Children with Diabetes Jeff Hitchcock March 2010 CWD Teens at Friends for Life.

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Presentation transcript:

Children with Diabetes Jeff Hitchcock March 2010 CWD Teens at Friends for Life

CWD History … or 15 years in 30 seconds Children With Diabetes (CWD) began in July 1995 First “Dear Dr. Hitchcock” Nov 1995 Chat rooms 1996 First poll October 1998 (what glucose meter?) First conference in June 2000 Quilt for Life 2002; DC June 2006, again August 2008 CWD Teen visit to Italy in 2004 Presentations in Dubai in 2007 Friends for Life 2007 hosted 2,500 people Toronto 2007, first international conference Now hosting over 25,000 visitors per day from over 155 countries monthly April 2008 – CWD joins the Johnson & Johnson Family of Companies First Friends for Life UK conference in August 2009

CWD

Who Uses CWD? No registration, so all data is from polls asking users to describe themselves From Online Poll: –Parent of child with type 1: 69% –Adult with type 1: 9% –Teenager with type 1: 8% –Parents with type 1 & child with type 1: 3% Traffic from over 160 countries Clear focus on type 1 diabetes

What’s Inside CWD? Over 33,000 pages People –Stories, polls, surveys, chat rooms, forums Clinical information –Diabetes basics, products, care suggestions, school & 504 plans News –“What’s New,” research updates, links to stories lists –Parents, geographical most used

CWD: Kids’ Stories

CWD Forums Giving users a voice –> 6,780 users –> 49,000 threads –> 559,000 posts Interesting discussions about daily care and social support issues Posts have an impact

Recent Poll – Nighttime Monitoring

Recent Poll – Nighttime Monitoring (non-CGM)

Conferences—the Heart of CWD Four to six conferences each year –“Friends for Life” annual international conference in Orlando in July –“Friends for Life” conferences in UK & Canada –Two regional conferences, spring and fall –January conference in Florida World class faculty Latest research and management strategies Most companies involved with type 1 diabetes Extensive social activities and support Scholarships through the Diabetes Scholars Foundation (

CWD’s first “conference” – Orlando 2000 All the kids who had diabetes … about 65

Kids at Orlando

Orlando 2001—The First Real Conference

Pasadena 2002—First West Coast Event

Orlando 2003—Will Cross Motivates

LA 2004—Douglas Cairns

Orlando 2005—Back to Orlando For Good

Orlando 2006—Chris Dudley

Orlando 2007—Louis

Orlando 2008—Faculty Posters, 1000 First Timers

Orlando 2009—PJ the Dog and More Grandparents

Friends for Life UK

From around the world

Families

Scenes from Friends for Life

Quilt for Life Collection of 3’ quilt squares, 709 as of September 2009 Shown at CWD’s Friends for Life conferences and in Washington, DC

Marco Island—CWD’s Slice of Paradise

Upcoming CWD Conferences 2010 –Friends for Life Annual International Conference 2010 at the Marriott World Center Resort in Orlando, Florida (June 30 - July 4, 2010) –Friends for Life Canada 2010 at the Renaissance Vancouver Hotel Harbourside in Vancouver, BC, Canada (August 27-29, 2010) –CWD Focus on Technology at the Renaissance Charlotte Suites Hotel, Charlotte, North Carolina (September 3-5, 2010) –Friends for Life UK 2010 at the Beaumont House, Old Windsor, Berkshire (October 29-31, 2010) 2011 –CWD Family Support Weekend at the Marriott Marco Island Resort, Marco Island, Florida (Dec. 30, January 1, 2011) –CWD Focus on Technology at the Marriott Cincinnati North, West Chester, OH (March 25-27, 2011) –Friends for Life Annual International Conference 2011 at Disney's Coronado Springs Resort in Lake Buena Vista, Florida (July 6-10, 2011) –Friends for Life Canada 2011 at the Marriott Toronto Downtown Eaton Centre, Toronto, Canada, July 29-31, 2011 –CWD Focus on Technology at the Renaissance Seattle Hotel, Seattle, Washington (November 18-20, 2011)