Palliative and End of Life Care Alliance in South Tyneside Patient Reference Sub-Group meeting Thursday 7th June 2018

Our structure South Tyneside Palliative Care Strategic Alliance Strategic Direction and support South Tyneside Palliative Care Leaders Group Programme implementation and oversight Work stream 1 Identifying the Palliative Care patient Work stream 2 My Palliative Care “the right support at the right time” Work stream 3 The last Days of life Education & training

South Tyneside Palliative and End of life Care OUR VISION In the last stage of my life I can expect to receive personalised care and support delivered by coordinated teams working together honestly and consistently to help me and the people important to me. Good Care, Good Death, Good Memories Identifying the Palliative care patient My Palliative Care “The right support at the right time” The last days of life Key interventions: Improve the use of Palliative Care registers in primary care Develop and implement a generalist tool for identifying patients in the last year of their life Increase the Identification of patients with palliative care needs in non-cancer, minority and hard to reach groups Key interventions: Improve the FastTrack process Streamline the co-ordination and referral process along the palliative care journey Work in partnership with our third sector services to help raise awareness of services available to support patients and carers Key interventions: Improve access to appropriate medication at the end of life Support patients to achieve their preferred place of death Ensure patients, families & carers have a positive experience in their last days of life Primary Drivers (Work streams) = key areas we need to address to achieve our vision Secondary Drivers (Key Interventions) = Actions we need to take to successfully implement Primary Drivers Education & workforce development Improve access, induction and maintenance of appropriate EoL palliative care training and education for all stakeholders Support the education/training needs of the above Acknowledge that we need to understand the needs of stakeholders Marketing & Communication

How we will do this: Person-centred co-ordinated care Organisational and supporting processes in place to support new ways of working Engaged, informed individuals, families and carers Health and care professionals committed to partnership working Person-centred co-ordinated care We will deliver our vision by: 1 of the principles of the alliance is focussing on the person, their families and the community – keeping them at the centre of everything we do This is why we are here today – to get you support with the left hand pillar in this slide We are engaging with our 3rd sector agencies and the people that make up our community We need to make sure we increase the voice of the local community by incorporating patient/families and carers experience into our improvement work Commissioning - making sure resources are in the right place at the right time

Patient involvement in redesigning a new unit Some examples of patient involvement Patient involvement brings an understanding, for all health & care professionals, as to what true value is in the eyes of the person receiving the care. Without this, how do we really know what matters most? New unit Just to add some context as to how they could potentially get involved ?? Patient involvement in redesigning a new unit

Get involved…… We would like authentic input from our local community to shape and develop solutions to key interventions across the Palliative & End of Life Care in South Tyneside Keen to explore today how we do this This could involve a flexible approach depending on your feedback Find your own pace with the level of involvement What do people think? Could deliver a tailored training/awareness session along with any carers/volunteers

Thank you! Any questions?