Anne Kissack, MPH, RD; David Nelson, PhD, MS; Shannon Opel, MPH; Ody Granados, BA, Syed Ahmed, MD, MPH, Dr.PH; Zeno Franco, PhD, MPH Translational Research.

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Presentation transcript:

Anne Kissack, MPH, RD; David Nelson, PhD, MS; Shannon Opel, MPH; Ody Granados, BA, Syed Ahmed, MD, MPH, Dr.PH; Zeno Franco, PhD, MPH Translational Research (a.k.a. translational science) is a way of conducting scientific research to make the results of research applicable to the population being studied. It is used to translate research findings more quickly into medical practice for the purposes of diagnosing, preventing and treating medical conditions. Community Engagement in Research (CEnR): CEnR is a process of inclusive participation that supports mutual respect of values, strategies, and actions for authentic partnership of people affiliated with or self-identified by geographic proximity, special interest, or similar situations to address issues affecting the well-being of the community or focus.

Engaging the Community via the Internet in the Context of Translational Research Anne Kissack, MPH, RD; David Nelson, PhD, MS; Shannon Opel, MPH; Ody Granados, BA, Syed Ahmed, MD, MPH, Dr.PH; Zeno Franco, PhD, MPH Purpose: Purpose: Describe the landscape of internet resources related to community engagement within the realm of translational science. Importance: Importance: Information Technology (IT) is rapidly changing and research, health interventions, and population health data is abundant and easy to access on the internet. Relevance: Relevance: Translational Science requires two-way communication between scientists and citizens. The internet is one way in which these two “communities” can engage in dialogue and share knowledge. Innovation: Innovation: The Clinical and Translational Science Institute (CTSI) of Southeastern Wisconsin ultimately seeks to gain focus group input on how our existing web resource can be constructed into a meaningful resource for Community Engagement in Research (CEnR). Multiple Focus Groups with Internet End User Citizens Assessment of Current Community Engagement for Translational Science Web Resources Citizen Advisory Council and Subcommittee Workgroup Perspective and Input Portability of Information (i.e. iPhones, tablets, etc.) Need for bi- directional communication 3-Step Approach Transparency of research, health information, health interventions, and population based health data on the internet This grant is funded in part by the Clinical and Translational Science Institute of Southeast Wisconsin, a recipient of a National Clinical and Translational Science Award UL1RR and by Advancing a Healthier Wisconsin Research and Education Initiative Fund, a component of the Advancing a Healthier Wisconsin endowment at the Medical College of Wisconsin. Discussion

CONTACT INFORMATION Anne Kissack RD, MPH Program Manager Community Engagement Key Function Clinical and Translational Science Institute of Southeastern Wisconsin Medical College of Wisconsin

CTSI SEW Community Engagement Key Function Citizen Advisory Council Subcommittee Assessment of Existing Community Engagement in Research Websites Community Engagement in Research Websites(n=8)