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Published byΛευίς Αποστολίδης Modified over 5 years ago
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ELF website & European Patient Ambassador Programme (EPAP)
Kjeld Hansen Member ELF Council, EPAP Patient Advisory Group
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ELF Website Currently available in 8 languages
Portuguese translation coming in autumn Further translations to come
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Website features Factsheets and patient information materials
Over 40 documents in 18 different languages and growing Produced with ERS experts and patients; regularly reviewed
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Website features European Patient Organisation Network
Search for patient organisations by country and/or condition Get more information
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Website features Airline index
Contains policies regarding oxygen for each different airline
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Get involved Link to our website
Share our resources and link to them on your website Connect with us on social media – help us build a strong network of patients @EuropeanLung facebook.com/europeanlungfoundation
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European patient ambassador programme (EPAP)
7 Modules on skills and knowledge for effective patient involvement – another on in progress Over 600 learners registered Available in English, Dutch and now Italian too!
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European patient ambassador programme (EPAP)
Engagement with ambassadors Website with wealth of information Resources page growing – to be revamped and updated in September/October News section with articles of interest and opportunities for patient involvement shared on website, Facebook and LinkedIn New Patient Advisory Group End of programme survey 6 monthly newsletter coming soon
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European patient ambassador programme (EPAP)
Partners in Europe and all over the world use EPAP Partners helping to develop new modules and help with translations
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