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Presentation transcript:

1 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Linda Burhansstipanov, MSPH, DrPH (Cherokee Nation of OK) Lisa Castro, Grants Manager Lisa Harjo, MA (Choctaw Nation) Rose Lee (Navajo Nation) Terri Rattler (Oglala Lakota) Native American Cancer Research 3022 South Nova Road Pine, CO Phone: ; Fax: Native Cancer Survivor’s Support Network: Web Page: Native American Palliative Care and End-of-Life Curriculum

2 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” End-of-Life Nursing Education Consortium (ELNEC) This objective is #5 out of 5 that evolved from cultural modifications of ELNEC Module #4. Special acknowledgements to the authors and team leaders from the ELNEC Consortium: Special thank you to key members of the Consortium: Geraldine Bednash, PhD, FAANBetty Ferrell, PhD, FAAN Executive Director, AACNResearch Scientist, City of HopePrincipal Investigator Anne Rhome, MPH, RNMarcia Grant, DNSc, FAAN Deputy Executive Director, AACNResearch Scientist, City of HopeCo-Investigator Barbara Penn, PhD, RN, CRose Virani, RN, MHA Project Director, AACNProject Director, City of Hope

3 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Modified by Linda Burhansstipanov, DrPH (Cherokee) Jody Pelusi, FNP, PhD, AOCN Caren Trujillo, Consultant, BSW (Yaqui) Linda U. Krebs, RN, PhD, AOCN NACR staff: Lisa Castro, Lisa Harjo (Choctaw), Rose Lee (Navajo), and Terri Rattler (Oglala Lakota) Thank you, Linda Burhansstipanov, MSPH, DrPH Executive Director, NACR NACR EOL Objectives 1-5 An excerpt of the cultural modification of ELNEC Module #4

4 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Supported by The Denver Affiliate of the Susan G. Komen Breast Cancer Foundation through the community grants to NACR.

5 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” supported by Mayo Clinic’s, “Spirit of E.A.G.L.E.S.” U01 CA86098 (2002) 200 First Street S.W. Rochester, MN Toll-free: Fax: Web Page:

6 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Lisa Harjo [Choctaw], Lisa Castro [Latina], Judy Hariton [England], Terri Rattler [Oglala Lakota], Linda B [Cherokee], Rose Lee [Navajo]

7 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” The Medicine Wheel / Circle of Life This curriculum uses the concept of the Medicine Wheel and/or the Circle of Life to help explain how chronic or end-of-life care needs to focus on the whole person.

8 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” The Medicine Wheel / Circle of Life The medicine wheel or Circle of Life are not used by all tribes. Interpretation of the Medicine Wheel or Circle of Life varies among tribes.

9 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” The medicine wheel Modified from Phil Lane Jr., The Sacred Tree, Four Worlds Development Press, Lethbridge, Alberta, Canada, 1984 p. 29 Physical Spiritual Social Mental- Emotional

10 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” The medicine wheel is a sacred symbol used by Northern Plains and others. It is related to balance in all life and all living things. Its universal knowledge is looked to for healing, wisdom, and direction.

11 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Some, but not all, tribal Nations use a medicine wheel. The use of the wheel evolved for their own perspectives.

12 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Examples of uses: elements (water, fire, air, earth) seasons (fall, winter, spring, summer) ages of life cycle (birth, childhood, adult, elder) sacred colors (red, white, yellow, black) aspects of human being (spiritual, physical, mental, emotional)

13 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” West East South North Four Directions

14 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Physical Spiritual Emotional Mental Aspects of a human being

15 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Air Earth Fire Water Elements of life

16 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Wheat / grains Meat Fruits Vegetables Basic Foods

17 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Youth Beginnings Elders Adults Stages of Life

18 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Yellow Red White Black Sacred Colors

19 Native American Cancer Research ( ) EOL “Intro slides” Part of NACR’s Cultural Modification to ELNEC Module #4 “Ethical/Legal Issues in End-of-Life Care” Yellow Red White Black Tribal Specific -- Sacred Colors