1. Attitudinal survey of black and Asian adults in England Survey carried out by Agroni Research Ltd 2019

2. What this slide deck covers
Results from the latest survey of black and Asian adults in England on the subject of organ donation. The survey covers:
Support levels for donation
Whether or not people are willing to donate
The motivators for and barriers against organ donation
Information about whether people are talking about organ donation
Responses to factual questions about organ donation
Insights are provided for the whole survey sample of black and Asian adults and broken down by different groups (black African, African Caribbean, Bangladeshi/Pakistani, Indian and Muslim)
We have also included BAME results from the latest awareness tracker around the change in the law

3. Attitudinal survey of black and Asian adults in England
NHS Blood and Transplant commissioned a survey of 1063 black and Asian adults 18+ living in England using a quota sample. Quota sampling was chosen to ensure that a sufficient number of respondents for each main ethnic group were interviewed to provide more robust statistical validity.
The main ethnic groups are defined as black Afro-Caribbean, black African, Indian, and Bangladeshi/Pakistani. Additionally, a minimum sub-quota of Muslim respondents is also set as part of the overall N=1,000.
The sample is balanced by age, gender and broad geographic region to provide enough coverage among each variable, but no quotas are set.
An initial benchmark Wave was carried out face-to-face in May 2018 by Agroni Research, a bespoke agency specialising in BAME respondents, via face to face interviews. The second Wave reported on the following pages was carried out in March 2019.

4. Important notes
Please do not use these stats in a comparative way in your work e.g. x ethnicity is more likely to want to donate than y ethnicity
Don’t presume that any differences in %s are statistically significant
Base sizes were often small
Please speak to NHS Blood and Transplant first if you are planning to use the stats in any press releases etc.

5. Neither support nor oppose
Key findings – support for organ donation among black and Asian adults in England
Q10 Support for organ donation (%) X
Net: Support
Net: Oppose 33 41
Neither support nor oppose
There was generally an improvement in the attitudes to organ donation among black and Asian audiences from the previous measurement of May 2018.
There was a statistically significant increase in strong support for organ donation between wave 1 and 2 and a statistically significant decrease in opposition.
These results indicate an initial softening of attitudes that, if sustained, may lead to a more robust increase in support and consideration
Support. Which of these statements best describes your views on organ donation? It doesn't matter if you would donate your own organs or not, we just want to know how you feel about organ donation in principle.
Base May 2018 : All respondents (1034); Afro-Caribbean (309), black African (304), Bangladeshi/Pakistani (318), Indian (103), Muslim (464)
Base March 2019 : All respondents (1063); Afro-Caribbean (329), black African (289), Bangladeshi/Pakistani (233), Indian (212), Muslim (345)

6. I neither support nor oppose
Support for organ donation by ethnicity
Q10 Support for organ donation (%) X
Net: Support X
Net: Oppose
Total
Afro-Carib.
African
Bangl./Pakist.
Indian
Muslim 41 38 45 39 44 33
I neither support nor oppose
Support. Which of these statements best describes your views on organ donation? It doesn't matter if you would donate your own organs or not, we just want to know how you feel about organ donation in principle.
Base March 2019 : All respondents (1063); Breakdown: Afro-Caribbean (329), black African (289), Bangladeshi/Pakistani (233), Indian (212), Muslim (345),

7. Key findings – willingness to donate organs among black and Asian adults in England
There was a statistical significant increase in willingness to donate all organs and a statistically significant decrease in people saying they definitely wouldn’t donate.
There was an increase in people answering “I don’t know” suggests a softening in attitudes, shifting from negative to neutral positions. If sustained, this could lead to further consideration and increase in willingness.
Willing. Which of the following best describes how you personally feel about organ donation after death?
Base Main Tracker: All respondents Nov 2017 (1600) Oct 2018 (1858)
Base BAME Tracker: All respondents May 2018 (1034) March 2019 (1063)

