St. Jude Children’s Research Hospital The mission of St. Jude Children's Research Hospital is to find cures for children with catastrophic illnesses through.

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Presentation transcript:

St. Jude Children’s Research Hospital The mission of St. Jude Children's Research Hospital is to find cures for children with catastrophic illnesses through research and treatment.

A Promise No Child should die in the dawn of life No child is turned away for inability to pay.

Memphis Grizzlies House

Childhood Cancers – Cure Rates St. Jude Children’s Research Hospital 80% Survival Rates in Developed Countries

Costa Rica Panama ZimbabweSouth Africa IOP Countries of Involvement Paraguay Ireland

Childhood Cancers – Cure Rates 0-30% Rates in countries with limited resources

St. Jude International Outreach Program -

Childhood Cancer Worldwide Over 300,00 new cases worldwide Children in resource rich countries can expect success rates up to 90% Limited Resource Countries –Limited Infrastructure –Limited number of professional staff –Limited Budget –Limited Books –Limited Training

St. Jude International Outreach Program

Cure4Kids Impact Worldwide 155 Countries use Cure4Kids for education and collaboration!

Global Knowledge Sharing

International Live Online Conference Rabat, Morocco Casablanca, Morocco

A hospital without walls

St. Jude International Outreach: the First 10 years  Development of Pediatric Cancer Units (Twinning)  Local Foundation and Medical Unit  Validated Strategy: Over 6,500 children treated annually, $5.1M budget* North Brazil 1994 El Salvador 1993 Guatemala 1997 ALL Survival Rates *excluding Lebanon operational budget

Successful Model: Integrated Approach Pediatric Cancer Unit Housing, Medicines Follow up, Psychosocial JAMA, 2004 N=376

% 50% Patient CareResearchEducation Treatment Components Patients Cured

Partner Site Country 100% 50% 0 Expected Survival of Children with Cancer at Partner Countries Patients Treated

Donations of Hospital Infrastructure Dr. Barrett Haik with a donation of a Retcam to Guatemala

Telemedicine Dr. Francisco Pedrosa, IMIP/CEHOPE, Recife, Brazil

Recife has 3 million inhabitants, of which 50% are children. Recife, Brazil

St. Jude International Outreach Program - Telemedicine % ALL Survival

St. Jude International Outreach Program - Telemedicine % NHL Survival

Honduras 2002: 2002: On site educational program in hospital hygiene, infectious complications in cancer and prevention, and usage of antibiotics. Attendees: Attendees: 68 health care providers, 48 hospital cleaners and 16 parents of children with cancer Parents of children with cancerStaff physicians and pediatric residents, Hospital Escuela, Tegucigalpa

Honduras: Follow-up, 2004 Awareness generated by the educational programs contributed for better infrastructure planning and implementation by pediatric oncology service of Hospital Escuela, example: hand hygiene stations.

Patient and Parent Education Higiene de manos Mojar Enjabonar Frotar Enjuagar Secar (Toalla de un solo uso)

Cancer Diagnosis - Appropriate class codes, staging, histologies are presented via “pull-down” for each cancer type As with all pull down terms, these histologies are translated Repeating fields; Create as many as required

Protocol Manager - Protocols may be modified, activated, deactivated, deleted, copied and shared globally. Activated protocols may never be modified, but may be copied and modified as a revision.

Reporting on Protocols

… complete with graph

Sharing Data within AHOPCA Data Management Infrastructure Sharing Data within AHOPCA Costa Rica Panamá El Salvador Nicaragua Honduras Guatemala Hodgkin lymphoma Local data entry Local queries PI queries PI reports AHOPCA WebMISPHO McMaster Nutrition Epidemiology POND