Establishing an HIV Services Internet Portal to Enhance Access and Retention in Care John Sapero Program Coordinator, Phoenix EMA Ryan White Planning Council November 29, 2012

Purpose To provide you with an understanding of the experience I have had leading the development of a statewide online HIV resource Process I’ll provide an overview of the Phoenix EMA, the rationale used to define the site, the development process, and some takeaway thoughts Payoff You’ll be better prepared when you begin to start your own initiative

Preface I am not an expert, but I have knowledge and experience you may find helpful I have biases, opinions and preferences, and will share these openly and honestly. You may disagree – that’s OK, and it doesn’t make either of us wrong Please feel free to ask questions as they come to you, or wait until the end

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Prevalent HIV & AIDSCases% By Gender Male Female By Race/Ethnicity White Non-Hispanic Black Non-Hispanic Hispanic A/PI/H Non-Hispanic AI/AN Non-Hispanic MR/O Non-Hispanic By Mode of Transmission MSM IDU MSM / IDU Heterosexual Other/Hemophilia/Blood Product/Transfusion No Reported Risk/Unknown Risk TOTAL %

time Once upon a

July 2011

 =

MEPPIO CPIO PIT OK CIT OK the department of redundancy department OK P P P

meanwhile…

we all wanted the same info

90% had internet access

National HIV/AIDS Strategy reduce incidence | increase access| reduce disparities

what was my vision?

not a gateway destination a

Up-to-date local testing/provider locator Crowd-sourced providers (“Yelpish”) Info sharing – providers and clients Streamlined – simple, clean, elegant Quickly connect to people, not info Video walk-throughs – appts, testing, etc. Bilingual

Not a community-wide referral source Not a forum to bash providers No personals No politics Not meant to the “library of Alexandria”

Goal/ActivityCost Content Development: Consumer & Provider Input$1,300 Content Development: Research/Compilation of Content$5,000 First Year Project Support: ARF Staff$4,300 Establish Advisory Board & Conduct Meetings$650 Development of Policies and Procedures$100 Website Development$22,500 Training and Development$1,250 Marketing and Promotion$10,500 Translation Services$3,000 Total Project Budget$47,350

developing your vision ToP Strategic Planning ©The Institute of Cultural Affairs

what do you want to see in 3-5 years?

what is blocking you from your vision? No “lack of” statements!

what innovative, substantial actions will move you forward?

what will be your specific, measurable accomplishments for the first year?

takeaways

#1 focus!

#2 adhere to your vision

#3 white space is your friend

#4 brevity

#5 do only what you need

#6 develop a unique voice

#7 avoid the usual suspects

#8 define every process

#9 welcome failure

#10 celebrate your success

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Questions?

John Sapero