2. European Association for Palliative Care

3. Authors: Heidi Blumhuber, CEO, Milano, Italy Amelia Giordano, Executive Officer, Milano, Italy Avril Jackson, Information Officer, Brighton, UK Esther Schmidlin, EAPC Board member, Vevey, Switzerland Sheila Payne, President, Lancaster University, UK The European Association for Palliative Care Prof Sheila Payne EAPC President 2011 - 2015, Director of the International Observatory on End of Life Care

4. European Association for Palliative Care Associations Collective Members of the EAPC as at July 2012 Iceland: IAPC Ice UK: APMGB&I APCSW PCRS IOELC IANPC Ireland: IAPC Ire AIIHPC Belgium: FPCF FWSP FBSP Luxemburg ALMP France: SFAP Portugal: PAPC Spain: SECPAL SCBCP Germany: DGP BK Switzerland: Palliative Ch Italy: SICP FCP Cyprus: PACYCAF Greece: HSPSC HSPSCCNCP Hungary: HHPA Austria: OGP DVHÖ Israel: IAPC Isr IPMS Croatia: CrSPM CAHF Norway: NFPM NPA Sweden: SFPM NRPV Finland: SPLY SPHY Associations: 51 Countries: 31 Latvia: PALL Lithuania: LPMA Poland: PAPC PTMP Ukraine: LHPCDU Czech Rep. AHPCP CSPM Armenia PC&PCA Romania: ANIP SRPT Netherlands: Palliactief Denmark: DSPaM Albania: FHC Slovakia: AHAPS

5. European Association for Palliative Care EAPC Board of Directors 2011 - 2015

6. European Association for Palliative Care EAPC Head office staff and collaborators Heidi Blumhuber CEO Amelia Giordano Executive Officer Avril Jackson Information Officer Farina Hodiamont Congress coordinator Silvana Gori Assistant Officer

7. European Association for Palliative Care Mission Statement The EAPC brings together many voices to forge a vision of excellence in palliative care that meets the needs of patients and their families. It strives to develop and promote palliative care in Europe through information, education and research using multi-professional collaboration, while engaging with stakeholders at all levels. The European Association for Palliative Care

8. European Association for Palliative Care EAPC Communication Web site – www.eapcnet.euwww.eapcnet.eu Palliative Medicine European Journal of Palliative Care EAPC Blog www.eapcnet.wordpress.com www.eapcnet.wordpress.com Facebook http://www.facebook.com/EAPC.Onlus http://www.facebook.com/EAPC.Onlus Twitter

9. European Association for Palliative Care EAPC research journal Editor: Catherine Walshe 5 good reasons to publish in Pall Med: Papers published online ahead of print Rapid online submission with paper tracking High visibility on Highwire: share toll free citation linking with leading related journals including J of Clin.Oncology, J of Medical Ethics 1400 practitioners and academics receive TOC alerts International team of Editors review your paper Visit pmj.sagepub.com

10. European Association for Palliative Care European Journal of Palliative Care (EJPC) EAPC official journal A valuable source of authoritative articles for all palliative care professionals in Europe and the rest of the world Published six times a year in print and online Special discounts for EAPC and collective members Editor: Dr Julia Riley Deputy Editors: Dr Carol Davis Prof. Phil Larkin www.ejpc.eu.com

11. European Association for Palliative Care EAPC Social Media Team Bringing you current news, opinion and debate on palliative care in Europe and beyond… To contribute, please contact: avriljacksoneapc@gmail.comavriljacksoneapc@gmail.com

12. European Association for Palliative Care EAPC Projects and Taskforces 6 streams of work: advocacy actions for policy at european level service delivery and organisational development education and training for health professionals ethical issues improving clinical care to patients research: quantitative and qualitative studies, guidelines 1 special section on specific target groups:

13. European Association for Palliative Care EAPC Projects on policy 1.The Budapest commitments 2.The Lisbon Challenge: Palliative care as a human right 3.ESMO / EAPC Opioid Policy Initiative (collaboration project) 4.A platform for EU funded projects 5.Palliative Care in Central and Eastern Europe and Commonwealth of Independent States 6.Taskforce on Professional Integration of Oncology and Specialist Palliative Care 7.Task Force on Palliative Care in Africa: Fostering collaboration and partnership

14. European Association for Palliative Care Policy – Eu funded projects platform Offer a platform for EU funded projects On the EAPC web, and the congresses

15. European Association for Palliative Care EAPC Projects on organisation Update on the development of palliative care in Europe The aim of the taskforce is to provide up-to-date, reliable and comprehensive analyses of the development of palliative care within each European country, in order to generate and disseminate an ‘evidence base’ of current provision across the region. By 2012 two surveys have been carried out with the “Eurobarometer” and “Fact Questionnaire”, in 53 European Countries which got an exceptional ratio of answer (89% and 83%, respectively). Data is being analysed in autumn 2012.

