CPEN…The Authoritative Resource for Patient Educators 1 Conference Call for All CPEN Members July 29, :00-2:00 CT Phone number: Participant Access Code: FSOLOMON

CPEN…The Authoritative Resource for Patient Educators 2 Agenda Call to Order & CPEN Year in Progress – Kelli Fee-Schroeder, CPEN Chair CPEN Elections – Tanya Smith, CPEN Past-Chair CPEN Business and Financial Update – Allison Travis, CPEN Program Director 2008 Annual AACE/CPEN Conference Update – Miriam Bell, 2008 Conference Planning Chair NCI Cancer Education Branch Update – Rose Mary Padberg, NCI liaison CPEN-Canada Update – Gale Turnbull, CPEN Canada Chapter Chair Committee Updates: Survivorship (Scott Secord & Lee Boerner) Translation (Susan Scritchfield) Research (Karen Stepan) Professional Development (Nita Pyle) Awards (Lorianne Classen & Jane Frank) CAM (Holly Hough) Learning Resource Centers (Amy Gonzales) Marketing/New Member (Donna Branson) Questions from CPEN Members

CPEN…The Authoritative Resource for Patient Educators 3 CPEN Board of Directors Kelli Fee-Schroeder Chair Tanya Smith Past Chair Annette Mercurio Chair-elect Donna Branson Treasurer Janine Kokal Secretary Lisa Horton Deb Steele Lydia Cheney Kerry Harwood Rose Mary Padberg NCI liaison Allison Travis Business Manager

CPEN…The Authoritative Resource for Patient Educators 4 Board of Director Activities Monthly Conference Calls Discuss ongoing projects, collaborations with other organizations, new initiatives, official business operations Updates from Committee Chairs and CPEN Canada Chapter 2 Face-to-Face Board Meetings Annual Meeting CPEN Board Retreat May 22-23, 2008, Mayo Clinic Cancer Center, Rochester, MN Work Groups for Specific Projects & Initiatives Supporting CPEN’s Strategic Plan: Communication b/w Board and Membership Formalized merger of CPEN & CPEN-Canada Chapter Annual Conference Planning and Conference Grant Website re-design Financial growth of CPEN/Revenue Workgroup

CPEN…The Authoritative Resource for Patient Educators 5 CPEN’s Strategic Plan Strategic Plan available at: Board Work Committee Work Work by CPEN Members

CPEN…The Authoritative Resource for Patient Educators 6 Communication b/w Board and Membership Monthly updates via listserv CPEN Newsletter CPEN: Cancer Patient Education Network CPEN: Cancer Patient Education Network CPEN Website

CPEN…The Authoritative Resource for Patient Educators 7 CPEN Board of Directors - Chair- Treasurer - Chair Elect- Secretary - Past Chair- 4 At-Large Members - NCI representative Board of Directors elected by entire membership CPEN Chapter (International, Regional, State, Local, etc.) -Officers elected by Chapter members -Chapter President liaisons with CPEN Board of Directors Learning Resource Center Committee Chair Liaison with Board of Directors Research Committee C hair Liaison with Board of Directors Professional Development Committee Chair Liaison with Board of Directors Other Committees Chair Liaison with Board of Directors SIG Chair Liaison with Board of Directors CommitteesSIGTask Forces Work Group Task Force Work Group Task Force Work Group Task Force Work Group Task Force Work Group Task Force AACE Joint conference Reduced JCO subscription to CPEN members CPEN (Members from US, Canada, and Internationally)

CPEN…The Authoritative Resource for Patient Educators Annual AACE/CPEN Conference Miriam Bell, 2008 Conference Planning Chair October 20-22, 2008 Clearwater Beach, Florida CPEN Planning team: Lydia Cheney Kelli Fee-Schroeder Audrey Friedman Marilee Kuhrik Nancy Kuhrik Alissa Lewandowski Annette Mercurio Rose Mary Padberg Louise Villejo AACE Leadership: Paula Brown – Executive Secretary Frank Ferris – Conference Co-chair Patricia Mullan – Conference Co-chair Visit the Conference web site:

CPEN…The Authoritative Resource for Patient Educators 9 Special Activities of the Board CPEN website management/redesign Financial growth of CPEN Goal: $10,000 Achieved: $13,000+ -Financial Contributors -Donation button on website -CPEN Merchandise at Annual Conference Conference $1000 Grant opportunity

