Riverina Regional 2015 National Respite 17April 2015

Agenda 1.Welcome/Update on Previous Actions1:30 2.Respite Policy Update 1:45 3.NDIS 1:55 4.CHSP 2:25 5.Mental Health and Carer Support2:40 6.National Respite action3:00 7.Close 3:30

1.1 National respite Communities of strong relationships that support the lives people choose Support interconnected wellbeing between people with disability, frailty from age, mental illness and their chosen carers, families, and informal supports

Last Meeting Actions 1.Trial Site Update 2.NDIS group and 1:1 community participation update 3.National Respite Carer Support Advocacy 4.National Respite CHSP Submissions 5.SPRC Transitioning Respite Project

Carer Care recipient Respite Care Carer support ? NDISCHSP – sub- program 2 Integrated Carer Support Programme (DSS) 2 Respite and carer support in 3 systems Mental Health

3.Respite NDIS Significant changes for carers and respite services: 1.NDIA 5 strategic outcomes for carers and families: Families/carers: 1.have the support they need to care 2.know their rights and advocate effectively for the person they are caring for 3.are able to gain access to desired services, programs and activities in their communities 4.have succession plans 5.enjoy health and well-being 2.Respite language to be restored: – currently not listed but respite outcomes are – Recognise ‘the service type that cannot be named.’ 3.Flexible bundling of supports? Further consultation this year on respite in NDIS

3.1 NDIS Tier 2 NDIA paper – five streams 1.Information, linkages and referrals 2.Capacity building for mainstream services 3.Community awareness and capacity building 4.Individual capacity building 5.Local area co-ordination Available to all people with disability, including those also receiving Tier 3 HOWEVER: “a significant proportion is likely to receive most, if not all, the supports they need through mainstream systems”

3.2 Our ILC Submission 1.Outcomes for people with disability and carers to measure success of streams 2.Outcomes guide purchase and contestability 3.Three ILC streams: 1.Information, linkages and referral – for everyone in the community 2.Community Awareness and Capacity Building - for mainstream services and community 3.Individual Capacity Building - for people with disability and carers 4.ILC target sub populations including carers, linked to clear ILC outcomes 5.Map current service system of Tier 2 6.Preventative disability specific supports in Individual Capacity Building stream 7.Flexible blended supports – formal, informal and volunteer – in Individual Capacity Building stream 8.Advance purchase for volunteer program coordination, training and support 9.Parallel track to carer support through ILC and Integrated Carer Support

3.3 Emergency Co-ordination Emergency Respite NDIA submission:  Clarifying role of Agency in Co-ordinating Emergency Support  Clarifying NDIS process  Data collection We propose:  NDIA to advance purchase emergency co-ordination and support through established providers for participants  Factsheets and websites updated to communicate NDIA emergency supports process  Recommendations on respite adopted by the NDIA  Sustainability of participant relationships measured

3.4 NDIS Transport Submission Transport a big issue for providers in trial sites We recommend: 1.Consolidation of NDIA transport guidelines 2.Strengthening of transport guidelines to resolve tension between – funding reasonable and necessary transport support and – displacing natural supports or state supports. 3.Data collection to inform policy going into full roll-out

3.5 NDIS – Quality and Safeguarding 1.Developmental: – Advocacy – building natural safeguards – consumer led initiatives, including through social media 2.Preventative: – Formal individual safeguards eg risk assessments in plan – service level safeguards eg policy and procedures, feedback mechanisms – system level quality measures eg registering with NDIA 3.Corrective: – Universal measures eg ombudsman – Complaints handling – Serious incident reporting BUT Limited discussion of self management and micro businesses

3.6 NDIS – Quality and Safeguarding NDS paper proposes: co-regulatory model comprised of an industry regulator and an independent consumer complaints body We propose a framework that: 1.Acknowledges that people with disability can be supported in strong relationships and meaningful community involvement through: - a quality and safeguarding framework that measures success of supports through met outcomes that have been set and assessed by the individual - supporting natural safeguards such as family and friends 2.Empowers people with disabilities through a regulatory and legal quality and safeguarding system that meaningfully puts people first. 3. Caters to a changing disability supports market with attention to the unique needs of those self managing employment of staff and funds and micro businesses Feedback to DSS until 30 April 2015

3.7 NDIS: Preparing Families for a Plan Three resources: 1.National Respite project ‘Services Preparing Families’ 2.Parallel Carers NSW project: resources to prepare carers 3.Carers Australia/Mental Health Australia Capacity Building Project

4.1 Key features CHSP revised features  Entry level – total services below HCP-1  4 sub-programs including Care Relationships  National fees  Wellness and reablement  Grandfathering:  Under<65  Higher needs  Carers of people <65  Vulnerable clients able to access linkage services CHSP contracts 1.Small extension to 31 October, then new contract Nov 2015 – Jun NRCP incorporated, & <65 grandfathered Sector Support & Dev 1.Non-output services 1Q16 extension 2.Review of CSIA and non- output services 3.Competitive tender

4.2 CHSP  Meals & 0ther Food Services  Transport  Domestic Assist  Personal Care  Home Mainten.  Home Mods  Social Support- Individual  Social Support- Group  Nursing  Allied Health & Therapy services  Goods, Equipment and Assistive Technology Flexible Respite:  In-home day  In-home o/night  Community access – individual  Host family day  Host family o/n  Mobile  Other planned Centre-based respite:  Centre based day  Residential day  Comm access - group Cottage respite

4.3 Issues General issues 1.Grandfathering arrangements 1.Future of NRCP funded clients <65 2.Future of disability specific providers with majority NRCP funding 2.Organisation support to do additional co-ordination for grandfathered clients 3.Protection of special needs groups – access obligations 4.Dementia – enacting the obligation 5.Sector support needed – business skills Respite & carer issues 1.Eligibility of carers in CHSP – inclusion in planning and assessment processes 2.Non- respite carer support taken out of CHSP 3.Twin-track of carer support 4.How will/should wellness & reablement apply to carers?

Carer Support Recently…  CRCC contracts will be extended to 2017  Government developing integrated carer support model  Beginning consultation on possible carer portal and contact centre  But larger process for integrated carer support  Co-design with carers and service providers  Minister Fifield – carer supports outside NDIS & single carer assessment  Minister Morrison – importance of carers  But issue of different state funding ‘base level of community support’  Concerns  Twin pathway for carers  particular client groups – young carers, rural & remote, CALD, Indigenous  loss of expertise, referral pathways

Mental Health Systemic issues  Recovery vs. permanent disability  Underfunding of respite  Different emergency respite needs  Importance of non-respite carer support in supporting people with mental illness Recent developments  NHMC report with government  MHR-CS – NDIS different agreements  Minister Fifield announced 12 month extension for:  Commonwealth supported community mental health orgs  Personal Helpers and Mentors Program  Mental Health Respite: Carer Support Program  Young Carers Respite and Information Service (YCRISP)  NDIS funding Mental Health Australia to support capacity building for people with psychosocial disability and their carers

National Respite action Organisation future Priorities: – Transition readiness – Service innovation – Carer support and CRCCs IDF Small & Micros in the bush CHSP - Flexible Respite NDIS – choice and innovation CRCCs – Integrated Carer support Transitioning Respite