What Do We Do? Cancer Genetics Service for Wales.

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Presentation transcript:

What Do We Do? Cancer Genetics Service for Wales

An All Wales Service

THE SCOPE OF THE SERVICE Genetics Centre Locally-based nurse specialists & Clinics Key Clinics only Cancer Centre The All-Wales Cancer Genetics Service

There are geographical difficulties in delivering an All-Wales service

Referral Guidelines

Referral Guidelines GP Surgeon Oncologist Gynaecologist Other Genetic Specialist High Moderate Average Specialist surgical clinic Genetics Clinic screening mammography Back to Primary care N Wales SW Wales SE Wales Exam Evaluation Service Pathways

What do we offer? Information Risk assessment Genetic counselling Education Genetic testing Filtering to other services

Laboratory Laboratory staff Hunting for genes that cause cancer Testing family members to see if they carry the genetic mutation

Research Evaluating decision aids for familial breast cancer Developing a distraction-based coping intervention for women undergoing cancer genetic risk assessment Attitudes of men with breast cancer Information and support needs of those at high risk Comparison of brief versus extended genetic counselling protocols prior to predictive genetic testing for HNPCC The role of rurality in referrals to genetics services Geographical analysis of referrals to CGSW Psychological implications of ovarian cancer screening

What do patients want? Ongoing contact (not necessarily a clinic appointment) Newsletter Website Hence – the Patient Panel