8. Willingness to donate own organs by ethnicity
Willing. Which of the following best describes how you personally feel about organ donation after death?
Base March 2019 : All respondents (1063) Breakdown: Afro-Caribbean (329), black African (289), Bangladeshi/Pakistani (233), Indian (212), Muslim (345)

9. Motivators towards organ donation among black and Asian adults in England
Respondents who were favourable towards organ donation, or did not know whether they would donate their organs after death, were shown a list of reasons why other people have donated organs. They were then asked to select, which, if any, applied to them.
The top four reasons selected were:
− Someone I love could one day need a transplant (27%)
− Don’t know (27%)
− It would be improving and saving the lives of others (22%)
− I feel a social responsibility to donate (22%)
Below are some things that people have said about why they would donate their organs. Which of these apply to you when thinking about whether you would consider donating your organs after death?
Base, March 2019: All respondents excluding those who definitely would not donate organs (851); Breakdown (Afro-Caribbean (279), black African (264) Bangladeshi/Pakistani (118), Indian (190), Muslim (203))

10. Barriers against organ donation among black and Asian adults in England
Respondents (except those who would definitely donate) were shown a list of reasons why other people have said they would not donate their organs after death. They were then asked which, if any, were relevant to them
The top four reasons selected were:
− Don’t know (30%)
− I think organ donation is against my culture or religion (22%)
− I don’t know enough about it (13%)
− I want my body to be whole when it is buried or cremated (10%)
Below are some things that people have said about why they would not donate their organs. Which of these apply to you when thinking about whether you would not consider donating your organs after death?
Base, March 2019: All respondents excluding those who definitely would donate organs (909) Breakdown: (Afro-Caribbean (278), black African (248) Bangladeshi/Pakistani (211), Indian (172), Muslim (295))

11. Do black and Asian adults in England talk about organ donation?
What was spoken about? (%)
Have you ever talked with anyone about organ donation? Which of the following have you spoken about?
Base, March 2019: All Respondents (1063); All who have spoken to someone about organ donation (143)

12. Conversations by ethnicity
Have you ever talked with anyone about organ donation?
Base March 2019 : All Respondents (1063), Afro-Caribbean (329), black African (289), Bangladeshi/Pakistani (233), Indian (212), Muslim (345)

13. Why never spoken to close family/partner about organ donation
Total
Afro-Caribbean
I haven't got around to it yet
I didn’t think that I needed to
It's never come up in conversation
I do not know enough about it
I wouldn’t feel comfortable about it
I do not want to donate
Donating is personal choice so no need
I've never really thought about organ donation before
I worry that it might upset them
I don’t want to talk about death
I don't think they would feel comfortable
It might divide opinion/cause an argument
I feel like it would be tempting fate
I would worry that they might object to my opinion
Don't Know
black African
Q22 Why never spoken to members of close family about organ donation (%)
Why have you never told members of your close family or your partner whether or not you want your organs to be donated?
Base, March 2019: All respondents who had not talked about organ donation (985); Afro-Caribbean (314), black African (264)

14. Why never spoken to close family/partner about organ donation
Q22 Why never spoken to members of close family about organ donation (%)
Total
Bangladeshi/Pakistani
Indian
Muslim
I haven't got around to it yet
I didn’t think that I needed to
It's never come up in conversation
I do not know enough about it
I wouldn’t feel comfortable about it
I do not want to donate
Donating is personal choice so no need
I've never really thought about organ donation before
I worry that it might upset them
I don’t want to talk about death
I don't think they would feel comfortable
It might divide opinion/cause an argument
I feel like it would be tempting fate
I would worry that they might object to my opinion
Don't Know
Why have you never told members of your close family or your partner whether or not you want your organs to be donated?
Base, March 2019: All respondents who had not talked about organ donation (985), Bangladeshi/Pakistani (217), Indian (190) Muslim (321)

