1. End of Life Care Training Programme for Staff Working with People with Learning Disabilities
Nicola Le Prevost
Nurse Consultant End of Life Care / Flexi Clinical Lecturer Pilgrims Hospice
Tracey Rose
Matron Learning Disabilities Team

2. How did this all come about?
Patient experience story from the Hospice
The start of this journey is from a patient’s experience
Theme of this presentation is based on this patient's love of the TV series
Certainly the journey has grown!

3. How to improve ?
Reflection
Meet the experts

4. How to Improve? Review evidence Formulate a plan Collaborate
What did the evidence show ?

5. Participation across sectors in Kent Funding from HEE KSS
Project
Collaboration between partner organisations to manage and deliver project
Participation across sectors in Kent
Funding from HEE KSS
Inter-agency working practice
Aim
Improve and steer best practice for caring and supporting people with learning disabilities and those important to them.
Developing partnership and proactive education in end of life care
Improve and steer best practice for caring and supporting people with learning disabilities and those important to them.
Achieved by developing partnership and proactive education in end of life care
Have an increased knowledge of symptoms and management by utilising skills, assessment tools, and specialist resources.
Opportunities to openly discuss end of life care and barriers they may have experienced

6. Outcome
Improved practice of those who are caring and supporting people with learning disabilities and those who are important to them.
Developed partnerships, education programme and resources for end of life care, for staff who are caring for people who have a learning disability

7. Practice development has been used in numerous ways to enhance clinical services, such as to increase quality and safety in healthcare within a unit, to develop shared values and service priorities and to improve communication within a healthcare team (McCormack, 2010 ; McCormack et al., 2013).

8. What has been achieved ? Practice Improvements Personal development
– referrals to LD Teams
Case management
AHP involvement
Multi-sector engagement
Development of shared resources
Overcoming barriers

9. Professional practice reflecting the NMC Code of Conduct achieved

10. Resources / References
CIPOLD: