1. NPCA data submission and reporting
Update from the National Cancer Registration Service (NCRS)

2. 160+ Trusts submitting to NCRS
The National Cancer Registration Service
8 NCRS Regional Offices
160+ Trusts submitting to NCRS
Northern and Yorkshire
North West
East Midlands
West Midlands
Eastern
Oxford
London
South West *
The National Cancer Registration Service for England
Improving the Quality and Timeliness of Cancer Clinical Data Reported to the National Cancer Registration Service (NCRS)

3. 160 expert Cancer Registration Officers
Dimensions of the NCRS
Periodic Data Feeds
Cancer Registration
Hospital Episodes Statistics
Office of National Statistics
Cancer Waiting Times
1700 MDTs per week
200k records per month
160+ NHS Providers
188+ Data Items per cancer type
350k tumours spanning 42 cancer types registered per year
Monthly Data Submission
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
NPCA Data Collection

4. NCRS Data Flows ONS Encore NatCanSat Radiotherapy COSD / MDT
Regional Office
Death Cert
Pathology
Encore
PAS
NHS Acute Trust
Radiology
Audit
CWT
Open Exeter
Oxford
Chemo
NPCA Data Collection

5. NPCA Data Submission Monthly data submission
NPCA data expected to be submitted alongside COSD
Separate files, but same timescales
Data entered once – extracted by system into appropriate report
NCRS Data Liaison Staff using existing relationships with Trusts to encourage and support the submission of NPCA data
Initial validation and processed into ENCORE
NPCA Data Collection

6. NPCA Submissions: November98
Trusts 42
140 Trusts
Key issues preventing submission:
Systems upgrade (Infoflex)
Calidcott Guardian approval
Widespread IT systems change
Some lack of engagement
National Disease Registration: Overview of Key Programmes

7. NPCA Data Quality Submitted data
Initial check – patient numbers in COSD v NPCA
Data completeness of each field
Trust by trust report
Data liaison teams to work with trusts to improve completeness of data
NPCA Data Collection

8. Data Quality Report
National Disease Registration: Overview of Key Programmes

9. National Disease Registration: Overview of Key Programmes

10. National Disease Registration: Overview of Key Programmes

11. National Disease Registration: Overview of Key Programmes

12. National Disease Registration: Overview of Key Programmes

13. NPCA Reporting Timeline
Diagnosis Date (April)
Month 1 Data Submission (June)
Month 2 Data Submission (July)
Month 3 Data Submission (August)
Month 4 Data Submission (September)
Dataset 1 NPCA Quality Report (End Sept)
Month 5 Data Submission (October)
Dataset 2 & 3 NPCA Data Quality Report (End Oct)
Month 6 Data Submission (November)
Data Quality Feedback to Trusts
The Trusts and the NPCA Project team will receive the Data Quality reports at the same time. Trusts will be expected to review the data submitted and improve and it will be rerun.
NPCA Data Collection

14. NPCA Trust Engagement Building on existing relationships through NCRS
Data quality reports and feedback provided via trust level reports from ENCORE via NCRS offices
NPCA Prospective Audit data will inform 2nd Annual Report.
Establishing timelines and final submission point annual report data; will be shared with Trusts
NPCA Data Collection

15. Questions?
National Disease Registration: Overview of Key Programmes