1. Webinar, 21th September 2018, 11:30 CET
2018 Thematic Network
of the EU Health Policy platform
Societal Impact of Pain
21 November 2018, Vittoria Carraro, European Pain Federation, EFIC & Anca Pop, Pain Alliance Europe, PAE
Webinar, 21th September 2018, 11:30 CET

2. Societal Impact of Pain (sip) platform

3. SIP Thematic network on the eu health policy platform

4. Presentation of Joint Statement to European Commission
OUR methodology
Data gathering
SIP Stakeholder Group database
SIP platform database
Wide-ranging desktop research
Open call for contribution
Working group
Civil society groups interested in pain met to give initial input on the paper structure and development and shared their best practices or ideas
Drafting
Pulling through Working Group feedback and ideas
1st Webinar
Discussed initial draft on EU Health Policy Platform with stakeholders and received further input
Drafting
Received and implemented input from various stakeholders
2nd Webinar
Proposed revised version with stakeholders on EU Health Policy Platform and received further input
Finalisation
SIP Steering Committee
Implemented final input and received final approval from stakeholders
Presentation of Joint Statement to European Commission
12 November 2018
CONTINUE ENDORSEMENT AND DISSEMIANTION

5. Input from OUR COMMUNITY THROUGOUT THE whole PROCESS

6. Our endorsers so far

7. our methodology - outcomes
SIP FRAMING PAPER
Identified existing policy and advocacy initiatives relevant to tackle the societal impact of pain
and background to our recommendations
SIP JOINT STATEMENT
Agreed recommendations that address the gaps identified in our Framing Paper
SIP INFOGRAPHIC
Visual and synthetic representation of our Joint Statement for further communication and engagement

8. Sip joint statement The problem:
Pain medicine is not taught as a dedicated subject in most European academic systems, and not widely known in the broader community.
Our recommendations:
The European Commission support national governments in the coordination and sharing of best practice in pain education
The European Commission and Parliament as well as Member States support awareness raising activities, educating a wide range of stakeholders about pain management
Member States promote wider access to pain education within HCP education and promote education of pain self-management and health literacy

9. indicators The problem:
There is currently a data gap in how we measure and monitor the societal impact of pain across the EU.
Our recommendations:
The European Commission and the OECD include pain as a key indicator in their Health at a Glance report
The European Commission repeat and broaden their 2006 Health Eurobarometer, including questions on musculoskeletal pain
Member states adopt the updated pain disease classification ICD-11, civil society and HCPs contribute to the education on the uptake of the new codification

10. Employment The problem:
Chronic pain is the number one reason for workplace absenteeism and disability in the EU.
Our recommendations:
The European Commission and Member States work together to promote policies that reflect the link between pain and employment
The European Commission support projects like CHRODIS-Plus for the inclusion of pain into all training tools
The European Commission and Member states take into account the recommendations from the PATHWAYS project when reviewing current strategies on chronic disease and employment policies

11. Research
The problem:
Many mechanisms of pain as a biopsychosocial phenomenon are not fully understood: this is true at the molecular and cellular level, and even more so at a behavioural and socio-economic level.
Our recommendations:
The European Commission propose further investment in research on the societal impact of pain, Member States and EP support the resource allocation in the legislative process
The European Commission support the development of pain centres of excellence across Europe and encourage a network for these centres
The European Commission include pain as a topic for its mission-oriented research

12. Education The problem:
Pain medicine is not taught as a dedicated subject in most European academic systems, and not widely known in the broader community.
Our recommendations:
The European Commission support national governments in the coordination and sharing of best practice in pain education
The European Commission and Parliament as well as Member States support awareness raising activities, educating a wide range of stakeholders about pain management
Member States promote wider access to pain education within HCP education and promote education of pain self-management and health literacy

13. Our commitment The problem:
Pain medicine is not taught as a dedicated subject in most European academic systems, and not widely known in the broader community.
Our recommendations:
The European Commission support national governments in the coordination and sharing of best practice in pain education
The European Commission and Parliament as well as Member States support awareness raising activities, educating a wide range of stakeholders about pain management
Member States promote wider access to pain education within HCP education and promote education of pain self-management and health literacy
Civil society, healthcare professionals and patient groups share best practices on pain education for patients, healthcare professionals, politicians and the broader community
Civil society, healthcare professionals and patient groups continue working on their educational programs and projects targeted to these audiences
Healthcare professionals, patient groups and researchers working on pain contribute to the implementation of the new the WHO 11th revision of the International Classification of Diseases (ICD-11) that includes chronic pain as a separate entry
Healthcare professionals and patients provide their expertise and perspective in the creation of patient- relevant indicators 
Industry representatives, research institutions, healthcare professionals and patient groups build on the achievements of public private research partnerships such as Innovative Medicines Initiative (IMI) with the aim of translating them in real word applications.
Patient groups and healthcare professionals foster the dissemination of research outcomes to their community and support a patient-led approach to research

14. Our commitment The problem:
Pain medicine is not taught as a dedicated subject in most European academic systems, and not widely known in the broader community.
Our recommendations:
The European Commission support national governments in the coordination and sharing of best practice in pain education
The European Commission and Parliament as well as Member States support awareness raising activities, educating a wide range of stakeholders about pain management
Member States promote wider access to pain education within HCP education and promote education of pain self-management and health literacy
Healthcare professionals, patient groups and researchers working on pain contribute to the implementation of the new the WHO 11th revision of the International Classification of Diseases (ICD-11) that includes chronic pain as a separate entry
Healthcare professionals and patients provide their expertise and perspective in the creation of patient- relevant indicators 
Civil society, healthcare professionals, patient groups and industry representatives share best practice on flexible work environment for people living with pain and data gathered through surveys on employment and chronic pain to contribute to evidence-based policy making

15. About sip thematic network
About sip platform
next step
Continued collaboration with the European Commission and SIP partners and endorsers to support implementation
Further endorsements will continue to be sought, until 25 January 2019
Ensure a link with our SIP activities at national level
Follow up and continuity through the SIP Stakeholder Group on the EU Health Policy Platform 15

16. SIP Thematic Network & Stakeholder Group
How do we communicate?
1. SIP Communication Channels
SIP Website
Social Media
SIP LinkedIn Group
SIP Newsletter
Distributed every 6 weeks
2. SIP on the EU Health Policy Platform*
Agora
SIP Thematic Network & Stakeholder Group *

17. You have still the chance to endorse our Joint Statement!
Working together
You have still the chance to endorse our Joint Statement!
Contact us at and