Whose Health is it Anyway? Co-designing self-management strategies Patients in Control Proposal Julie Van Ruyckevelt, Senior Associate – Participation & Insight

Proposal outline There is increasing focus on supporting patients to be more in control of their own health care, however… Feedback from patients (and their carers) is that they generally want to be in control but…  they don’t know what they don’t know  they don’t know where to go to find out  they’re not asked! This programme will:  use a co-design approach to build on current insights and feedback on what patients and carers perceive as useful support/intervention to help them manage their own conditions more effectively  explore in more detail what’s needed from the patient and carer perspective  create mechanisms for co-design of future services, so these are built around the needs of the patient  Actively involve patient and carer champions in staff development and training, to influence culture and behaviour change in future health and care commissioning and provision

Key Elements of the Programme Patients, carers, commissioners and providers collectively involved in and responding to the self-care needs of patients and carers, as perceived by the end users Co-design approach - patients and carers main contributors in: Creating a resource pack covering  review of existing patient and carer feedback on key areas to address to support self management  materials to support further insight-gathering  guidance on establishing a co-design approach to developing patient-centric self-care models  development materials to support patients/carers in active engagement in co-design  materials to support patients in becoming self-care/management champions/advisors Facilitating and supporting CCGs to:  capture further local, insights  recruit patients/carers to the agreed co-design approach  build a pool of patient champions that can be actively involved in on-going commissioning engagement Working with regional/local voluntary and community services and networks to:  actively engage them as key providers of a range of activities that support self-management  make best use of their existing health and care networks to engage with diverse and disadvantaged communities

Getting involved What do you know, what have you heard that could be included? Julie Van Ruyckevelt KMCS What else would you like to know? How would you like to get involved?