Coeliac patients What can we do? Tunde Koltai Association of European Coeliac Societies

New phenomene: Gluten sensitivity Gluten related diseases Wheat allergy Non-coeliac gluten sensitivity Coeliac disease ClassicNon-classicSymptomaticSubclinicalPotencialRefracter Gluten ataxia Dermatitis herpetiformis

The gluten-free market is growing Values in millions US Dollars Source Datamonitor

New products launched every day in Europe Number of new GF products launched in 2009

International Coeliac Day Officially supported by WHO Agreement with other continents’ coeliac associations

International Coeliac Day Goals: Create/increas awareness The disease usually remain undiagnosed and frequently misdiagnosed Coeliacs have no other therapy only the strict glutenfree diet Support for diagnosed coeliacs and families There is a help: AOECS/national coeliac societies give information about ‘glutenfree lifestyle’

International Coeliac Day Target groups: General public Potential coeliacs Diagnosed Coeliacs Families and friends of coeliacs and potential coeliacs Medical persons Politicians Others: shop owners, hypermarket chaines, food producers, restaurants, caterers, etc....

Better life for coeliacs Helsinki September

What is the Crossed Grain Symbol? Created in 1969 by a member of Coeliac UK Today it is the internationally recognised symbol for gluten-free food needed by people with coeliac disease Registered by coeliac societies at national and European levels

The Crossed Grain Symbol The consumers’ friend An easily recognisable symbol whatever your language Consumers trust the symbol as a guarantee of safety The best guide for consumers with coeliac disease in a growing market with ever more choice Harmonised and equal quality in Europe Guidelines for the local/small producers

The European Licensing System (ELS) - European Charta - License contracts - AOECS Standard

II. part

Foods for Coeliacs have to be Safe Controlled of Good quality and tasty of High nutrition value Cheap Available Produced complying valid rules and laws Easy to recognise

Legal background CODEX STAN 118 – 1979 CODEX STANDARD FOR FOODS FOR SPECIAL DIETARY USE FOR PERSONS INTOLERANT TO GLUTEN Was accepted in July 2008 by the Codex Alimentarius Commission

Revised Codex Standard for ‘dietetic’ products Glutenfree food: Gluten content < 20 mg/kg ‘Very low gluten’ or ‘suitable for coeliacs’: Gluten content between 20 and 100 mg/kg

Foodstuffs suitable for gluten intolerant people

The Crossed Grain Symbol

HACCP guidance

Foods not to be licensed UNPROCESSED CEREAL GRAINS Rice Maize MEAT, FISH AND EGGS All sorts of fresh or frozen meat and fish not processed Tinned or canned fish with water/vegetable oil and salt, without additives or other substances Eggs MILK AND MILK-DERIVATES Fresh milk, UHT milk, sterilized milk without additives, vitamins or other substances Infant formula Yogurt without additives, vitamins or other substances Fresh milk cream and UHT milk cream Cheese

Foods not to be licensed VEGETABLES AND LEGUMES All sorts of plain, fresh, frozen, canned or dried vegetables and legumes NUTS AND SEEDS All sorts of nuts and seeds, with or without shells, not processed FRUITS All sorts of plain, fresh, frozen, canned or dried fruits DRINKS Fruit juices Soft drinks Mineral waters Tea, pure coffee Wine Distillates for spirits

Foods not to be licensed SWEETS Honey, sugar Marmalade and jam DRESSINGS AND OTHERS Butter, bacon fat, lard Vegetable Oil Vinegar Spices and aromatic herbs not processed

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