7.35PHTS Business DCC Update/QID. Naftel Database CommitteeR. Gajarski (W. Mahle) Foundation UpdateA. Dipchand Financial RoadmapW. Mahle 8:15 Hard to Forget: The Challenge of Desensitization in Heart Transplant Candidates Jon Kobashigawa, MD 8:45PHTS Scientific Committee ReportW. Mahle 8:50Total Artificial Heart in ChildrenTimothy Baldwin, PhD 9:20Maintenance SteroidsS. Auerbach 9:25PVRM. Richmond (W. Mahle) 9:30AdjournW. Mahle

Members –Melanie Everitt (Utah), Jeff Gossett (Chicago), Heather Bastardi (Boston), Gail Stendhal (Wisconsin), Margaret Tresler (UAB) Tasks and goals: –facilitate completion/submission of data forms –facilitate submission of updated/renewed DUA/IRBs –mapping old diagnoses with current ones on updated forms –reconcile form queries –revise/clarify MOO

Completed tasks –mapping project –DUA/IRBs (??) Ongoing –data form completion and submission –query reconciliation –manual revisions

Based on input from committee members and coordinators at large –revisions/clarifications nearly complete clarification form revisions may be necessary –forward additional questions of areas requiring clarification for inclusion into final revisions –revised MOO should be available by mid-2013

Common coordinator questions Form 1 (Q 17a): Please add units to hemodynamic data

Common coordinator questions Form 1t (Q 6,7,8): HLA typing, p-HTx cross-match results/DSA

Common coordinator questions Form 5 (rejection), question 4: report new maintenance meds or change in old ones. No need to report doses. Form 5, Q4: confusion regarding ACR vs. AMR scores

Common coordinator questions Form 10 (Q2): COD – do not use support withdrawal

Suggestions to improve reports –report comparative PHTS data with time frame during which specific center has submitted data –risk stratification –current improvement plan