West Texas Cancer Survivors Network – Phase 2 CPRIT Grant #PP Program Director: Katherine Chauncey, PhD, RDN Program Co-Director: Barbara Pence, PhD Associate Director: Janet Basom, RDN, LD

CPRIT – Cancer Prevention and Research Institute of Texas Established in 2007 by the overwhelming approval of Texas voters Goals are:  To expedite innovation and commercialization in the area of cancer research  To enhance access to evidence-based prevention programs and services

Cancer Survivors More than 14 million in the United States  Testament to early detection and treatment The Downside,  Increased risk for second primary cancers  Increased risk of comorbidities e.g. cardiovascular disease, diabetes, osteoporosis  Increased risk functional decline Cancer survivors in rural West Texas often lack access to healthcare services and support groups that can improve their health outcome

WTCSN – Phase 2 “Connecting Cancer Survivors for Better Health” WTCSN- Phase 1 ended August 2012 CPRIT moratorium delayed renewal 12/01/2013 Funded for 3 years; ends December 2016 Phase – 2 is an initiative to expand and enroll West Texas cancer survivors in a network –  To provide cancer survivor information,  To enhance quality of life  To encourage healthy habits  To reduce cancer recurrence and prolong survival

We are looking for cancer survivors!

WTCSN Accomplishments Enrolled 485 enrollees from predominantly rural areas in two years Established infrastructure to support recruitment to the network  Expanded Cancer Nutrition Network for Texas (CNNT) website to accommodate WTCSN Educational resources & online enrollment form Website tracking established for evaluation purposes Qualified for HONCode certification Expanded Nsights newsletter to enrollees and partners  Activated toll free and fax numbers to facilitate enrollment, questions, and resources  Developed Cancer Nutrition Toolkit for network enrollees English and Spanish language versions Resources from NCI, ACS, AICR, CNNT Passport, DVD, CD

WTCSN-Phase II Renewal Grant Goals Maintain current WTCSN and expand it to the entire TTUHSC Service Area (aka West Texas) Design and implement a Cancer Survivorship Care Plan (SCP) to be used by the survivor and their primary care physician (PCP) to monitor his/her post-treatment care Develop, pilot test, and implement tailored health communication messages to improve lifestyle behaviors among cancer survivors

West Texas (TTUHSC Service Area)

TTUHSC Health Service Area 108 counties; 50% of Texas land mass Home to over 2.8 million people or 11.2% of the population of Texas 98 counties are rural and 49 of those are considered frontier counties with fewer than 10 people per square mile Served by eight metropolitan centers: Abilene, Amarillo, El Paso, Lubbock, Odessa/Midland, San Angelo, and Wichita Falls Contributes 81% of the oil (on-shore); 92% of the wind energy; 86% of the cotton; over 88% of the wheat, sunflower seeds, peanuts; 66% of the cattle; and over 60% of the wine-producing grapes, sheep, and corn to the rest of the state Failure to distribute cancer nutrition information and develop survivorship services to this area creates a major obstacle in Texas’ effort to diminish cancer mortality

WTCSN-Phase 2 Specific Aims Re-establish the Network by reaching counterparts of existing WTCSN partners and developing new partnerships Establish a system of “active referral” with providers, community cancer centers, & partners Demonstrate knowledge and utilization of SCPs in post-treatment care by Network enrollees Establish baseline knowledge & behaviors of Network enrollees in terms of nutrition, diet, physical activity, QoL, and health status Demonstrate positive changes in knowledge & behaviors of Network enrollees in terms of nutrition, diet, physical activity, QoL, and health status

WTCSN-Phase II Survivorship Care Plans Significant addition to our educational mission Key Element in the 2012 Texas Cancer Plan Recommended by both the American Cancer Society, the Institute of Medicine, and other advocacy organizations Inform the survivor and make them aware of their post-treatment care Individualized to the survivor’s type of cancer and stage of survivorship

WTCSN-Phase II Tailored Health Messages Focused on nutrition/diet, physical activity, and quality of life (QoL) Tailored to 4 parameters:  Stage of cancer survivorship  Type of cancer  Whether overweight or obese  Level of physical activity Significant in that it has never been attempted in a general population of diverse cancer survivors Can impact cancer recurrence and survival

Outreach Tools Website

Outreach Tools Network Enrollment

Outreach Tools Agreement to be Contacted for Research

Outreach Tools Patient Newsletter A Fresh Look at Exercise 2 Age and Cancer Risk 3 It’s Never Too Late Teachable Moments 3 Preventable Cancers Nat’l Nutrition Month 4

Outreach Tools Professional Newsletter A Fresh Look at Exercise 2 Age and Cancer Risk 3 It’s Never Too Late Teachable Moments 3 Preventable Cancers Nat’l Nutrition Month 4

Cancer Nutrition Toolkit

WTCSN-Phase II New & Expanded Partnerships American Cancer Society (Regional Affiliates) Association of Community Cancer Centers (ACCC) F. Marie Hall Institute for Rural and Community Health West Texas Area Health Education Centers (AHECs) Texas AgriLife & Cancer Specialists Texas Rural Health Association (TRHA) UMC Southwest Cancer Treatment & Research Center TTUHSC Depts. of Family Medicine & Pathology

WTCSN- Phase 2 Mutually Beneficial Partnerships What we need from partners –  Recruitment - Assistance in finding and recruiting cancer survivors to the Network  Health Messages - Development and dissemination of health messages: Nutrition/Diet; Physical Activity; Quality of Life  Survivorship Care Plan - Promotion of the SCP to the cancer survivor to monitor post-treatment care How can we assist you?

Contact Information Kathy Chauncey, PhD, RDN  Barbara Pence, PhD  Janet Basom, RDN, LD  Telephone:  Website:  