The Patient Experience With Systemic Lupus Erythematosus
Presentation of SLE Variable Symptomatology
Treatment Goals
Challenges of Assessing Disease Severity
Symptoms Have Symptoms Balancing Risks and Benefits
Involve Patients in Rethinking Targets of Care
Treating the Life of a Patient Ongoing Presence of SLE
Importance of Interprofessional Care Team Working Together for Improved Outcomes
Engaging Patients in Care Plan Asking the Right Questions One Patient at a Time
The Time Factor Establishing Patient Relationships
Informed Shared Decision-Making
Coordinated Care for Better Outcomes
A Lifelong Disease Needs a Lifelong Plan
Recognizing the Issues of Nonadherence A Back-to-Basics Approach
Patients Are Humans Nonadherence Is Normal
Weighing the Risks and Benefits of Corticosteroids
Record-Keeping Patient Diaries
Knowing the Whole Story
Knowing the Whole Story (cont)
Treatments for Patients With SLE The Good and the Better
Clinical Trials Offer New Options for Patients
Clinical Trials Offer New Options for Patients (cont)
Concluding Remarks
Abbreviations