AD Genetics Study Recruitment Patricia D. Lynch, MA, MS, MAPS National Institute on Aging.

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Presentation transcript:

AD Genetics Study Recruitment Patricia D. Lynch, MA, MS, MAPS National Institute on Aging

AD Genetics Study n Nationwide study, recruiting 1,000 families with at least 2 siblings with late-onset AD n Partnership with Alzheimer’s Association

Recruitment Challenges n Anticipate having to do broad outreach to get sufficient number of eligible families n Conducted focus groups to discuss barriers & incentives n Developed materials to support national recruitment effort

Recruitment Tool Kit n Basic recruitment manual n Brochure & family talking points flyer n PowerPoint presentation not a lecture on genetics, a recruitment presentation n Templates for materials to customize for local use: flyer, letters, news release, ads, PSAs, etc. n Background materials n CD with electronic versions of materials

Collaboration with Alzheimer’s Association Chapters n Partnership with Association -joint news release -talks to Association leadership & members -support for focus groups n Tool kits will also be distributed to chapters n AD awareness month activities n Other opportunities to partner