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Partnering across borders to effect change Glasgow – 3 June 2013 Jean Georges, Executive Director.

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Presentation on theme: "Partnering across borders to effect change Glasgow – 3 June 2013 Jean Georges, Executive Director."— Presentation transcript:

1 Partnering across borders to effect change Glasgow – 3 June 2013 Jean Georges, Executive Director

2 2 Alzheimer Europe 34 associations in 30 countries

3 3 Paris Declaration Adopted by Annual General Meeting in Paris (May 2006) Political priorities: –Dementia as a public health priority –Increased research funding –Improved research coordination –Development of national and European action programmes

4 4 Public health impact 7.3 million people with dementia in European Union 1 Numbers expected to at least double by Wimo A et al. Cost of illness and burden of dementia- the base option. Available at Research/European-Collaboration-on-Dementia/Cost-of-dementia/Cost-of-illness-and-burden-of-dementia Last accessed on 1 October 2011http://www.alzheimer-europe.org/Our- Research/European-Collaboration-on-Dementia/Cost-of-dementia/Cost-of-illness-and-burden-of-dementia 2. Ferri et. al. (2005) Global prevalence of dementia: a Delphi consensus study, The Lancet, Vol. 366, December 17/24/31, 2005

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6 6 Socio-economic impact The total cost of illness of dementia disorders in EU27 in 2008 was estimated to be EUR 160 billion (GBP 136 billion) of which 56% were costs of informal care. 1 The cost per person with dementia was about EUR 22,000 (GBP 18,800) per year. The total societal costs per case are estimated to be 8 times more in Northern Europe than in Eastern Europe 2 1. Wimo A et al. Cost of illness and burden of dementia- the base option. Available at Research/European-Collaboration-on-Dementia/Cost-of-dementia/Cost-of-illness-and-burden-of-dementia Last accessed on 1 October 2011http://www.alzheimer-europe.org/Our- Research/European-Collaboration-on-Dementia/Cost-of-dementia/Cost-of-illness-and-burden-of-dementia 2. Wimo A et al. Regional/National cost of illness estimates. Available at Research/European-Collaboration-on-Dementia/Cost-of-dementia/Regional-National-cost-of-illness-estimates Last accessed on 1 October 2011http://www.alzheimer-europe.org/Our- Research/European-Collaboration-on-Dementia/Cost-of-dementia/Regional-National-cost-of-illness-estimates

7 Alzheimer Europe (2006): Who cares? The state of dementia care in Europe

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9 9 National Achievements

10 10 European Alzheimer’s Alliance Growing membership of European Alzheimer’s Alliance (over 70 Members of the European Parliament) Lunch debates in European Parliament Parliament EU and National Champions Interviews, resolutions, reports

11 11 Towards a European Action Plan? Commission Communication on a European Alzheimer’s Initiative (2009) –acting early to diagnose dementia and to reduce the risk of dementia in the first place; –improving research coordination between EU countries; –sharing of best practices and –providing a forum to reflect on rights, autonomy and dignity of patients.

12 12 EU Initiatives Joint Programme - Neurodegeneration Research ALCOVE – The Joint Action on Alzheimer’s disease Innovative Medicines Initiative

13 13 For more information


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