15. Knowledge about organ donation among black and Asian adults in England
Compared to a sample from May 2018, the respondents were much better informed on organ donation issues
Almost double the number (22% to 39%) now correctly answer that you get a better match with a donor from your own ethnicity and three times as many (11% to 35%) state that black and Asian people are proportionally more likely to need an organ.
Which of these statements do you think is true? (receiving organs)
Base, March 2019: Afro-Caribbean (329), black African (289), Bangladeshi/Pakistani (233), Indian (212) Muslim (345), Non-Muslim (718)
Which of these statements do you think is true? (need for organs)

16. Knowledge about organ donation among black and Asian adults in England
Q25 Which of these statements do you think is true? (need for organs) (%)
Which of these statements do you think is true?
Base BAME Tracker: All respondents May 2018 (1034), March 2019 (1063)

17. The NHS Organ Donor Register and registration
There was an increase in those reporting that they were definitely registered, or thought they were registered. This is still low compared to the general population, as 38% of UK population is registered
The number of people saying they were definitely not registered decreased
Note that the results are based on claimed behaviour.
Have you registered on the Organ Donor Register that you want to donate your organs?
Base Main Tracker: All respondents Nov 2017 (1600), Oct 2018 (1858)
Base BAME Tracker: All respondents May 2018 (1034), March 2019 (1063)

18. Muslim insights

19. Support for organ donation – Muslims in England
Q10 Support for organ donation (%)
31% X
Net: Support X
Net: Oppose
37%
33%
I neither support nor oppose
Support. Which of these statements best describes your views on organ donation? It doesn't matter if you would donate your own organs or not, we just want to know how you feel about organ donation in principle.
Base, March 2019: Muslim (464)

20. Willingness to donate own organs – Muslims in England
Q11 Willingness to donate own organs (%)
Willing. Which of the following best describes how you personally feel about organ donation after death?
Base, March 2019: Muslim (345)

21. Motivators among Muslims in England
Someone I love could one day need a transplant
It would be improving and saving the lives of others
I feel a social responsibility to donate
My organs will only go to waste when I die
I would feel proud to donate
I want to make something good out of a sad situation
It's something that everyone should do
I would accept an organ so I should be prepared to give one
It would help my family and friends with the grieving process
Makes me feel good I could be helping someone when I die
It would make my family and friends feel proud
Organ donors are viewed as extremely unselfish people
Want to ensure there are organs for those who need them
Don't know
None of the above
Muslim
Below are some things that people have said about why they would donate their organs. Which of these apply to you when thinking about whether you would consider donating your organs after death?
Base, March 2019: Muslim respondents excluding those who definitely would not donate organs (203)

22. Barriers among Muslims
Q13 Barriers for Donating Organs (%)
I think organ donation is against my culture or religion
I don’t know enough about it
I want my body to be whole when it is buried or cremated
I don't want to think about my death
I don't want to suffer after death
I worry my organs wouldn’t be used for transplantation
I worry donation will delay the burial or cremation time
I worry my family might be upset if I donated my organs
I don't want to donate to someone from a different religion
Hospital staff might not save me if I am on ODR
I don’t want to donate to someone who does not deserve it
I'm too old - my organs wouldn't be of any use
I have an illness that will stop doctors wanting my organs
I wouldn’t accept an organ transplant, so I wouldn’t donate
Don't know
Below are some things that people have said about why they would not donate their organs. Which of these apply to you when thinking about whether you would not consider donating your organs after death?
Base, March 2019: Muslim respondents excluding those who definitely would donate organs (295)

23. Awareness of need for organs – Muslims
Which of these statements do you think is true (need for organs)?
Base, March 2019: Muslim (345)

24. Understanding of importance of ethnic matching - Muslims
Q24 Which of these statements do you think is true (receiving organs)? (%)
Which of these statements do you think is true (receiving organs)?
Base, March 2019: Muslim (345)

25. black African insights

26. Support for organ donation – black African people in England
Q10 Support for organ donation (%)
38% X
Net: Support X
Net: Oppose
17%
45%
I neither support nor oppose
Support. Which of these statements best describes your views on organ donation? It doesn't matter if you would donate your own organs or not, we just want to know how you feel about organ donation in principle.
Base March 2019 : black African (289)

