1. Connecticut Cancer Partnership Patient Navigation Program Amanda Sadlon Project Coordinator amanda@ctcancerpartnership.org

2. Connecticut Cancer Partnership The Connecticut Cancer Partnership unites the members of our state's diverse cancer community--academic and clinical institutions, state and local government health agencies, industry and insurers, advocacy and community groups, and cancer survivors. Together, the coalition has developed and is now implementing a comprehensive plan to reduce the suffering and death due to cancer, and improve the quality of life of cancer survivors throughout Connecticut. No single organization has the power to address every cancer concern. But every organization, sharing a single vision, has a power yet to be fully realized. This is why the Connecticut Cancer Partnership exists.

3. State Cancer Plans

6. CoC Standard 3.1 Patient Navigation Process A patient navigation process, driven by a community needs assessment, is established to address health care disparities and barriers to care for patients. Resources to address identified barriers may be provided either on-site or by referral to community- based or national organizations. The navigation process is evaluated, documented, and reported to the cancer committee annually. The patient navigation process is modified or enhanced each year to address additional barriers identified by the community needs assessment. Evaluation Report: Health disparities identified Description of the navigation process Population(s) served and barriers identified by the community needs assessment Documentation of activities and metrics (outcomes/outputs) Areas for QI, enhancement, and future directions

7. HP Freeman Model, 1990 Abnormal Results DiagnosisTreatment Prevention - Early Detection - Diagnosis, Incidence - Treatment - Post Treatment Survivorship “You’d give the people the test, but somehow they couldn’t get to the next phase… you have to make sure that whatever the doctor recommends at that point, the patient gets.” – Harold P. Freeman U.S. News and World Report, August 2006

8. Navigation Impact Mortality Rates Compliance/preparedness Patient Satisfaction Pain management DNKA (did not keep appointment) rates Medicaid Enrollment E.R. Visits

9. CT Cancer Partnership Patient Navigation Conference Grant Requirements:  Attend HP Freeman Training  100 - 150 attendees  6 hour period  6 speakers  CEUs offered  Develop training materials/handouts  Evaluate Efforts and report back

10. Very well organized notes from HP Freeman Training

11. Teamwork.

12. Patient Navigation Conference Held on April 17, 2012, Cromwell Crowne Plaza Rian Rodriguez, keynote speaker Other Speakers: Sharon Gentry, Pamela Vlahakis, Kevin Fiscella, Joshua Hauser, Mandi Pratt-Chapman, Angelina Esparza, Lauren Kelley 150 attendees – 21 person wait-list after 20 days of open registration CEUs provided by Leukemia & Lymphoma Society 171 registrants 96 organizations 40 Connecticut towns All 8 state counties 45 received CEUs (33 Nurses, 12 Social Workers) 80 joined the Partnership mailing list 15 became Partnership members 34 joined a new Partnership committee

13. CEU Participant Demographics

15. Pre and post test results: Participants were asked to rate their knowledge in the areas listed above, with a score of 1 being “not at all knowledgeable” and 5 being “very knowledgeable”

16. Gateway Community College Patient Navigation Certification Program 16 Students (incumbent workers) 3 classrooms sessions (Saturdays) Clinical internship Curriculum covered: Defining Patient Navigation, Goals and Identifying Responsibilities; working with special/disparate populations; Overview of Healthcare Systems; Public and Private Insurance Benefits and How to Access; Identifying the at risk population; Interfacing with Federal, State and Community social service agencies; accessing additional resources; establishing Patient Navigation plans; building empowerment skills in patients; required Documentation/establishment of record keeping; advanced Patient Navigator case management techniques (boundaries) Yale Medicine Publication Intent to Publish Findings CT DPH Funding a second course in the Spring