1. Department of Medical and Surgical Neonatology:

4. Inquadrare, decidere, comunicare…

5. Department of Medical and Surgical Neonatology:

6. (sapendo cosa si vuole comunicare e forti delle proprie convinzioni tecniche ed etiche)

7. Department of Medical and Surgical Neonatology:

9. Giambattista A:

10. Department of Medical and Surgical Neonatology: Inquadramento iniziale:

11. Department of Medical and Surgical Neonatology: 17 Giugno 2015: Legenda: c:colecisti; d:duodeno; f:fegato Tipo III c d f

12. Department of Medical and Surgical Neonatology: Kasai 1: Inquadramento intermedio: Kasai 1:

13. Dop un mese: 11/7/15 Tracheostomia Tracheostomia Correzione Fallot (5-6 kg, almeno 4 mesi) Correzione Fallot (5-6 kg, almeno 4 mesi) TxL dopo Fallot (almeno 8/9 mesi) TxL dopo Fallot (almeno 8/9 mesi) Department of Medical and Surgical Neonatology:

14. Discussione nel Team Cromosomopatia

15. Department of Medical and Surgical Neonatology: Discussione nel Team Cromosomopatia

16. Department of Medical and Surgical Neonatology: Discussione nel Team Cromosomopatia

17. Department of Medical and Surgical Neonatology: Discussione nel Team Cromosomopatia

18. Department of Medical and Surgical Neonatology: Discussione nel Team Cromosomopatia

19. Department of Medical and Surgical Neonatology: Discussione nel Team: Neurologia

20. Department of Medical and Surgical Neonatology: Discussione nel Team: AVB

21. LIVER TRANSPLANTATION 21:922–927, 2015 Biliary Atresia and PATIENTS SURVIVAL Department of Medical and Surgical Neonatology:

22. Biliary Atresia and GRAFT SURVIVAL Department of Medical and Surgical Neonatology: LIVER TRANSPLANTATION 21:922–927, 2015

23. Department of Medical and Surgical Neonatology: Liver International (2011) Biliary atresia with associated structural malformations in Canadian infants Orlee R. Guttman1,2, Eve A. Roberts3,4,5, Richard A. Schreiber1,2, Collin C. Barker1,2, Vicky L. Ng3,5 and the Canadian Pediatric Hepatology Research Group

24. Department of Medical and Surgical Neonatology: In children with the syndromic variants of biliary atresia, associated anomalies, especially congenital cardiac malformations, increase the risk of both early mortality and morbidity. In such children the need for liver transplantation is great. When transplantation is considered in these patients vascular imaging of anatomical anomalies should be thorough, because technical modifications are needed during surgery. Nevertheless, results that are similiar to those in children with isolated biliary atresia can be achieved. Biliary atresia Jane L Hartley, Mark Davenport, Deirdre A Kelly Lancet 2009; 374: 1704–13

25. Department of Medical and Surgical Neonatology: La situazione attuale di G.

26. Department of Medical and Surgical Neonatology: La situazione attuale di G.

27. Department of Medical and Surgical Neonatology: Discussione nel Team

28. Department of Medical and Surgical Neonatology: I genitori?

29. (The example of prenatal counselling) Aite L, Bagolan P. Early Human Development, 2006 “Improvvisamente il mondo mi è crollato” addosso “Nulla è più come prima” “Mi sono trovato in un modo che non mi appartiene” Intense emotional crisis of parents who have given birth to a child with a congenital malformation. bagolan@opbg.net

30. Aite L, Bagolan P. Early Human Development 2006 “ Semplicemente non posso credere che stia accadendo a me” “Mi ripeto che non sta succedendo a me” “Mi dico che è solo un incubo” Attempt to escape information and take distance from this unbearable event. (The example of prenatal counselling) bagolan@opbg.net

31. Aite L, Bagolan P. Early Human Development, 2006 (Sadness for what is lost) “Perchè a me?” “Cosa o fatto per meritare questo?” (The example of prenatal counselling) Intense feelings of sadness, anger and anxiety following the communication of diagnosis bagolan@opbg.net

32. Aite L, Bagolan P. Early Human Development, 2006 Gradual lessening of the intense emotional reactions experience. (The example of prenatal counselling) “Oscillo tra la speranza e il terrore…” bagolan@opbg.net

33. Department of Medical and Surgical Neonatology: I Genitori…

34. Department of Medical and Surgical Neonatology: Atteggiamento nel Team:

35. Department of Medical and Surgical Neonatology: Quesiti nel Team:

36. Department of Medical and Surgical Neonatology: Io …

37. Department of Medical and Surgical Neonatology: Io …

38. Department of Medical and Surgical Neonatology: Io …

39. Department of Medical and Surgical Neonatology: