Northwest Tribal Comprehensive Cancer Program and Resource Development September 7, 2007 Beadwork is courtesy Greg Vann, Cherokee

NPAIHB Organizational Chart

Northwest Tribal Comprehensive Cancer Program Goals 1.Facilitate a process for Northwest tribes to promote cancer risk reduction strategies. 2.Provide information on the most current early detection, screening and treatment practices through education and resource materials. 3.Provide education regarding quality of life for cancer patients, their families and caretakers. 4.Coordinate and collaborate with local and national cancer organizations and individuals. 5.Improve Indian-specific cancer control data.

NTCCP Mission To envision and work toward cancer- free tribal communities by taking an integrated and coordinated approach to cancer control

Year Tribal Cancer Control Plan Revised Competitive Reapplication and Funding Application for Supplemental Funding to Develop Tribal Community Colorectal Cancer Education and Outreach curriculum  Approved but not funded Northwest Tribal Cancer Coalition Established First Northwest Tribal Clincians’ Cancer Update Supplemental Program Application Submitted and Funded Northwest Tribal Comprehensive Cancer Plan Developed Initial Grant Application Submitted and Funded Tribal Cancer Contacts Established Tribal BRFSS Initiated with NPAIHB, OHSU, and CDC Support Northwest Tribal Cancer Coalition Expanded 20 Year Plan revision initiated “Risky Business” Collaborative Program Training BRFSS implemented with six Northwest Tribes Third Clinicians’ Cancer Update Cancer 101 Training Curriculum Development Competitive Reapplication Submitted Final Tribal BRFSS Report Published Program Refunded Initial Northwest Tribal Cancer Resource Guide Published Cancer 101 Curriculum Finalized Clinicians’ Cancer Update reintroduced by NPAIHB, OHSU, and IHS CDC Site Visit to October Tribal Cancer Coalition meeting Tribal Cancer Plans and Resolutions Introduction of Minigrant to stimulate Tribal Cancer Control Continued Program Development Resource Guide Revision Resource Guide Publication Native CIRCLE Expanded Tribal Cancer Coalition

Resource Guide Design Considerations Area specific art (Nez Perce Baskets and Bags) Common footer, except introduction and section header pages Feather Page numbers Publication name and year Organization logos on outside corner when available Doublesided Sections begin on odd numbered pages (face forward when printed) Evaluation form Order form Information update form Funding Recognition Reduce loss of knowledge during staff turnover

Table of Contents (page 5) Section 1: Northwest Portland Area Indian Health Board Section 2: Northwest Tribal Cancer Contacts Section 3: Resources for Cancer Patients and Caregivers Section 4: Breast and Cervical Cancer Early Detection Programs Section 5: Tribal Cancer Control Planning Forms and Examples Section 6: Cancer Control Partnership Programs Section 7: Cancer Treatment Centers Section 8: Appendices

Section 1 (page 7) Northwest Portland Area Indian Health Board Intended Purposes: Describe NPAIHB - serves all 43 Federally Recognized Tribes in Idaho, Oregon, and Washington Lists all NPAIHB Member Tribes Illustrates geographic diversity with map of states and Tribes

Section 2 (page 11) Northwest Tribal Cancer Contacts Intended Purposes: List Tribal Cancer Contacts at all NPAIHB Member Tribes  Contacts are:  Community Health Representatives  Women’s Health Providers  Medical Directors  Tribal Health Directors  All are vitally involved in addressing Cancer in their community Multiple listings when requested Full Contact information including Tribe, Name, Position, , Phone, Fax, Address, and Last Update Organizations interested in outreach have valid contact info Tribes have contacts to organize intertribal events

Section 3 (page 21) Resources for Cancer Patients and Caregivers Intended Purposes: List Resources related to Cancer available to individuals  Pages include:  General Information  Resources Available  How to Obtain Resources  Contact Information Information requested from official representative Sent for their review before publication Includes table of listed organizations Empowers individuals to access resources Improves access to organizations for events (ex. Health Fair)

Table of Section 3 Cancer Resources: Indicates which types of individual resources are available oIncludes:  Financial  Housing  Transportation  Flight  Prescription  Homecare  Insurance Co-pay Assistance  Durable Medical Equipment  Prosthetics & Wigs  Support Group / Counseling  Education / Information  Page Number for Listing  Icons

Section 4 (page 41) Breast and Cervical Cancer Early Detection Programs Intended Purposes: List Centers for Disease Control and Prevention Funded Programs  Pages include:  General Information  Resources Available (Eligibility Guidelines)  How to Obtain Resources  Contact Information (Program Manager) Information requested from official representative Sent for their review before publication Includes table and contacts of prime contractors Indicates contractor responsible for serving tribes Contractor is necessary to access state funding for clinic services

Section 5 (page 53) Tribal Cancer Control Planning Forms and Examples Intended Purposes: Provide information about Planning  Strategic  Activity Sample plans included Blank Forms for use in developing plans

Section 6 (page 61) Cancer Control Partnership Programs for conducting Activities with Northwest Tribes Intended Purposes: List Resources related to Cancer available to programs  Pages include:  General Information  Resources Available  How to Obtain Resources  Contact Information Information requested from official representative Sent for their review before publication Includes table of listed organizations Empowers program development to address burden of cancer Improves access to organizations for technical assistance

Table of Section 6 Cancer Resources: Indicates which types of technical assistance are available  Includes:  Grant  Presentations  Trainings  Speakers Bureau  Cancer Research  Conference/Workshop Organizer  Available Meeting Space  Data Provider  Program Evaluation  Materials Development  Grant Writing Assistance  Page Number for Listing  Icons

Section 6 (page 85) Table of American College of Surgeons Certified Cancer Centers: Organized by state, city Information accessed from website Contact includes: Name Address Phone Fax Website List options of treatment locations

Section 7 (page 93) Appendices Appendix A: Directory of Regional Branches of National Organizations Table of American Cancer Society Branches Addresses of American Cancer Society Branches Table of Susan G. Komen for the Cure Affiliates Addresses of Susan G. Komen Breast Cancer Foundation Affiliates Table of American Lung Association Regional Offices Addresses of American Lung Association Regional Offices Addresses for Sites of Northwest Tribal Cancer Navigator Program Table of Hospice Organizations Serving Washington Tribes Addresses of Hospice Organizations Serving Washington Tribes Appendix B: ACS Article: Making Resources Available in Indian Communities Appendix C: Screening Guidelines Appendix D: Evaluation Form Appendix E: Order Form Appendix F: Update Form

Intended Purposes: Where to go for local assistance – know the resources in your community Retain contact information during changes in staff Lists tribes in affiliate/branch/office service area All tribes, even those without affiliate coverage Where to access Hospice services – potential partner in Palliative Care Clarify ACS model of community operation and Resources Included article from Deb Schiro, Vice-President, Survivorship and Quality of Life Great West Division, American Cancer Society Quick easy to access location for forms (evaluation, order, and update)

Project Director: Kerri Lopez Project Staff: Eric Vinson Northwest Tribal Data Registry: Doug White Epidemiologist: Thomas Becker, MD, PhD Tel: Fax: Webpage: Funded by CDC Grant Number 1 U58 DP