16. European Association for Palliative Care EAPC Publications on education Recommendations on Education in Palliative Care for Nurses Recommendations on Education and training in Palliative Care for Physicians Guidance on Postgraduate Education for Psychologists involved in Palliative Care

17. European Association for Palliative Care EAPC Projects on clincial issues and care Taskforce on patient-reported outcome measurement in palliative care White paper on dementia Taskforce on spiritual care in palliative care

18. European Association for Palliative Care EAPC publications on palliative care for specific patient groups Palliative care for older people Palliative care for infants, children, and young people The roles and needs of family carers

19. European Association for Palliative Care EAPC Projects on older people Quality of Life in Old Age until the End Dialogue between Geriatrics and Palliative Medicine At this occasion, the EAPC and the European Union Geriatric Medicine Society (EUGMS) unveiled a joint manifesto promoting a European action plan on palliative care and geriatrics.European Union Geriatric Medicine Society (EUGMS) The objective is to improve the quality of life of elderly patients with chronic diseases and cut back on health care costs by up to 60 per cent. Its ultimate scope is to insert geriatric palliative care in the EU agenda, hoping it becomes a human right one day. The manifesto can be downloaded from the EAPC web There is urgency to develop palliative care services for elderly patients, experts say. For this reason, the Vice-President of the European Parliament Gianni Pittella, in collaboration with the Maruzza Lefebvre Foundation, promoted a first ever dialogue between palliative medicine and geriatrics at an EU level. The event took place at the European Parliament in Brussels on September 25th.Maruzza Lefebvre Foundation The event is embedded into the framework of the European Year for Active Ageing and Intergenerational Solidarity.

20. European Association for Palliative Care EAPC Projects Palliative care for infants, children, and young people Mapping of paediatric palliative care services in Europe. The aim of this project is to build a map of services of PPC present in Europe by collecting data relative to the organization of each service and its role in training and research (if any). The objectives are: To gather information on paediatric palliative care (PPC) provision in Europe. To identify possible critical aspects in the number and organisation of PPC services in relation to the estimated needs. To propose the data obtained as a guide to optimise the use of available resources. To diffuse the information at all levels (administrators, health providers, professionals, and the general public).

21. European Association for Palliative Care The EAPC Research Network In 2007 Stein Kaasa, of the University of Trondheim, took over the chair and coordination of the Research Network and created the European Palliative Care Research Centre based in Trondheim. He invites all healthcare professionals who see the potential in conducting European multicentre research, to take part in developing a platform for this type of research within the EAPC Res Net. The EAPC Research Network can offer: 1.An established structure for collaborative research 2.A potential for further development of this collaboration 3.A research centre as an external infrastructure for taking care of data handling, organization of studies 4.A meeting point for discussions and exchange of knowledge 5.The biannual EAPC Research Congress 6.A Junior Forum for PhD students and other less experienced researchers

22. European Association for Palliative Care European Palliative Research Centre Trondheim EAPC EAPC Research Network 143 Research centres 21 Countries

23. European Association for Palliative Care EAPC Congresses

24. European Association for Palliative Care

25. EAPC Early Researcher Award The EAPC would like to honor outstanding young (novice) scientists and clinicians for their contributions to palliative care. The award aims to highlight their personal career development and their potential for the future. Three award winners will be selected – The winner of the first place be asked to give a plenary lecture at the 13th EAPC World Congress. Online nomination link and application information can be found at the congress website at www.eapc-2013.org.www.eapc-2013.org Application deadline is November 30, 2012. You can read more about the Award and the winners of the previous years at: www.eapcnet.eu/Corporate/Eventswww.eapcnet.eu/Corporate/Events

26. European Association for Palliative Care

27. Thank you for your attention For further information please visit: www.eapcnet.eu