What data are collected? How, and who by? Karen Graham and Barry Plewa

Datasets and Data Collections NCIN - Cancer Data Roadshow Public Health England | 2015

Primary Data Sources Exports / Uploads RadiologyPathologyPASCancer Mgt systems E prescribing RadiotherapyPalliative care COSDDIDSCWTCOSDSACTHES / Pbr Screening 3 Audits 5 RTDSPalliative Care

Primary Data Sources Exports / Uploads RadiologyPathologyPASCancer Mgt systems E prescribing RadiotherapyPalliative care COSDDIDSCWTCOSDSACTHES / Pbr Screening 3 Audits 5 RTDSPalliative Care

NCIN - Cancer Data Roadshow Public Health England | 2015 Cancer Waiting Times (CWT) Upcoming Changes  Version 9 of the Cancer Waiting Times: A Guide is being updated.  A draft can be viewed on the CWT table  There will be two new data from March 2016 onwards:  NHS NUMBER STATUS INDICATOR CODE  REFERRAL REQUEST RECEIVED DATE (INTER-PROVIDER TRANSFER).  Data submissions are also set to change from CSV to XML submissions in March 2016.

NCIN - Cancer Data Roadshow Public Health England | 2015 Cancer Waiting Times (CWT) The quarterly reports can be found: Guidance documents can be found: Cancer Waiting Times: A Guide — Version 8.0 National Cancer Waiting Times User Manual - v6.1 National Cancer Waiting Times Reports User Manual - Version 1.0 Further questions and queries E- mail Phone

NCIN - Cancer Data Roadshow Public Health England | 2015 National Audits Key points  Lung Cancer – Royal College of Physicians in partnership with the National Cancer Registration Service (NCRS) - New contract for 2015  Colorectal Cancer – Royal College of Surgeons with the Health and Social Care Information Centre (HSCIC)  Head & Neck Cancer - Contract not awarded  Upper GI Cancer - on going contract until 2016  Prostate Cancer - began 2014 in partnership with NCRS  Breast Cancer - likely to be commissioned in 2015

NCIN - Cancer Data Roadshow Public Health England | 2015 National Lung Cancer Audit (NLCA)  New contracts awarded December 2014: From 2015 is now run by the Royal College of Physicians in partnership with NCRS  Will utilise COSD as its primary data source.  Feedback on completeness to trusts May  Annual Report December  PROMS/PREMS element in development.

NCIN - Cancer Data Roadshow Public Health England | 2015 National Prostate Cancer Audit (NPCA)  New model for cancer audits  Partnership between NCRS and professional bodies  Near real time data collection from MDT’s  Data set largely collected as part of routine flows  NCRS produces linked audit datasets for analysis

NCIN - Cancer Data Roadshow Public Health England | 2015 National Prostate Cancer Audit (NPCA)

NCIN - Cancer Data Roadshow Public Health England | 2015 Diagnostic Imaging Dataset (DIDs)  Record-level data from NHS Radiology Information Systems (RIS) relating to diagnostic imaging activity in hospitals in England.  Health and Social Care Information Centre (HSCIC) collect data on a monthly basis. It is linked to Hospital Episodes Statistics for fuller analysis.  NHS users may apply for access to the DID via HSCIC’s iView reporting tool. Details of this and the collection are at:  Results are analysed and published by NHS England in provisional monthly summary reports and a final annual release, at: dataset/ dataset/

NCIN - Cancer Data Roadshow Public Health England | 2015 Diagnostic Imaging Dataset (DIDs) Ultrasound activity by number of days from date of test request to date of test, by source of referral, 2013/14 Average period from date of test to date test report issued for Chest X- ray, by provider,

Cancer Outcomes & Services Dataset (COSD)  Phased Rollout: January 2013 – January 2015  New Dataset: Incorporating Registration Data  Aligned and Rationalised with Other Cancer Datasets  Core Data Set and Site Specific Items  Intended to Record Key Data from the Entire Patient Pathway  Requires Monthly Submission from Trusts  Recent Implementation of Feedback and Quality Reporting Back to Trusts  RCPath aligning with COSD NCRS - Cancer Data Roadshow Public Health England | 2015

Cancer Outcomes & Services Dataset (COSD) NCRS - Cancer Data Roadshow Public Health England | 2015

