1. Patient awareness campaigns 2013-14 What’s happened, what’s coming up and how you can get involved Daniel Spiers – NIHR Clinical Research Network Communications Manager

2. So far this year... Mystery shopper

3. Campaign I Mystery shopper Background Traditionally, research engagement has a clinician-based approach –Hugely successful –Over 630,000 patients participated during 2012-13 –99% per cent of Trusts now support clinical research BUT patients often unaware of research unless they are approached (Source: CRN OnePoll consumer survey 2012)

4. Support for Trusts post-shopper “We do clinical research” brochure: outlines existing and new materials to help Trusts to raise patient awareness about research –Resources can be branded with Trust logo –Some things paid-for, some free –Can be ordered online –Examples of good practice and a check-list

5. Campaign II Only 21% of patients feel very confident of asking clinician about research (NIHR CRN OnePoll consumer survey 2013). International Clinical Trials day 2013 campaign, the NIHR decided to address this through “OK to ask”. This campaign is aimed at patients, medical professionals and the public. Everyone can get involved and help spread the word that it's OK to ask about clinical research. Background

6. What happened

7. What happened: Social media

8. Used #nihroktoask Pointed patients to the facebook page to share their questions and experiences Shared videos and photographs with a patient audience Encouraged support through likes, comments and shares Promoted use of Vine

9. Press Impact

10. Feedback

11. Things you can do right now 1.“Like” the CRN page on facebook www.facebook.com/nihrcrn www.facebook.com/nihrcrn 2.“Like” the NIHR OK to ask page on facebook www.facebook.com/nihroktoask www.facebook.com/nihroktoask 3.Follow @NIHRCRN on twitter www.twitter.com/NIHRCRN www.twitter.com/NIHRCRN 4.Sign up for the CRN patient awareness e-newsletter and help us take “OK to ask” forward daniel.spiers@nihr.ac.uk