1. Contact: Shona Fleming Membership Director Membership Invitation and Information Membership Invitation and Information shona@globalskin.org +1 613 986 3687 (Direct) +1 613 422-1430 (Head Office)

2. IADPO Story International Dermatology Patient Organization Conference, held in Vancouver, British Columbia, Canada, June, 2015 25 countries represented and 60 skin patient organizations Delegates voted to create IADPO and nominated its Interim Planning Board Some of the 125 delegates who attended IDPOC 2015 ►

3. IADPO Vision … ✓ People living with skin diseases have a voice … that is truly heard by those who can help ✓ All skin patients access the support, care and treatment they need when they need it ✓ Patient leaders and dermatologists work together effectively ✓ The true impact of skin diseases is being communicated and understood

4. Why be part of IADPO? Solidarity — Speak up for ALL skin patients and their conditions Credibility — Benefit from IADPO’s international exposure Opportunity — Enable members to speak with authority at both the local and global level Partnership — Team up with IADPO to serve skin patients worldwide ▲ By joining, you help IADPO to bring the needs of the patients you serve to the global level to advocate for change to improve the lives of dermatology patients — both locally and globally. – Christine Janus CEO, IADPO By joining, you help IADPO to bring the needs of the patients you serve to the global level to advocate for change to improve the lives of dermatology patients — both locally and globally. – Christine Janus CEO, IADPO

5. Global Research on the Impact of Derm Diseases ( GRIDD) We are launching ground-breaking research, beginning summer 2016: No other study will has ever been done which started with and about all dermatology patients Results to be published/presented at major conferences and used by member organizations locally and IADPO for WHO advocacy Challenge the measurement approach used by the DALY 1, bringing the patient voice into the decision-making process in research and funding 1 WHO Metric: Disability-Adjusted Life Year (DALY) Our research will provide a better understanding of the true, very personal impact of skin conditions on the lives of both patients and their families, to educate and advocate for needed help. — Bill McCue, IADPO Board Treasurer PRP Alliance Founder (Plano, Texas) Our research will provide a better understanding of the true, very personal impact of skin conditions on the lives of both patients and their families, to educate and advocate for needed help. — Bill McCue, IADPO Board Treasurer PRP Alliance Founder (Plano, Texas)

6. How being involved in the IADPO GRIDD benefits you and your patients Credible information on living with dermatological diseases from many patients with different conditions will improve the lives of many A bigger voice means a bigger impact! Members’ input in the design phase gets their disease ‘in’ the research The research will be customizable, scientifically validated and perfect for members wanting data to help with their own fundraising and advocacy

7. IADPO’s Global Advocacy goals Improve quality of life for skin patients around the world, relentlessly challenging the status quo Increase skin patient access to treatment and care Expand awareness of the burden of living with skin disease Influence funding for research, knowledge about impact of skin disease and training of dermatology specialists

8. IADPO views on Member Support Networking and mentoring — peer-to-peer learning opportunities and coalition-building among IADPO member organizations Online Training— newsletter, webinars, templates and toolkit Conferences — international conferences planned by and for leaders of member organizations: Geneva, 2017 Milan, 2019 During my short time with IADPO, I have already gained knowledge and networks through partici- pation in peer leader meetings around the world, and by teleconference. — Ogo Maduewesi, IADPO Board, VITSAF Founder (Lagos, Nigeria), World Vitiligo Alliance Co-Founder During my short time with IADPO, I have already gained knowledge and networks through partici- pation in peer leader meetings around the world, and by teleconference. — Ogo Maduewesi, IADPO Board, VITSAF Founder (Lagos, Nigeria), World Vitiligo Alliance Co-Founder

9. IADPO — Financial Impact None — no membership fee for Founding Members Scholarships — Founding Members have first priority for future conference grants No competition for funding — due to IADPO’s global scope, our funding has come from discretionary global budgets of international pharma companies

10. Together We Can… “Globally, dermatology patients suffer from about 3,000 skin disorders. Together, we can help the voices of our skin patient populations be heard.” — Susan Thornton IADPO Board, CEO of Cutaneous Lymphoma Foundation (Philadelphia, Pennsylvania)

11. Join IADPO IADPO welcomes member organiza- tions pursuing dermatology patient support around the world. “We are pleased to have lead the startup of the International Alliance of Dermatology Patient Organizations. Join us with other skin patient associations from around the world to make progress real — to create…one voice for one skin.” http://globalskin.org/membership       — Jean-Marie Meurant IADPO Board President, President of l’Association Francaise du Vitiligo (Paris, France)