CPEN…The Authoritative Resource for Patient Educators CPEN Elections Tanya Smith, CPEN Board Past-Chair 2008 Offices to fill: Chair-Elect (3-year term) Treasurer (2-year term) 2 At-Large Members (2-year term) The new officers will take effect at the Annual Business Meeting in October. Call for Nominations Bylaws revision to be voted on by membership 10

CPEN…The Authoritative Resource for Patient Educators 11 CPEN Business & Financial Update Allison Travis, Program Director CPEN Membership – 258 members (as of 30 June 08) CPEN Financials (as of 30 June 08) – Assets - $38,422 USD – Liabilities - $4,145 USD 2008 – 2009 Membership Dues – $85 USD – one year – $160 USD – reduced rate for two years – Payment options Pay online or via fax with credit card Pay via mail with check – Dues renewals distributed via Payment due by July 30th

CPEN…The Authoritative Resource for Patient Educators 12 CPEN Business & Financial Update Allison Travis, Program Director Journal of Cancer Education – Subscription available to CPEN members for $65/year through AACE – Subscription options Subscribe on dues invoice Subscribe via website Membership Renewal/Journal Subscription Information

CPEN…The Authoritative Resource for Patient Educators 13 CPEN Business & Financial Update Allison Travis, Program Director Corporate Support – Corporate Support invitations sent to 27 Cancer Centers in June 2008 – Corporate Support contributions received to date: $11,000 USD The Ohio State University Comprehensive Cancer Center – James Cancer Hospital and Solove Research Institute - $5,000 Mayo Clinic Cancer Center - $5,000 Moncrief Cancer Center, UT Southwestern - $1,000 Special Donations CPEN is a 501(c)(3) tax-exempt organization; gifts are tax deductible to the fullest extent allowed by law. CPEN uses contributions to sustain its daily operations and develop professional educational programs in cancer patient education.

Chemotherapy Fact Sheets Helps patients understand and manage side effects 4 th – 6 th grade reading level Available in English and Spanish Complements the in-depth CAY Helpful for all new radiation therapy patients

New versions! Pain Control: Support for People with Cancer DVD in back pocket of English version reinforces key text Leading pain experts advised on content A new Spanish version of Control del dolor, a complete revision based on the English version Culturally adapted for Spanish speaking audiences

Shortened, easy-to-read version from original Easily adaptable for non- cancer populations Advisors: Association of Clinicians for the Underserved Coming soon! Spanish version of Caring for the Caregiver: Support for Cancer Caregivers

On the horizon… Eating Hints being revised to follow similar format to RT and You, and Chemo and You (by side effect) Understanding Cancer Pain: a shorter, easy-to- read version of Pain Control Revised online course: “Incorporating Clinical Trials into Your Practice” Facing Forward: Ways You Can Make a Difference in Cancer to be revised

CPEN…The Authoritative Resource for Patient Educators CPEN-Canada Chapter Gale Turnbull, Chair January 1, 2008 CPEN-Canada became the first Chapter of CPEN! Along with many members, CPEN-Canada added a new Survivorship sub-committee to CPEN.

CPEN…The Authoritative Resource for Patient Educators Established a more formal collaboration with the Canadian Cancer Society. CPEN-Canada received a donation from them to support our work.

CPEN…The Authoritative Resource for Patient Educators Goals for Refresh CPEN-Canada Website Create stronger alignment and involvement in key national strategies and organizations (e.g., Canadian Partnership Against Cancer and Canadian Association of Psychosocial Oncology) to further the patient education agenda.

CPEN…The Authoritative Resource for Patient Educators CPEN-Canada Conference Connecting, Collaborating and Communicating: Education at the Heart of Cancer Care June 4-6, 2009 Edmonton, Alberta

CPEN…The Authoritative Resource for Patient Educators

23 Committee & Work Group Updates Survivorship (Scott Secord & Lee Boerner) Translation (Susan Scritchfield) Research (Karen Stepan) Professional Development (Nita Pyle) Awards (Lorianne Classen & Jane Frank) CAM (Holly Hough) Learning Resource Centers (Amy Gonzales) Marketing/New Member (Donna Branson) For information about committees:

CPEN…The Authoritative Resource for Patient Educators 24 Questions? For questions about a specific committee’s work and/or joining a committee, please contact that committee’s Chair, who is listed on the committee’s page of the CPEN website: For questions about renewing your membership or logging into the CPEN website, contact Allison Travis, CPEN’s Program Director: Additional information about the 2008 CPEN Conference may be found on the CPEN website: Can always contact Kelli at:

CPEN…The Authoritative Resource for Patient Educators 25 CPEN is member-driven. Thank you for making this organization thrive!