1. Author S McMahon Whose health service is it anyway? Patients perspective Irish Patients Association Royal Hospital Kilmainham Dublin © Irish Patients Association Dec 4 th 2002

2. Overview  How we saw the system and see it  The Health Strategy  Our Strategy  Getting it right  Whose health care is it? the challenge  Areas of Involvement  Importance of Networking  Some messages for consideration Irish Patients Association Dec 4 th 2002

3. Legacy Model Patient POWER Health Service support Irish Patients Association Author S McMahon

4. Vision Model Patient support power Health Service Patient Centered Health Service Irish Patients Association Author S McMahon

5. Vision of Irish Health Strategy Quality & Fairness A health system that supports and empowers you, your family and community to achieve your full health potential A health system that supports and empowers you, your family and community to achieve your full health potential A health system that is there when you need it, that is fair and that you can trust A health system that is there when you need it, that is fair and that you can trust A health system that encourages you to have you say, listens to you and ensures that you views are taken into account A health system that encourages you to have you say, listens to you and ensures that you views are taken into account

6. Principles that underpin Strategy Equity and fairness Equity and fairness A people-centered service A people-centered service Quality of care Quality of care Clear accountability Clear accountability

7. Strategy not Dead we have only taken the first of many steps

8. Our Strategy In Partnership with Health Service Systems Place Patient at the center of Health Care Place Patient at the center of Health Care Participate in the Improvement in the Quality & Safety they receive Participate in the Improvement in the Quality & Safety they receive Participate in its Cost Effectiveness Participate in its Cost Effectiveness Participate in expanding the Availability of Service Participate in expanding the Availability of Service Protect Patients Rights!! Protect Patients Rights!!

9. Based on our experience Patient Needs Based on our experience Patient Needs Be treated with dignity Be treated with dignity PrivacyPrivacy ConfidentialityConfidentiality Have equitable access to services and medications Have equitable access to services and medications Have quality and safety proactive management Programs Have quality and safety proactive management Programs Have access to meaningful information Have access to meaningful information Right to give informed Consent Right to give informed Consent To have Robust grievance procedures To have Robust grievance procedures To trust the system To trust the system Irish Patients Association

10. Goal is getting it right every time! Irish Patients Association Author SMcMahon

11. Challenges to getting it right Exist! Medication Clinical Management Inequality of Access Irish Patients Association Nov 15 th 2002 Author S McMahon

12. Irish Patients Association Networking & collaboration Listen and learn from the patients experience Listen and learn from the patients experience Enterprise liability advisory group Enterprise liability advisory group PPF Health service quality assurance group PPF Health service quality assurance group Among many NGOs Health strategy forum Among many NGOs Health strategy forum P.A. P.A. I.A.P.O. I.A.P.O. Cittadinanzattiva Cittadinanzattiva

13. Areas Of Involvement  Council of Europe Committee of experts on media and health (SP-MDS)  Primary Care Implementation National/Regional Steering Committees  Medical Councils Advisory Group on Competence Assurance  An Bord Altranais steering committee on Nurses in the prescribing and administration of medical products  A Hospital policy advisory committees Consent/Complaints/Non Punitive reporting systems  EUPC  Lecturers / Conferences / Media

14. Simple message is  System is listening and patient groups are beginning to collaborate  We all must work to ensure that it is not tokenistic

15. Campaigns Value for Money Audit Value for Money Audit Participated inParticipated in Safety “Proactive risk management everywhere” Safety “Proactive risk management everywhere” Industrial relations unrest Industrial relations unrest Minister recently announced HR StudyMinister recently announced HR Study Support “Health care advocates within system when they identify safety issues” Support “Health care advocates within system when they identify safety issues” European patients charter European patients charter

16. Without patient centered quality standards HC is not the patients Receptionist Receptionist Doctor (GP) Pharmacist Pharmacist Community Staff Community Staff Consultant Consultant Nurse Nurse Professionals Professionals Mngr/Admin Mngr/Admin Others Others Irish Patients Association Author SMcMahon Eg. Quality standards Communication Safety Management Industrial Relations Grievance procedurers Patients View Event line

17. A health system that encourages you to have you say, listens to you and ensures that you views are taken into account you views are taken into account Patient centered Needs a partnership approach Corner stone – quality ethos Drives culture change It’s the patients Health Care system !

18. Lets Connect ! THANK YOU THANK YOU