27. Willingness to donate own organs – black African people
Q11 Willingness to donate own organs (%)
Willing. Which of the following best describes how you personally feel about organ donation after death?
Base March 2019 : black African (289)

28. Motivators among black African people
Someone I love could one day need a transplant
It would be improving and saving the lives of others
I feel a social responsibility to donate
My organs will only go to waste when I die
I would feel proud to donate
I want to make something good out of a sad situation
It's something that everyone should do
I would accept an organ so I should be prepared to give one
It would help my family and friends with the grieving process
Makes me feel good I could be helping someone when I die
It would make my family and friends feel proud
Organ donors are viewed as extremely unselfish people
Want to ensure there are organs for those who need them
Don't know
None of the above
Below are some things that people have said about why they would donate their organs. Which of these apply to you when thinking about whether you would consider donating your organs after death?
Base, March 2019: black African respondents excluding those who definitely would not donate organs (264)

29. Barriers among black African people
Q13 Barriers for Donating Organs (%)
I think organ donation is against my culture or religion
I don’t know enough about it
I want my body to be whole when it is buried or cremated
I don't want to think about my death
I don't want to suffer after death
I worry my organs wouldn’t be used for transplantation
I worry donation will delay the burial or cremation time
I worry my family might be upset if I donated my organs
I don't want to donate to someone from a different religion
Hospital staff might not save me if I am on ODR
I don’t want to donate to someone who does not deserve it
I'm too old - my organs wouldn't be of any use
I have an illness that will stop doctors wanting my organs
I wouldn’t accept an organ transplant, so I wouldn’t donate
Don't know
Below are some things that people have said about why they would not donate their organs. Which of these apply to you when thinking about whether you would not consider donating your organs after death?
Base, March 2019: black African respondents excluding those who definitely would donate organs (248)

30. Awareness of need for organs – black African people
Q25 Which of these statements do you think is true (need for organs) ? (%)
Which of these statements do you think is true?
Base, March 2019: black African (289)

31. Understanding of importance of ethnic matching – black African people
Which of these statements do you think is true?
Base, March 2019: black African (289)

32. black Afro-Caribbean insights

33. Support for organ donation – black Afro-Caribbean people
Q10 Support for organ donation (%)
41% X
Net: Support
21% X
Net: Oppose 38
I neither support nor oppose
Support. Which of these statements best describes your views on organ donation? It doesn't matter if you would donate your own organs or not, we just want to know how you feel about organ donation in principle.
Base March 2019: Afro-Caribbean (329)

34. Willingness to donate own organs – black Afro-Caribbean people
Q11 Willingness to donate own organs (%)
Willing. Which of the following best describes how you personally feel about organ donation after death?
Base March 2019 : Afro-Caribbean (329)

35. Motivators among black Afro-Caribbean people
Q12 Motivations for Donating Organs (%)
Afro-Caribbean
Someone I love could one day need a transplant
It would be improving and saving the lives of others
I feel a social responsibility to donate
My organs will only go to waste when I die
I would feel proud to donate
I want to make something good out of a sad situation
It's something that everyone should do
I would accept an organ so I should be prepared to give one
It would help my family and friends with the grieving process
Makes me feel good I could be helping someone when I die
It would make my family and friends feel proud
Organ donors are viewed as extremely unselfish people
Want to ensure there are organs for those who need them
Don't know
None of the above
Below are some things that people have said about why they would donate their organs. Which of these apply to you when thinking about whether you would consider donating your organs after death?
Base, March 2019: Afro-Caribbean respondents excluding those who definitely would not donate organs (279)

