EUROCHIP-3: WP-4 Publications Paolo Baili Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

ALREADY PUBLISHED Monograph on EUROCHIP-2 activities on cervical cancer screening Various articles on cervical epidemiological data in Europe and in the world by marc Arbyn EUROCHIP-3 work in Estonia Cancer World article FUTURE Articles on the WP-4 studies on cervical cancer screening in Lithuania, Latvia, Romania and Bulgaria WP4 (TBD) EUROCHIP-3 PUBLICATIONS

EUROCHIP-3 WP-5 & 6: Publications Paolo Baili Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

EUROCHIP PAST PUBLICATIONS Chapter on Cancer Information for Slovenian Presidency cancer book Chapter on cancer for the EUGLOREH (European Global Report on Health) Chapter on cancer for the European Commission Report on Major and Chronic Diseases Cancer control book chapter on cancer indicators

Article on the availability of cancer registry indicators as studied in EUROCHIP-3 WP-5 Article ready at 80% Title: Cancer registry indicators for cancer care in Europe First author: Sabine Siesling Author authors: A.Kwast, A.Gavin, P.Baili, R.Otter & EUROCHIP WP-5 Working group: list of cancer registries participating in the survey FUTURE EUROCHIP-3 WP-5 PUBLICATIONS

1 article in Cancer World already published Article on cancer rehabilitation indicators and literature research on methods and sources as studied in EUROCHIP-3 WP-6 (ready at 80%) – First Author: P. Baili Article on cancer rehabilitation status across Europe as studied in EUROCHIP-3 WP-6 (ready at 80%) – First Author: E. Van Hoof Both articles have EUROCHIP WP-6 Working group with the list of experts involved in the WP-6 surveys and discussions FUTURE EUROCHIP-3 PUBLICATIONS

Polish contribution to WP-6 Country specific papers: Cancer patients rehabilitation in Poland. State of art by Malgorzata Gajewska, Maria Piotrowicz, Dorota Cianciara, Anita Gebska-Kuczerowska, Ewa Urban, Rafal Halik, Nina Bylicka-Karczewska, Magdalena Bielska-Lasota Selected aspects of palliative care in Poland by Justyna Car, Jerzy Jarosz, Anna Debska, Magdalena Bielska-Lasota

EUROCHIP-3: WP-4 Conclusions Paolo Baili Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

WP-4 CONCLUSIONS Cervical cancer screening adherence in Eastern EU MS Several European organizations and networks lead projects in this area EUROCHIP focused on specific barriers characterizing the implementation of CC programs in Eastern Europe Together with other networks, EUROCHIP provided the local experts with a European umbrella for the promotion of effective screening We do think to have helped these countries to improve (or at least to identify how to improve) the status of cervical cancer screening

EUROCHIP WP-5 & 6: Conclusions Paolo Baili Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

WP-5 CONCLUSIONS Cancer registry indicator availability and promotion EUROCHIP is not a project on data collection but a project on the promotion of data collection and their use for cancer control Cancer registries should be recognized to cover a central role in cancer control Collection of health indicators in a comparable way across the EU enables health planners locally to identify the existing major inequalities and act on them European projects and networks allow to collect indicators by cancer registries with standardized approaches and protocols

WP-6 CONCLUSIONS Cancer rehabilitation indicators Relatively new area in the population-based approach Most of the suggested indicators require validation via research studies and to assess ways to collect them This is should be regarded as an important area for future work The epidemic of prevalent cases require more and more attention on the rehabilitation field We hope EUROCHIP, as other networks, have helped to increase the attention on this field

EUROCHIP-3: WP-7 Conclusions Paolo Baili Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

HE EUROCHIP WP7 EXPERIENCE - 1 T HE EUROCHIP WP7 EXPERIENCE - 1 Inequality. WP7 worked on the issue of cancer cost having in mind the paradox that links the economy of our societies to cancer outcome: cancer health disparities are expected to last in the future as the differences in economies. if expenses for cancer are investments not costs our societies may decide to give to EU citizens a chance to escape from the paradox THE ROLE OF PATIENTS IS FUNDAMENTAL

HE EUROCHIP WP7 EXPERIENCE - 2 T HE EUROCHIP WP7 EXPERIENCE - 2 EU scale. WP7 worked on the issue of cancer cost taking advantage of the EU scale: each Member State may understand its own health system performance by improving information system and check health practice by collaboration between countries. if cost is one of the major determinants of the outcome (drugs, diagnostic procedures, organisation) a scale economy is the key: EU is becoming the solution THE ROLE OF EU IS FUNDAMENTAL

HE EUROCHIP WP7 EXPERIENCE - 3 T HE EUROCHIP WP7 EXPERIENCE - 3 HTA STUDIES. WP7 worked on the issue of cancer cost by proposing to look at major components of cancer management in terms of cost: Cancer guidelines may be studied in terms of HTA. If cancer cost is not considered a problem in EU HTA studies are not adequately supported: cost/effectiveness studies are the key for trying to overcome GDP limitations for trying to overcome GDP limitations THE ROLE OF HTA STUDIES IS FUNDAMENTAL

HE EUROCHIP WP7 EXPERIENCE - 4 T HE EUROCHIP WP7 EXPERIENCE - 4 KEY POINTS minimum requirement sets of cancer tools multidisciplinary activity identify reasons for cost increase POLITICAL ACTION advancement in cancer research: studies that consider the cost issue should be supported A EU CANCER CONTROL COMMUNITY IS FUNDAMENTAL NOTHING ABOUT THEM WITHOUT THEM

EUROCHIP: Near Future

EUROCHIP: European Cancer Health Indicator Projects EPAAC: The European Partnership for Action Against Cancer

WP1: Coordination & Management WP2: Dissemination, Virtual partnership WP4: Secretariat, Open Forum WP3: Evaluation WP5: Health Promotion and Prevention WP6: Screening and early diagnosis WP8: Research WP7: Healthcare WP9: Information & data WP10: Cancer plans

EPAAC WP-9 aims LINK WITH EUROCHIP-3 WP-5 Evaluate a standard protocol for collection of data on stage, clinical standards, treatments, etc to be used by EU cancer registries in comparable studies LINK WITH EUROCHIP-3 WP-6 Discuss a standard protocol for collection of data on survivorship indicators to be used by EU cancer registries in comparable studies AIM: To enlarge WP-6 discussion to the world of cancer registries

EUROCHIP: Long term future

STATUS AND SOME IDEAS FUTURE: DG-SANCO call for proposal for 2013 MAIN RESEARCH INTEREST: cancer survivors needs Proposals: Pilot studies on cancer survivorship indicators (i.e. qualified prevalence) Cured prevalence from EUROCARE-5 Research studies on QoL indicators