Cancer Outcomes & Services Dataset (COSD) NCRS - Cancer Data Roadshow Public Health England | 2015

Radiotherapy Dataset (RTDS)  Previously collected and compiled by National Clinical Analysis and Specialised Applications Team (NatCanSat)  Data will be collected and compiled by NCRS from April 2016  For 2015/16 data will be submitted to both NatCanSat and NCRS  XML schema in development NCRS - Cancer Data Roadshow Public Health England | 2015

Systemic Anti-Cancer Therapy (SACT) Currently collected by the Chemotherapy Intelligence Unit in Oxford (CIU) Kellie Peters will be leaving Public Health England on 25 th March Martine Bomb has been seconded from CR-UK for 6- months for 3 days per week, taking on the SACT programme lead NCRS - Cancer Data Roadshow Public Health England | 2015

Systemic Anti-Cancer Therapy (SACT) NCRS - Cancer Data Roadshow Public Health England | 2015 Data completeness by diagnostic group Data completeness Trust Profile Data Quality Trust Profile

Data Flows to NCRS Understanding Data Flows NCRS - Cancer Data Roadshow Public Health England | 2015

Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Audit NHS Acute Trust Regional Office Trust Data Streams to Regional Office NCRS - Cancer Data Roadshow Public Health England | 2015

Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Encore Audit NHS Acute Trust Regional Office COSD Data The primary area of focus for most improvement work during and before NCRS - Cancer Data Roadshow Public Health England | 2015

Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Encore Audit NHS Acute Trust Regional Office PAS, Pathology & Radiology NCRS - Cancer Data Roadshow Public Health England | 2015

Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Encore Audit NHS Acute Trust Regional Office Radiotherapy Reviewing a new project aiming for direct data feeds from Radiotherapy to NCRS. NCRS - Cancer Data Roadshow Public Health England | 2015

Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Encore Audit NHS Acute Trust Regional Office Audit and CWT Open Exeter NCRS - Cancer Data Roadshow Public Health England | 2015

Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Open Exeter Encore Audit NHS Acute Trust Regional Office Oxford Chemotherapy NCRS - Cancer Data Roadshow Public Health England | 2015

Radiotherapy Pathology PAS CWT Chemo Radiology COSD / MDT Open Exeter Encore Audit NHS Acute Trust Regional Office ONS Oxford Death Certificates Death Cert NCRS - Cancer Data Roadshow Public Health England | 2015

FEBMAR APR MAYJUN JUL AUGSEPOCT NOV DEC JANUARY Data COSD / Path January: Level 1 NHS Trust JAN NCRS Level 1 Report NCRS Reporting Portal NCRS - Cancer Data Roadshow Public Health England | 2015

JAN FEBMAR APR MAYJUN JUL AUGSEPOCT NOV DEC NCRS JANUARY Data January: Level 2 Level 2 Report NCRS Reporting Portal Level 1 Report NCRS Reporting Portal COSD / Path PAS NHS Trust NCRS - Cancer Data Roadshow Public Health England | 2015

JAN FEBMAR APR MAYJUN JUL AUGSEPOCT NOV DEC NCRS Process Data NCRS JANUARY Data January: Level 3 Level 3 Report NCRS Reporting Portal Level 2 Report NCRS Reporting Portal Level 1 Report NCRS Reporting Portal COSD / Path PAS NHS Trust AUG NCRS - Cancer Data Roadshow Public Health England | 2015

JAN MAR APR MAYJUN JUL AUGSEPOCT NOV DEC NCRS Process Data NCRS FEBRUARY Data February Level 3 Report NCRS Reporting Portal Level 2 Report NCRS Reporting Portal Level 1 Report NCRS Reporting Portal COSD / Path PAS SEP NHS Trust FEB NCRS - Cancer Data Roadshow Public Health England | 2015

JANFEBMAR MAYJUN JUL AUGSEPOCT NOV DEC NCRS Process Data NCRS MARCH Data March Level 3 Report NCRS Reporting Portal Level 2 Report NCRS Reporting Portal Level 1 Report NCRS Reporting Portal COSD / Path PAS OCT NHS Trust APR MAR NCRS - Cancer Data Roadshow Public Health England | 2015

NCRS Portal NCIN - Cancer Data Roadshow Public Health England | 2015