing youth with access to people in the adult world Providing opportunities for youth to participate in the adult world

24. Transition Engagement Checklist A framework of “talking points” A “current status check” of key aspects of successful transition An “action plan” for addressing the skills and supports needed to enhance the adolescent’s self-determined actions over time.

25. TRANSITION ENGAGEMENT CHECKLIST

26. TRANSITION ENGAGEMENT CHECKLIST [Continued]

28. Patient Interaction Tool Developed by youth with disabilities Input regarding the type, number, and format of questions Determined the most important and useful questions Provides youth with a guide to start conversations

30. Adolescent Transitioning Clinic Multi-disciplinary, day long Comprehensive Transition readiness Self-determination Education Employment Community organizations “I hope…that other families will have this wonderful experience and to provide another young person the opportunity to use this great resource to assist them as they transition to the adult world. I highly recommend it! A++”

32. How Can I Participate? Field testing of the Transition Engagement Checklist Field Testing of the Patient Interaction Tool Provide input, comments, and feedback Stay connected

33. What Else Can I Do? Get to know the medical community Share resources and what you can do Provide “patient summaries” (skills, communication, supports) Include health in your work Promote skills and experiences important for health care transition

34. Let’s Hear From You? http://www.socrative.com Enter Teacher’s Room Code: PAHJ44U9 Click on: Join Room Enter Your Name: _____________________ Click on: Done

35. For more information, contact Wendy Parent-Johnson Wendy.parentjohnson@usd.ed (605)357-1468 Richard Parent-Johnson Richard.parentjohnso@usd.edu USD Center for Disabilities (www.usd.edu/cd)www.usd.edu/cd