A DROP IN THE OCEAN OF CARE NEEDED, BUT HOLISTIC PALLIATIVE (END OF LIFE) CARE WITH A DIFFERENCE FOR THE WHOLE FAMILY.

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Presentation transcript:

A DROP IN THE OCEAN OF CARE NEEDED, BUT HOLISTIC PALLIATIVE (END OF LIFE) CARE WITH A DIFFERENCE FOR THE WHOLE FAMILY

UK World leader Rank : 1 Score 93.9 Integrated into the NHS & strong hospice movement South Africa Best in Africa Rank: 34 Score: 48.5 Supported by government, religious & philanthropic funding. 8080

PALLIATIVE (END OF LIFE) CARE: Palliative care is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.

PALLIATIVE CARE: provides relief from pain and other distressing symptoms; affirms life and regards dying as a normal process; intends neither to hasten or postpone death; integrates the psychological and spiritual aspects of patient care; offers a support system to help patients live as actively as possible until death; offers a support system to help the families cope during the patient’s illness and in their own bereavement; uses a team approach to address the needs of patients and their families, including bereavement counselling, if indicated; will enhance quality of life, and may also positively influence the course of illness; is applicable early in the course of illness, in conjunction with other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.”

WALKING THE ROAD WITH PATIENTS AND FAMILIES FROM BEGINNING UNTIL THE END OF ILLNESS Support: Emotionally Psycho-Social Medically Spiritually Socially Physically END OF LIFE CARE

What do we do in Stellenbosch Hospice? Patient Care for patients per month 1.Contracts with Department of Health 2.CORE of Hospice: Palliative (end of life) Home Nursing

CONTRACT WITH DEPARTMENT OF HEALTH 2 – 8 WEEKS STAY PALLIATIVE CARE (END OF LIFE) CHRONIC CARE REHABILITATION CARE RESPITE CARE HOME COMMUNITY BASED CARE PREVENTATIVE CAMPAIGNS SCREENING FOR HIV/AIDS, TB, DIABETES ALL LOWER LEVEL MEDICAL CARE TRAINING OF FAMILIES TO CARE FOR PATIENTS REHABILITATION REFERRALS TO CLINICS 24-HOUR 12-BED BUTTERFLY WARD 6 WEEKS ALLOWED

Home Based Carer busy with wound care at home HOME COMMUNITY BASED CARE

DONATION OF TOWELS AND BEDDING FOR PATIENTS Carers prepare the donations for Patients Donations are ready to be delivered to Patients at home Patient receives a much needed donation

PREVENTATIVE & SCREENING HEALTH CAMPAIGNS HIV/AIDS testing, TB & diabetes screening, MMC campaign, measuring of blood pressure, eye tests and referrals to clinics

In Patient Care Unit (24- Hour 12-Bed Ward) 6 Bed Ward with Blankets received for Mandela day Candles donated by Rochelle Martin. We burn candles when patients pass away in the ward

In Patient Unit (continue) Concerned Carer with a very ill patient and her “soft” meal (permission received for photo) Men in Ward received their meals

STAFF TRAINING Psycho-Social worker receives her Management Diploma Carers are busy with Level 2 Training

HOME NURSING PROJECT 80 PALLIATIVE / END OF LIFE PATIENTS HOME NURSING FOR THE POOR FREE SERVICES PROFESSIONAL NURSES’ HOME VISITS CARERS CARING AT HOME PSYCHO-SOCIAL WORKERS COUNSEL TO PATIENT AND FAMILY PATIENTS BROUGHT TO IN-PATIENT WARD WHEN NECESSARY NURSING: MEDICAL AID PATIENTS MEDICAL AIDS PAY DIFFERENT FEES FOR: PROFESSIONAL NURSES’ HOME VISITS CARERS CARING AT HOME PSYCHO-SOCIAL WORKERS COUNSEL TO PATIENT AND FAMILY WE NEED EXTRA ROOM AND BEDS IN A FACILITY FOR IN PRIVATE WARD PATIENTS

HOME NURSING PROJECT Our first Cancer Home Nursing Patient who died on the 13rd of May 2016

Hospice Psycho-Social Department Weekly Day Care: Patients are brought in and gather in the United Church Hall. They are given exercises, food, psycho-social care and socializing opportunities with each other

189 Candles were lit for Hospice patients who died in 2015 Sr. Yvonne hand out balloons to families to release, for each patient lost during the year. Psycho-Social Services’ Yearly Bereavement Service for Patients who died in the past year

WHAT DO WE WANT TO DO? MORE PALLIATIVE NURSING!! =

HOW ARE WE GOING TO DO THAT? Raise funds for: Own building for Palliative In Patient Ward (+ R6mil.) Palliative medical practitioner (R0.5mil per yr.) More Palliative Professional Nurses (R1.0mil per yr.) More Psycho-social workers (R0.2mil per yr.) More Home Based Carers (R0.8mil per yr.) More vehicles to visit Patients’ homes (+ R )

HOW ARE WE RAISING FUNDS HOSPICE SHOP SELL 2 ND HAND DONATED ITEMS INCREASE INCOME BY SAVING ON OVERHEADS BY: 1. ATTRACTING MORE VOLUNTEERS 2. IMPROVING SHOP LAY OUT TO INCREASE PRODUCTIVITY WITH LESS STAFF MEMBERS EVENTS, DONATIONS FUND RAISING EVENTS DONATIONS INHERITANCE APPLICATIONS FOR GRANTS & CONTRACTS APPLICATIONS FOR FUNDING HOME NURSING PROJECT MEDICAL AID SCHEMES PAID SERVICES FOR CHRONIC PRIVATE PATIENTS HIRING OUT BEDS AND EQUIPMENT TO NON- HOSPICE PATIENTS

Hospice Bargain Shop Hospice Boutique Shop Stellenbosch Hospice Shops

Jo-Ann, Annelie & Sonja: The volunteers who renovated the Book Shop Hospice Shops Continue

Hospice Book shop renovated by Volunteers September 2016

HOW YOU HELP? HOSPICE SHOP VOLUNTEER AT SHOP FOR FEW HOURS PER WEEK SUPPORT SHOP BY DONATING AND BUYING MARKET THE SHOP TO YOUR FRIENDS EVENTS, DONATIONS ORGANISE FUND- RAISING EVENTS REMEMBER US IN YOUR WILL MAKE A MONTHLY ELECTRONIC CONTRIBUTION HOME NURSING PROJECT SPONSOR A BUILDING TALK TO FAMILIES AND FRIENDS ABOUT DEATH VOLUNTEER YOUR PROFESSIONAL SKILLS AS VOLUNTEER MAKE USE OF OUR SERVICES WHEN NEEDED