Caregiving and planning for end-of-life care Informal caregiving Planning for end of life and advanced age 1

Informal caregiving is common across countries Relationship with care receiverProportion providing care for at least 10 hours a week (2014) of older Canadians provided care at least once a week to a person living with an age-related problem (CMWF average 20%). 19% Family member Someone else (not family member) Both 2

Informal caregivers in Canada don’t always get the support they need Proportion of caregivers who needed help to provide care in the past year but did not receive it 23% Services were not available in the area Did not know where to go Cost was too expensive Waiting times were too long Reasons for not receiving the help needed to provide care 3

experienced distress, anger or depression while providing care or assistance for a family member or friend. 34% Distress is common among Canadian caregivers Proportion of caregivers who experienced distress, anger or depression, by hours of care provision Source Canadian Institute for Health Information. Supporting Informal Caregivers—The Heart of Home Care. Ottawa, ON: CIHI; Some factors most commonly associated with caregiver distress: Caring for someone with aggressive behaviours Caring for someone with cognition problems (e.g., dementia) Caring for someone for many hours a week 4

End-of-life care planning is common in Canada Had discussions with someone Had a written plan about their end-of-life wishes Had a written document naming a substitute decision-maker Proportion of older Canadians who In 2014, older Canadians were more likely than older people in other countries to have planned for their end-of-life wishes. 5

End-of-life care plans are more common with advanced age How does Canada compare (2014)?Proportions by age of older Canadians had a written plan about their end-of-life wishes. 39% 6

How do the provinces compare? B.C.Alta.Sask.Man.Ont.Que.N.B.N.S.P.E.I.N.L.Can.CMWF Avg. Had a discussion with someone 61%62%57%60%64%57%55%56%55%47%61%44% Named a substitute decision-maker 46%53%44%50%60%52%47%43%42%32%53%31% Had a written document about end-of-life wishes 36%43%29%35%44%40%24%29%26%18%39%22% End-of-life care planning in most provinces exceeded the international average. Compared with the CMWF average Above averageSame as averageBelow average 7

About half of Canadians are planning for future care needs Proportion who considered supportive living, residential care or home care in future planning Proportion who said they will likely require supportive living or long-term care in their lifetime Compared with the Canadian average Above averageSame as averageBelow average No significant variation by province 53% 8

Proportion of Canadian long-term care residents who had Advanced directives are common in long-term care Source Continuing Care Reporting System, 2011, Canadian Institute for Health Information. 9