A.I.C. introducing Napoli 16 settembre 2010 Prof. Cleto Corposanto AIC - Italy

2 Our first thirty years 1 Thirty years in numbers 2 Rules 3 5 per mille contribution from tax income declaration 4

1979 What is this disease about? What can be eaten? Where to find products? Which are the needs?

2010

The right eating out Demedicalication of coeliac disease Get back to family life The ready to eat gluten-free meal Gluten-free holiday Gluten-free Sociality Early diagnosis TODAY needs

Free foodstuff allocation (from 1982) Safeguard rare / chronic disease Having granted the right to gluten-free meal in public structures More than products in RNA (Registro Nazionale Alimenti: Food National Register) More than products in the Food and Drinks Directory, so called Prontuario More than venues to eat and sleep out More effective labels, the trademark 19 local AIC societies TODAY On what does the coeliac person can count on?

AIC FEDERATION General Assembly 19 local Association Chair Board of Directors Chief Operating Officer Food Trademark Fund Raising Events management Public Financing Projects External Relations International Relations Companies relations Education Medical Scientific Education Local Activites Development No Food Celiachia Notizie House Organ Editing Scientific editing National Scientific Committee Ethic and Disciplinary Committee External Auditors Board Staff Treasurer Management control Aoecs representative Food Manager Alimentazione Fuori Casa/ Eating out Project Restaurants, Pizzeria and Ice-cream parlours Catering for those whose travel Public Catering Bed & Breakfast Special Projects Foodstuff Product certification and Food and Drinks Directory Food Technology Research Food Education

AIC BOARD OF DIRECTORS SBS CHAIR SBS Board of Directors CHIEF OPERATING OFFICER DIET PROJECTS: Food and Drinks Directory Trademark Alimentazione Fuori Casa Eat Out project General SecretariatAdministration OTHER PROJECTS: Celiachia Notizie four-monthly review Publishing activities Convention organization AIC – FUNCTIONAL RESPONSABILITY FOOD MANAGER SBS – Spiga Barrata Service limited company

AIC GENERAL ASSEMBLY Board of Directors VICE- CHAIR TREASURER AND SECRETARY C.S.R. RESEARCH SCIENTIFIC COMMITTEE

10 Our first thirty years Thirty years in numbers The Rules 3 5 per mille contribution from tax income declaration 4 1 2

Data updating Members : on Dec. 31° 2009, with an increase of 6% increase to year 2008

Data updating Coeliac population in Italy: more than 100 thousand people - as per advanced information from the Relazione annuale al Parlamento sulla Celiachia – anno 2009 (annual Coeliac Parliament Relation – 2009 edition), to be shortly presented by Health Ministry-

Food and Drink Directory year Quantity of products * Food and Drinks Directory, the Prontuario * Plus 20% compared to 2009, with a 15% increase in terms of companies

Trade Mark Updating Food and Drinks Directory year Quantity of products

Registro Nazionale degli Alimenti* (Italian Foodstuff National Register) Updating 2001: 281 products 2010: more than 2500 products and 143 companies *Introduced by Veronesis Decree in 2001

WHERE TO GET GLUTEN-FREE FOODSTUFF GLUTEN-FREE PRODUCTS Retail purchasing Consortiums DRUGSTORES SPECIALIZED SHOPS

AICs Projects AFC Eating Out Project 2010: more than 2000 venues

- Precise guidelines for: Provisioning Storage Production Food supply - Educational and refresher courses - monitoring system with recurrent visits ALIMENTAZIONE FUORI CASA THE EATING OUT PROJECT

GENRE TOTAL NUMBER AUTOGRILL HIGHWAY SHOPS 22 B&B 110 BAR 36 SAILING BOATS 2 FINI GRILL HIGHWAY SHOPS 24 ICE-CREAM PARLOUS 324 MY CHEF RESTAURANTS CHAIN 22 RESTAURANTS / HOTELS SUMMER CAMP 1 VENDING 10 TOTAL AFCs Venues 2010

Il sito

Visitors number Each visitor is counted per session (in a month period)

Geografic origin (January 2009)

In fuga dal glutine/Running away from glutens Project

Inform and increase COMMUNITY awareness on: - what Coeliac disease is - the problems referring to this disease - the therapy = the requirement to follow a strict diet - peculiarities of the diet itself OBJECTIVES Inform and Educate SENSITIVE people on: - coeliac disease - gluten-free nourishment To encourage - amongst STUDENTS a strong relationship foundation - within the SCHOOLS the safeguard of different needs, striving in order to reduce and avoid any discomfort arising from this diversity In fuga dal glutine/Running away from gluten Project

Eurispes*: AIC is amongst the 100 Italian excellences On October 2° 2008, the third Rapporto di Eccellenza (Excellence Report) was presented: 100 successful episodes in Italy *Political, economical and social studies Institute

26 Our first thirty years Thirty years in numbers The Rules 5 per mille contribution from tax income declaration

CURRENT STATUS ON REGULATIONS 1982:Ministerial Decree dated July 1°, 1982 Introduction of Free Foodstuff Allocation 1992: Decree 111, dated January 27°, 1992 Particular Nourishment 2001:Decree 279, dated May 18°, 2001 Rare Diseases 2001: Decree, dated July 5°, 2001, so called Veronesi Free Allocation and Products Register 2003: Community Directive n. 89, indication of allergens in labelling 2005: Law 123, dated July 4°, 2005 Coeliac populations prophylaxis regulation 2008: Prime Minister Decree 23/04/08 LEA Minimum level of service in Health provision – Rare and Chronic Diseases listing

28 Law nr. 123/05 and the right for GF meal Summary: Coeliac disease, social disease, art 1 Confirmation of free foodstuff allocation, art 4 Objectives: early diagnosis and prevention: medical professional trainings and refresher courses, centers and network structures confirmation, diagnosis protocols, prevention of complication and monitoring of linked diseases, test definition, art 3 Gluten free meal in schools and hospitals restaurants as well as in public offices, art 4 Coeliac disease information at professional training and refresher courses for restaurateurs and hotelkeepers, art 5 Parliament report on new scientific outcome referring to early diagnosis and complication monitoring, art 6 Legge bianca,which is a law with no provision in case of clauses lack of implementation, and its application: Medical professional training Professional training for catering operators (report on art. 5) Complication Interpretation (art.4s emendment)

29 Law nr. 123/05, art 4 Art (…..) 2. (…..) 3. Gluten free shall be given out, upon anticipated request by the interested people, in school and hospital premises, as well as in public offices refectories. 4. The burden outcoming from the implementation of paragraph 3 is evaluated in euros per year as of Non official article translation

30 Law nr.123/05, art 5 Art (…) 2. Regions and self-governing districts of Trento and Bolzano to provide ad hoc coeliac disease information pamphlets at professional trainings and refresher courses for restaurateurs and hotelkeepers. 3. The burden outcoming from the implementation of paragraph 2 is evaluated in euros per year as of Non official article translation

31 I nostri primi trentanni Trentanni in cifre Le norme The first communication campaign

Coeliac disease AIC

AIC SPOT COMPETING AT GRANDPRIX DELLA PUBBLICITA 2010 EDITION

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