36. Barriers among black Afro-Caribbean people
I think organ donation is against my culture or religion
I don’t know enough about it
I want my body to be whole when it is buried or cremated
I don't want to think about my death
I don't want to suffer after death
I worry my organs wouldn’t be used for transplantation
I worry donation will delay the burial or cremation time
I worry my family might be upset if I donated my organs
I don't want to donate to someone from a different religion
Hospital staff might not save me if I am on ODR
I don’t want to donate to someone who does not deserve it
I'm too old - my organs wouldn't be of any use
I have an illness that will stop doctors wanting my organs
I wouldn’t accept an organ transplant, so I wouldn’t donate
Don't know
Q13 Barriers for Donating Organs (%)
Below are some things that people have said about why they would not donate their organs. Which of these apply to you when thinking about whether you would not consider donating your organs after death?
Base, March 2019: Afro-Caribbean respondents excluding those who definitely would donate organs (278)

37. Understanding of the need for organs – black Afro-Caribbean people
Q25 Which of these statements do you think is true (need for organs) ? (%)
Which of these statements do you think is true?
Base, March 2019: Afro-Caribbean (329)

38. Understanding of importance of ethnic matching – black Afro-Caribbean people
Q24 Which of these statements do you think is true (receiving organs) ? (%)
Which of these statements do you think is true?
Base, March 2019: Afro-Caribbean (329)

39. Bangladeshi/Pakistani insights

40. I neither support nor oppose
Support for organ donation – Bangladeshi and Pakistani people
Q10 Support for organ donation (%)
22% X
Net: Support
39% X
Net: Oppose
39%
I neither support nor oppose
Support. Which of these statements best describes your views on organ donation? It doesn't matter if you would donate your own organs or not, we just want to know how you feel about organ donation in principle.
Base March 2019 : Bangladeshi/Pakistani (233)

41. Willingness to donate own organs – Bangladeshi and Pakistani people
Q11 Willingness to donate own organs (%)
Willing. Which of the following best describes how you personally feel about organ donation after death?
Base March 2019 : Bangladeshi/Pakistani (233)

42. Bangladeshi/Pakistani
Motivators among Bangladeshi and Pakistani people
Someone I love could one day need a transplant
It would be improving and saving the lives of others
I feel a social responsibility to donate
My organs will only go to waste when I die
I would feel proud to donate
I want to make something good out of a sad situation
It's something that everyone should do
I would accept an organ so I should be prepared to give one
It would help my family and friends with the grieving process
Makes me feel good I could be helping someone when I die
It would make my family and friends feel proud
Organ donors are viewed as extremely unselfish people
Want to ensure there are organs for those who need them
Don't know
None of the above
Bangladeshi/Pakistani
Q12 Motivations for Donating Organs (%)
Below are some things that people have said about why they would donate their organs. Which of these apply to you when thinking about whether you would consider donating your organs after death?
Base, March 2019: Bangladeshi/Pakistani respondents excluding those who definitely would not donate organs(118)

43. Bangladeshi/Pakistani
Barriers among Bangladeshi and Pakistani people
Q13 Barriers for Donating Organs (%)
Bangladeshi/Pakistani
I think organ donation is against my culture or religion
I don’t know enough about it
I want my body to be whole when it is buried or cremated
I don't want to think about my death
I don't want to suffer after death
I worry my organs wouldn’t be used for transplantation
I worry donation will delay the burial or cremation time
I worry my family might be upset if I donated my organs
I don't want to donate to someone from a different religion
Hospital staff might not save me if I am on ODR
I don’t want to donate to someone who does not deserve it
I'm too old - my organs wouldn't be of any use
I have an illness that will stop doctors wanting my organs
I wouldn’t accept an organ transplant, so I wouldn’t donate
Don't know 19
Below are some things that people have said about why they would not donate their organs. Which of these apply to you when thinking about whether you would not consider donating your organs after death?
Base, March 2019: Bangladeshi/Pakistani respondents excluding those who definitely would donate organs (211)

44. Understanding of the need for organs amongst Bangladeshi and Pakistani people
Q25 Which of these statements do you think is true (need for organs) ? (%)
Which of these statements do you think is true?
Base, March 2019 Bangladeshi/Pakistani (233)

45. Understanding of importance of ethnic matching – Bangladeshi and Pakistani people
Q24 Which of these statements do you think is true (receiving organs) ? (%)
Which of these statements do you think is true?
Base, March 2019: Bangladeshi/Pakistani (233)

