1. Belgische Stottervereniging (Belgian Stuttering Association)

2. HOW TO START YOUR OWN STUTTERING ORGANISATION

3. OR HOW TO START A STUTTERING ORGANISATION FOR DUMMIES

4. WHY We share our experiences, tips and knowledge about starting a stuttering organization. Target Public: Everyone interested in making a local, regional or national stuttering association. PS Elsa Youth Meeting 2011 was the start

5. WHO AM I? Erik Lamens president BSV filmmaker ⇒ lots of experience with speaking in public ⇒ lots of experience with the press

6. WHO IS IT FOR? PWS (People Who Stutter) speech therapists researchers... We are there for the stuttering world, not vice-versa

7. FIRST STEPS Which form? Legal form or not? How to chose a name? How to chose a logo?

8. PEOPLE How to chose board members? In general: president (aka chair), secretary, treasurer + ordinary members with trial period! vice-chair is optional, but is a good idea webmaster!! How to deal with differences in style, choices, taste... try to avoid voting

9. SCIENTIFIC BOARD Specialists in their field From every school/ college at least 1 They correct our articles, help us with their experience…

10. MONEY Budget +/- 1000,00€/year flyers business cards banners How to find money? Sponsoring = loss of independence 40 x €25 Membership fee or not? What do members get in return for a membership fee?

11. COMMUNICATION Website: the heart of the communication Facebook, Google+ Keep it alive, better 3 x 1 then 1 x 3 Pictures do a lot Twitter, YouTube… Newsletter! Let the social media do the work for you

12. OUR WEBSITE

13. OUR FACEBOOK PAGE

17. NEWSLETTER What is a good newsletter? Keep it short! When do you send it?

18. MEDIA ATTENTION Do you really need it? Yes! How to get press attention? How to write a good press release? a short introduction (1 page) a longer explanation (x pages) How do you release it & when? 2-4 weeks before reminder 1 & 2

19. WRONG INFORMATION How do you deal with wrong information in the media? e.g. ‘Stuttering cure in 3 days/weeks…’ e.g. ‘Stuttering is an attitude problem’ e.g. ‘PWS are retarded’ React immediately Use the same media Open letter, article, opinion piece...

20. ACTIONS ISAD every year Lectures Speaking in schools, college Spreading the message in general… tip: ALWAYS take pictures

21. ISAD How to set up your own ISAD Is it important? Yes! spread the message get together keep your network alive

22. VIDEO COMMUNICATION Do we need it? Yes! What is a good video? Keep it short! How do you present i? How do you put it on the net YouTube YouTube vs. Vimeo

23. LONG TERM PLANNING Year 1: setting up, creating a network Year 2: making & spreading content Year 3: actions, making network bigger…

24. FUTURE

25. PARTNERS

28. SUPPORT

29. THE DON’TS Beware of 'all talk no action'-people Trial period!! Beware of ego's The disadvantages of email reply all: be careful! no emotions in mails! solve problems one on one/ live Over- or under-communication

30. STUTTERING MUSIC A great idea ©Nathalie Van den Bergh (secretary) We asked: do you know any 'stuttering music'? dozens of answers stuttering as a subject stuttering in the lyrics sung by PWS…

31. STUTTERING MUSIC Talking Heads, Marilyn Monroe, The Jam, The Knack etc... Nationwide media attention stuttering music for one full hour advertised the program for a whole week before they made a top 10... Millions of people heard this music (5 radio stations, 5 TV-stations...) => they heard about ISAD and our message For one day, on the 22nd of October 2012, stuttering was 'cool' and 'hot’

32. HELP US Like us on FB Become a member It’s free You get our Newsletter (in Dutch, English parts in the future) You help us just by increasing our numbers

33. QUESTIONS?