National Physician & Family Referral (NPFR) Project Overview NPFR Project Pilot Project Approach Methodology Professional Surveyors Traditional Media.

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Presentation transcript:

National Physician & Family Referral (NPFR) Project Overview NPFR Project Pilot Project Approach Methodology Professional Surveyors Traditional Media Millennium Media Pilot Progress Pilot Statistics Pilot Summary (Chart) 2003 Millennium Media NPFR Database Phase 2 Project Coverage: USA Summary

50 Hoops Corporate 50 Hoops is a 501 ( c ) (3) organization with (2) components: 1.The National 50 Hoops Basketball Tournament and Health Fair 2.The National Physician and Family Referral (NPFR) Project The 50 Hoops Health Fairs also include NPFR recruitment. NPFR is a national physician, community and media outreach for African American prostate cancer patient & family recruitment. 50 Hoops' function includes administration and recruitment for NPFR. The National Human Genome Center at Howard University will work with 50 Hoops to identify and assist in development of new approaches to recruitment in communities across the country and abroad. Please see web site:

50 Hoops Tournaments & Health Fairs 1.Prostate Awareness Basketball Tournaments for men 50 and over 2.Prostate Education (and Quality of Life) Health Fairs 3.On-Site Free Prostate Cancer Screenings with local collaborative follow-up 4.Prostate & Breast Cancer Awareness conferences and workshops for lay and professionals 5.Coordination of on-site support and recruitment for Prostate Cancer research and human genome studies 6.Slam Dunk Prize Box: The KEY to winning prizes is to attend and participate The 50 Hoops Tournament & Health Fair includes the following components:

50 Hoops Events Overview 50 Hoops is reaching a greater percentage of the underserved men than any other prostate cancer education program through our National Tournament and Health Fair. Education + Participation = Saved Lives Our purpose is to raise awareness about prostate cancer. Research, health education and early diagnosis is our focus. We serve as a national educational (fun) source for prostate cancer and health awareness. 50 Hoops is also a consumer information vehicle for participating pharmaceuticals, product sponsors, health and fitness professionals. Our goal is to educate, and recruit African American Families and to screen men 40 and over who may not otherwise have resources to get screenings and follow-up services.

National Physician & Family Referral (NPFR) Project Project Mission: Instill public awareness of prostate cancer research and recruitment of families who meet the criteria for national and international human genome research studies. Serve as community and media advocates and liaison for a national and international physician, community and media recruitment of African American families (and those of West African descent) who meet the criteria for human genome research studies. Project Goal: To identify prostate cancer survivors and family members that will act as "contacts" for the families in this human genome recruitment effort. To identify families who have family members (father, brother, uncle, cousin grandfather) who may have been diagnosed with prostate cancer and who meet the criteria for national human genome studies focusing on African Americans. The NPFR Project is a new 50 Hoops acquisition FIND THE CAUSE of Prostate Cancer through Genetic Research

Initially, to identify (up to 50) African American families (beginning in Northern California; expanding to Southern California and West Coast) who meet research criteria for African American Hereditary Prostate Cancer (AAHPC) Study of 4+ affected by the disease. To identify networks within the medical community for locating African American man/families with history of prostate cancer within the Western Region. This project supports, expands and enhances the AAHPC Study objectives to find 100 families who meet the criteria. Pilot Project Mission Began 2001

Pilot Project Approach Developed Methodic Approach/Plan (repeatable & measurable) Created Forms, Checklists & Procedures Employed Professional Telephone Surveyors Conducted Staff Training Utilized Traditional Media Utilized Millennium Media Focus on Quality not Quantity Continuous Process Improvement

Methodology Detailed Project Plan Defined Process Forms, Checklists & Procedures Associate Training Database Verification Process Improvement

Professional Telephone Surveyors: Process  Obtain Resource Contact Information from clinics, physician networks, hospitals and medical institutions, professional associations, universities, community health centers, Greek organizations, churches, support groups  Contact Resources #1 –Number or Percent of African American Prostate Cancer Patients #2 – Distribute Promo Flyer.. Listed as Supporter..Patients Contact NPFR Directly via or web site:  Contact Family Member/Patient Directly  Populate Database

Media packets were sent to publications, radio and TV stations on the west coast and nationally Traditional Media

Distributed to physicians, support groups, churches and community organizations

Millennium Media Links and networks were set up with prostate cancer and Black websites; online newsletters, physician sites, interactive medical and health related sites, newsgroups, online radio and conference sites contacted

Pilot Phase Progress

Pilot Phase Statistics 73% of Doctors surveyed have African American Prostate Cancer Patients 50% of Family Members surveyed are Patients themselves 30% of Patients/Families surveyed had other diseases in family –Breast Cancer –Hypertension –Heart Disease –Asthma –Obesity –Alcoholism –Multiple of above

Pilot Summary AAHPC Requirements (input) African American Hereditary Prostate Cancer (AAHPC) Study Criteria, P&E Mission, Methodology & Approach (guidelines) Physician & Family Contact Information, Demographics and Physician association (output) Professional, Trained Staff (enablers) National Human Genome Projects

Millennium Media NEW!! Millennium Media NEW!! An Established Web Presence

Millennium Media

WEBSITE Reports Database Our database houses vital access information to physicians that treat a high % of prostate cancer patients and families with a prostate cancer gene.

Phase 2 Phase 1 (Pilot) Phase 3 Phase 4

The NPFR project enhances the total 50 Hoops Millennium concept: to educate communities, screen underserved men and recruit families who meet the criteria for significant African American Hereditary Human Genome Research. Find the Cause Through Genetic Research Summary