46. Indian insights

47. Neither support nor oppose
Support for organ donation – Indian people
Q10 Support for organ donation (%)
44%
Neither support nor oppose
46%
10%
Net: Support X
Net: Oppose
Support. Which of these statements best describes your views on organ donation? It doesn't matter if you would donate your own organs or not, we just want to know how you feel about organ donation in principle.
Base March 2019 : Indian (212)

48. Willingness to donate own organs – Indian people
Q11 Willingness to donate own organs (%)
Willing. Which of the following best describes how you personally feel about organ donation after death?
Base March 2019 : Indian (212)

49. Motivators among Indian people in England
Q12 Motivations for Donating Organs (%)
Indian
Someone I love could one day need a transplant
It would be improving and saving the lives of others
I feel a social responsibility to donate
My organs will only go to waste when I die
I would feel proud to donate
I want to make something good out of a sad situation
It's something that everyone should do
I would accept an organ so I should be prepared to give one
It would help my family and friends with the grieving process
Makes me feel good I could be helping someone when I die
It would make my family and friends feel proud
Organ donors are viewed as extremely unselfish people
Want to ensure there are organs for those who need them
Don't know
None of the above
Below are some things that people have said about why they would donate their organs. Which of these apply to you when thinking about whether you would consider donating your organs after death?
Base: Indian respondents excluding those who definitely would not donate organs - Indian (190)

50. Barriers among Indian people
Q13 Barriers for Donating Organs (%)
Indian
I think organ donation is against my culture or religion
I don’t know enough about it
I want my body to be whole when it is buried or cremated
I don't want to think about my death
I don't want to suffer after death
I worry my organs wouldn’t be used for transplantation
I worry donation will delay the burial or cremation time
I worry my family might be upset if I donated my organs
I don't want to donate to someone from a different religion
Hospital staff might not save me if I am on ODR
I don’t want to donate to someone who does not deserve it
I'm too old - my organs wouldn't be of any use
I have an illness that will stop doctors wanting my organs
I wouldn’t accept an organ transplant, so I wouldn’t donate
Don't know
Below are some things that people have said about why they would not donate their organs. Which of these apply to you when thinking about whether you would not consider donating your organs after death?
Base, March 2019: Indian respondents excluding those who definitely would donate organs (172)

51. Understanding of the need for organs amongst Indian people
Q25 Which of these statements do you think is true (need for organs) ? (%)
Which of these statements do you think is true?
Base, March 2019: Indian (212)

52. Understanding of importance of ethnic matching – Indian people
Q24 Which of these statements do you think is true (receiving organs) ? (%)
Which of these statements do you think is true?
Base, March 2019: Indian (212)

53. Insights into awareness of opt out legislation
NHS Blood and Transplant monitors attitudes to the coming law change using a quarterly tracker. This tracks awareness amongst different groups, including BAME people and the general population. The tracker is separate from the Agroni research referenced above.
Wave 3 of the quarterly tracking research (referenced in the following slide) was carried out online by Kantar/Research Express among a representative sample of 2,237 respondents in England, on April 2019.
The slide also refers to results from the quarterly tracking research carried out in October 2018 and January 2019 to show trajectory.

54. Awareness of opt out legislation
Q2 Awareness of legislative changes (% Yes)
The Government is making some important changes to the organ donor system in England.  Had you heard of these changes before today?
Base, Quarterly Tracker October 2018:BAME (174)
Base: Quarterly Tracker January 2019: BAME (153)
Base: Quarterly Tracker April 2019: BAME (198)

55. Will the BAME community take action after the law change?
Note that answers to this question are claimed. Respondents are reporting how they intend to respond to the law change.
Q6 Now that you know that these are the planned changes, what do you think you would do if they were introduced by the Government?
Base: All Respondents - April 2019 BAME (198)

56. For further information on this research, please contact marketing
For further information on this research, please contact