The International Consortium for Personalised Medicine Speaker Venue, Date

ICPerMed – An International Consortium More than 35 European and international partners Representing ministries, funding agencies and the European Commission (EC) International consortium model Aim: To coordinate and foster research to develop and evaluate personalised medicine approaches Venue

ICPerMed Vision Statement: Establish Europe as a global leader in personalised medicine research. Support the personalised medicine science base through a coordinated approach to research. Support research to investigate the benefits of personalised medicine to citizens and healthcare systems. Pave the way for personalised medicine approaches for citizens Research as driver of personalised medicine Venue

Personalised Medicine – A definition PM [ ] “refers to a medical model using Characterisation of individuals’ phenotypes and genotypes (e.g. molecular profiling, medical imaging, lifestyle data) for tailoring the right therapeutic strategy for the right person at the right time, and/or to determine the predisposition to disease and/or to deliver timely and targeted prevention". According to: Horizon 2020 and European Council Conclusions on personalised medicine for patients (2015/C 421/03) Venue

ICPerMed Governance Venue

ICPerMed Challenge Groups: The whole healthcare chain and beyond Venue

Development of the ICPerMed Action Plan Actionable research and support activities Input to national and European strategic discussion of research funders Released in March 2017 Venue

ICPerMed Action Plan - Structure A) Research activities: Data Technologies, Methods and Processes People Cross-Cutting B) Support activities: Structures Methods and Processes This slide is optional, it is basically the table of contents of the action plan.

Action Item Groups Aim: Report on implementation of ICPerMed Action Plan Report on ongoing activities (state-of-the-art report) Collect and present best-practice examples 5 groups with similar number of action items per group: Data and ICT – Enabling Technology Data and ICT – Improving Health Care Translational Research Health Economics, Regulation, Market Access People and Society

Partnering Tool Platform for research organisations to find potential cooperation partners Was used e.g. by ERA PerMed and Flagship Canada/EU call Ca. 250 entries so far Venue

Survey and Database Mapping Activity: Ongoing funding programmes in Personalised Medicine Survey sent to all ICPerMed members Results are available in the ICPerMed mapping database open to the public after simple registration Venue

ICPerMed Statements ICPerMed may issue joined statements on important issues in Personalised Medicine. First statement: May 2018 about the One Million Genomes Declaration https://www.icpermed.eu/en/statement-concerning-the-1-million-genomes-declaration.php Venue

ICPerMed State-of-the-Art Report Available on ICPerMed Website First year: Mainly report on ICPerMed Activities Future reports: More general overview over the field of Personalised Medicine Released June 2018 Venue

ICPerMed Workshop 2017 Innovative Concepts on Data Generation and use for Personalised Medicine Research Milan, June 26-27, 2017 Venue

ICPerMed Workshop 2017 „Data Generation and Use for Personalised Medicine Research“ Experts and funders Interdisciplinary working panels on: Primary Prevention Disease reclassification Impact of data in research Successful PM approaches New tools impact Workshop report available

Personalised Medicine in Action ICPerMed Events ICPerMed Conference 2018 Personalised Medicine in Action Berlin, November 20-21, 2018 Venue

ICPerMed Conference 2018 “Personalised Medicine in Action” - Focus on best practice examples in research & implementation and policy High-Level Keynote talks covering several aspects of PM Best practice sessions: Research & Implementation: Representatives of all relevant steps as speakers, e.g. researchers, clinicians, industry, payers, patients Policy: Examples on policy making and impact analyses from ICPerMed member countries ICPerMed Award

ICPerMed – Coordinating PM research Venue

More information about ICPerMed Mail: ICPerMed@dlr.de Internet: www.icpermed.eu