Cystic Fibrosis Optimism as a coping strategy to maintain quality of life By Jannie, Miriam, Stephanie and Valdas

Contents Why Cystic fibrosis? Mind map Problem area Problem question What is quality of life? Methodology What’s coming up?

Why Cystic Fibrosis (CF) ? Life – threatening disease which occurs in different countries Interdisciplinary approach ▫Physiotherapist : respiratory management and exercise ▫Dietitian : nutritional status (pancreas insufficienty  maldigestion and malabsorption) ▫Nurse : medical care, advocacy, clinical management, support, advice, education, research and management

Interesting topic to put focus on Have not been discussed that much in each of our countries

Mindmap

Problem area No efficient cure available → early death Different daily treatments Impact on quality of life

Problem question How can we, as health professionals, learn from the patient story to qualify our treatment in an interdisciplinary approach, with a positive impact on the patients’ quality of life?

What is quality of life? Quality of life is a multidimensional concept that refers to an individual’s overall life satisfaction and total well-being. 4 dimensions : ▫Behavioral competence ▫Perceived quality of life ▫Environment ▫Psychological well – being

Methodology Patient story Democratic approach (action – competence) The Health Belief Model The Dimensions of Health

What’s coming up? Analysis and discussion Conclusion

Thank you for your attention